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ButtercupSarah

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ButtercupSarah

  1. ButtercupSarah
    The only meds I take are my armor for my hypothyroid....but the gut symptoms have been ongoing for upwards of 7+ years. I just started taking armor less than a year ago.
  2. ButtercupSarah
    I found a few very interesting articles on the relationship between SIgA and celiac/colitis! I have VERY high cortisol, hypothyroid, and as immune system in the toilet...constant sinus infections and bronchitis, as well as UTI's and yeast infections.... I kind of feels like things are starting to make sense! Open Original Shared Link
  3. ButtercupSarah
    Is this the same as Total Salivary SIgA? I had this tested recently and it came back VERY depressed My result was 6 mg/dl - Normal 25-60 mg/dl
  4. ButtercupSarah
    Thank you so much MGR! My doctor brought up Ulceritive Colitis and the symptoms sound spot on...I am making the GI appt ASAP. I always wondered why going gluten free cleared up so much and my gut remained a wreck! I have been wading through all of the bowel diseases and this seems the most probable.
  5. ButtercupSarah
    I have been gluten free over a year and went dairy light a few months ago and dairy free about a month and half ago. Giving up gluten solved many of my problems....numbness in my arms and legs, extreme fatigue, and some of the brain fog issues (still don't feel as quick as I used to be) When I do get "glutened" I have VERY neurological symptoms.....
  6. ButtercupSarah
    I have been on a gluten free diet for a year now, and I my testing was all done POST gluten free diet. The original cortisol testing was done through blood. I just received my spit test results back: Gliadin was negative (obviously, I don't eat gluten) My morning cortisol was depressed and the noon, afternnon and midnight were normal. My total...
  7. ButtercupSarah
    The peak range (morning) was Range: 2.3-19.4 and my result (taken around noon) was 36.4
  8. ButtercupSarah
    The last time my antibodies were tested I had been gluten free for almost 3 months, so, it seems as though they are useless. I will look into the adrenal support supplement, I did a spit test for adrenal function and should know the results of that very soon. My only antibody test was 9 months ago: Gluten free for a little over 3 months at the time ...
  9. ButtercupSarah
    She refuses to run my antibodies again (because my insurace won't cover them), they haven't been tested in 9 months. I am going to a new Dr. on the 30th. I just want some answers...I'm sick of being told to take fish oil and sleep more. My D3 is low and my tests basically indicate I'm at high risk for cardiac episodes, which makes zero sense...I am a...
  10. ButtercupSarah
    Bit of an update on this: I have been informed that the spit test I did for my high cortisol will also test for the celiac GENE, which makes a lot more sense. Hoping to get that test result back soon. Thanks a bunch guys!
  11. ButtercupSarah
    Hi ya'll I got some new blood work back yesterday and I am not comforted by the results, obviously something is wrong...and I'm not getting any answers. I am Hypothyroid but non hashimotos and have been gluten free for almost a year I have a couple of off the charts results in inflammation and cortisol: Cortisol 36.4 ug/dl Range: 2.3-19...
  12. ButtercupSarah
    Just noticed my ridges recently, which seems strange because I didn't have them before going gluten free...I had a sneaking suspicion it was malabsorption. and....holy crap where are my moons! I'm missing 6 of them!!!
  13. ButtercupSarah
    I was getting bloodwork done a few days ago to test my thyroid and a few other things and I was recommended a cortisol test for adrenal function as my cortisol was double the highest number. I got the test home and realised that it also has a box to test for celiac. My doctor recommended testing as my symptoms are many. Does anyone have any experience...
  14. ButtercupSarah
    Thank you all for you advice! I haven't had any problem with red wine and that is usually all I drink. It was a coyote ugly (so probably not super clean) but the glasses were plastic so I figured I was okay. The vodky i'm sure didn't help, I usually don't drink much liquor. We ate at a restaurant earlier that I usually have no problem with and they have...
  15. ButtercupSarah
    I am also dealing with the combination of hypothyroid and Gluten intolerance. I did not realize it would take so long for my joint pain/tendonitis/carpal to improve. This website is such a lifesaver. I am going to check out orthopedic massage for sure!
  16. ButtercupSarah
    I also have TMJ and did not think about the relation, massage seems to help, I don't think I have been gluten free long enough to illicit a difference yet, but I will pay closer attention now.
  17. ButtercupSarah
    I attended a bachellorette party last night and was definitely glutened. I believe it happened at the bar we attended as the friends house we started the evening at is also gluten free. I drank vodka with oranje juice and cranberry....thinking it would be safe. Maybe I am more sensitive to gluten than I thought? I read that some people react to vodka...
  18. ButtercupSarah
    nvsmom, Thank you that makes me feel better! Did you feel better on the synthoid? Regain any energy? I have already given up gluten and the headaches and GI are better....but the fatigue and numbness are so constant I'm losing my marbles! I don't like taking medication if I don't have to...but if it makes a difference in the fatigue and numbness then...
  19. ButtercupSarah
    Yay! I finally found a place where I can get answers! You all are the BEST. I just got my blood tests back and have a TSH of 4.09 and my cortisol is 34 ...peak being 19 My great grandmother and grandmother are hypothyroid and my symptoms are pretty textbook. Can you still be diagnosed Hypothyroid with a normal T3, T4? I am scared that I will keep...
  20. ButtercupSarah
    This morning while trying to explain my symptoms; the Dr. cut me off with this gem... "gluten intolerance only gives you diarrhea....can't be that" Frustrating.
  21. ButtercupSarah
    Trixim - In the last 2 weeks I have felt so much more present in class (I own my own studio, so it is an incredible relief!). I can think. Which feels like a miracle...I was terrified I was developing alzheimers or something at 25 y/o! I hope you find the answers you are looking for too. You said it exactly...the worst part is feeling like you are nuts. There...
  22. ButtercupSarah
    It is so strange! I have never had reactions like this before, and to so many things. To me it is just an indicator that I made the right decision to give it up. Obviously my body does not appreciate it! So glad I found this website and I am able to talk to people with the same issues
  23. ButtercupSarah
    Thank you! I tried to read the bottle but all they say is "For professional use only." I didn't realize other things could rear up like that. Crazy! I will try to research the ingrediants online. I appreciate your help!
  24. ButtercupSarah
    I am undiagnosed, but gave up gluten just a few weeks ago. I messed up one night and ate something I tthought was safe and wasn't and broke out in an itchy hive-like rash. As we speak I am getting a pedicure...as soon as she put the lotion on my legs they immediately start itching like crazy and I have a rash/hives. This never happened prior to giving up...
  25. ButtercupSarah
    Thank you so much! As much as I would like to know a concrete answer my mind is made up just from the few weeks I have spent off of gluten that it would just be miserable (and pointless) to continue eating it. I feel in control, and that's good enough for me! So glad I found a community like ya'lls! Very appreciative, Sarah
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