durrsakja
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Latest Celiac Disease News & Research:
Everything posted by durrsakja
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Magnesium supplements helped immensely with cramps, pain and twitching for me even though my lab tests did not show a deficiency.
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ARCHIVED Is Talenti Gelato Safe?
durrsakja replied to durrsakja's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you all! Looking forward to trying it! -
ARCHIVED Is Talenti Gelato Safe?
durrsakja posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I bought some talenti gelato bars (sea salt caramel). The box states gluten free however I noticed they also offer gluten containing flavors. I sent the company an email asking how they prevent cc during production but I have not heard back. Has anyone had issues with this brand? -
That's great news! Thank you Nikki!
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Did you get a chance to try it Nikki? It would be great to know. I used to eat there before my diagnosis and miss their food
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The menu has lots of gluten-free options however it says in fine print on the menu that cc is possible. Has anyone tried it? I am wondering on whether it is more of a CYA statement and if I explain to the server my condition they can accommodate me safely.
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ARCHIVED Restaurants In Columbia, Md?
durrsakja replied to durrsakja's topic in Traveling with Celiac Disease
Thank you -
Have a business lunch / dinner there in a couple of weeks. any suggestions on safe restaurants?
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Benign/cramp Fasciculation Syndrom Questions
durrsakja replied to Leonard275's topic in Related Issues & Disorders
I took magnesium supplements even though blood work did not show a deficiency. Cramps were gone in a month. Hope that helps. -
ARCHIVED Spices
durrsakja replied to durrsakja's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you all. I am not sure whether it was the spices or anything else but I am changing to a certified gluten-free brand just in case. It has been over a week and still not 100 percent but hopefully soon -
I am pretty sure I got glutened by the single ingredient spices I used last weekend. Which brand do you guys use that you feel are safe? The brand I used are simple organics and after I called them they said that the facility is not gluten free so there is a chance for cross contamination.
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ARCHIVED Del Frisco Steakhouse In Philly
durrsakja replied to durrsakja's topic in Gluten-Free Restaurants
Thank you Laura. I was fine after eating there. -
Has anyone had any experience with this restaurant? I am going there for a work dinner and am worried about how careful they are with gluten and other allergens.
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ARCHIVED Reactions To Non-Gluten Food
durrsakja replied to JAY-RU's topic in Coping with Celiac Disease
Foods keep getting added to the list unfortunately. What I have done is get on a rotational diet and try not to overdo any food. For some reason eating too much of something a few days in a row triggers a reaction. I also have an epi pen. I would strongly suggest seeing an allergist and asking for one. As for why, no one has any answers for me (I have... -
ARCHIVED Reactions To Non-Gluten Food
durrsakja replied to JAY-RU's topic in Coping with Celiac Disease
I am having the exact same problem. Two weeks in started having allergic reactions to dairy, moved on to nuts and snowballed from there to have allergic reactions to a bunch of other foods. Not a gluten reaction, an actuall allergic reaction. Now I have hives even when I don't eat the trigger foods. Been diagnosed and gluten free since February and have negative... -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The latest one I used Is a powder form. It is grown on a vegetable base and free of dairy, soy, corn etc. I picked it due to the claim of it being free of these added ingredients and it was definitely very expensive. I think it is just me having some sort of reaction to the probiotics. I do not know if it has played a reaction into my food allergies as I... -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you all. The probiotics I chose had no fillers, no binders. Just pure probiotics grown on a vegetable culture. The company did not say which one as it is proprietary info. I am assuming I had a direct reaction to them vs the fillers. I did do a breath test and no overgrowth of bacteria. I am stumped as everyone I read about has had such a good response... -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Glad to hear they are working for you. I have made sure they are allergen free but I reacted really badly. I am wondering if my hives and food allergies are due to the probiotics. -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I used a gnc brand initially, then Culturelle. Recently I used GutPro (no fillers). -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The first one was milk based. I switched to a soy based one and then stopped taking them for a while. The last one is milk, corn, soy, rice free so not sure if the base of the probiotic is apt he problem. Could the bacteria itself be harmful? -
ARCHIVED Probiotics Causing Issues?
durrsakja replied to durrsakja's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for replying. I have no doubt I have leaky gut which is why I thought probiotics would help. I am taking l glutamine for it, doing a rotational diet, removed all foods that bother me etc. i tried the digestive enzymes for a few months but I noticed zero difference. I am wondering if I am the only person that had such an adverse reaction to probiotics... -
ARCHIVED Probiotics Causing Issues?
durrsakja posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have seen a lot of people here try and have good results with probiotic. Has anyone had issues using them? I started taking them a few weeks after diagnosis. I stopped for a few months as I started dealing with hives, a cascade of new food allergies etc. I started again two months ago and my hives immediately got out of control. I had to take several Allegra... -
Has anyone tried it and has a brand that they recommend as safe?
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ARCHIVED Gt Kombucha And Other Drinks. Am I Being Glutened?
durrsakja posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Given the hot weather I have started drinking kombucha and flavored waters / drinks, however I have started to feel a little off (joint pain etc) so i think I am being glutened. This is what I have tried. GT kombucha GUS grown up soda Ayala herbal water Hint water Fresh ginger - Ginger ale by Bruce Cost Does anyone have any experience with any of... -
A rash similar to heat rash after a day at the beach was one of the first things I noticed when I started getting sick. I still get a similar rash now if I go to the beach. I am not sure if it is celiac related but I hope with the supplements and gluten-free diet it will eventually go away. I try and stay in the shade as much as possible and put on sunscreen...