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NotMollyRingwald

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NotMollyRingwald

  1. NotMollyRingwald
    Lol @the "salty" language. I must admit, there have been a few words unsuitable for children out of my mouth lately. Hehe Thanks for the support and hugs!! I just keep repeating that line from Finding Nemo...just keep swimming, just keep swimming, just keep swimming (repeat x400000000)...May 17 be here soon (I hope!)
  2. NotMollyRingwald
    Warning: somewhat irrational, kinda childish, mini vent forthcoming. Read at own risk. (Lol) I've started back eating gluten, going for at least 2 pc of bread a day, while waiting for my GI appt (initial consult). Five days in and I'm in a funky place...the appt is still 3 wks away (well, 19 days, 13hrs, 28 min...but who's countin?) and I just wish...
  3. NotMollyRingwald
    ^^ This! I've been fortunate to have a very gluten aware Chipotle near my work. The staff has been trained that if a customer indicates a gluten issue, they are to change their gloves, and follow that customer all way to the cashier (so only one worker touches your food). Like recklesstryg said, there are ones to visit, and ones to avoid!! Hope you have...
  4. NotMollyRingwald
    I'm new, too, and can't really add to the awesome info above, but I just wanted to send (((HUGS))) your way.
  5. NotMollyRingwald
    I'm a newbie, too, so I don't feel like I can help you make sense of much (sorry), but I was tested for the Transglutaminase (deaminated glaiadin antibodies) and it was labeled "deaminated glaidin transglutaminase IgA" on my results. I doubt that was helpful (sorry again)... hopefully someone else will answer soon.
  6. NotMollyRingwald
    Gives me hope...so many stories out there of unhelpful doctors; glad you found one willing to be aggressive!
  7. NotMollyRingwald
    Again, these are great points...I have been wondering about my son. He has had "intolerance issues" since birth and seems to be constipated a lot. I suppose my having a "real" celiac disease diagnosis would be more convincing to his Ped if I were to request he is tested... And the gluten free Rx is something I had not thought of at all...I better go check...
  8. NotMollyRingwald
    Thank you for this!
  9. NotMollyRingwald
    Hi all. I don't have a firm diagnosis, just a "likely celiac" label. Seeing a GI in a couple weeks, whom I assume will want to scope/biopsy. By the time the scope comes, I'll be at least 3 mo gluten-free (I've been very strict, but I'm sure there has been some CC here and there). I can't decide if it's worth it. I know that gluten bothers me. I know...
  10. NotMollyRingwald
    Gemini - again, thank you for the valuable input! Now that I've had about a week to digest (no pun intended, lol) all this, I would have to agree with you - Celiac is the root cause of so many of the random symptoms I have had for a long time (but never made the connection between). I think it's time to just accept it and move on. Hopefully, the healing...
  11. NotMollyRingwald
    You must be having symptoms to suggest a gluten problem. Do you feel any better from your dietary trial? Also, I am a little confused also on your testing. Did they do a Total Iga? If you do not make enough IgA, then you cannot be tested via blood work accurately. This is an essential part of testing. Some people are IgA deficient so blood work is...
  12. NotMollyRingwald
    Gemini - thank you so much for all the info, especially the part about the potential "cancer" worries. I'm a pretty even keel kinda person, but, absent this info, being blindsided by a cancer possibility, I might have freaked out. I am also weight training for fitness and to replace the muscle I lost after years of not enough calories. I love it!!
  13. NotMollyRingwald
    The nurse called back and confirmed they only ran the two tests. The DGP IgA normal range is 70-400 (my reading was 451); the normal range for the DGP Transglutaminase IgA is 0-19 (my reading was 8). The nurse further commented that the DGP IgA reading would decrease overtime as gluten is flushed from the system, so the fact that I was 6 weeks gluten-free...
  14. NotMollyRingwald
    Thanks for the input. I guess I didn't realize that there are different ranges for different tests...I'll call my PCP today and see if I can get the ranges, the document they faxed to me was rather unofficial (usually they send the results in letter format with the ranges and a note from the Dr.) so I assume the nurse only faxed the raw data. Additional...
  15. NotMollyRingwald
    Good evening, Last Friday, my PCP called to discuss the results of my blood work, indicating she wasn't 100% sure, but believes I "likely have Celiac." I received a copy of the results today, and am not clear what they mean. I've read a little on the internet, but the different types of tests have me confused...it looks like only two elements were checked...
  16. NotMollyRingwald
    Neroli, Thank you very much for the helpful information! Amy Hello, and welcome to the board. Newbie 101 is found here: https://www.celiac.com/forums/topic/91878-newbie-info-101/ and it IS a good place to start. It seems to take a good three months or so to settle into the diet and have things start to heal and recover. Cutting...
  17. NotMollyRingwald
    Hi, A little backround: I'm new to celiac disease. I went gluten-free roughly eight weeks ago. The first two weeks were a little rough, but by week three I was feeling great; my symptoms (bloating, stomach upset, brain fog, fibromyalgia, muscle weakness) seemed to decrease and overall I was exponentially better. About week five, the bloating came back...
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