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NotMollyRingwald

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NotMollyRingwald

  1. NotMollyRingwald
    What she said! For example, I'm NCGS and will never get my gums back to normal (they receeded horribly) and my enamel is so far gone its a miracle if I don't have a cavity at every dental visit. I am just past 4 weeks gluten-free again (after gluten trial for EGD), before that I had been "strictly" gluten-free 8 weeks but still had lots of symptoms because...
  2. NotMollyRingwald

    Glutened myself today. Ugh! Stupid stupid stupid.

  3. NotMollyRingwald
    I agree with the above about staying away from the gluten-free beer for awhile. After 4 weeks back on gluten-free diet, I tried Redbridge last weekend and bleeeech! I miss my vanilla porter. Wine it is until I can forget! LOL
  4. NotMollyRingwald
    Amen to that!
  5. NotMollyRingwald
    Thanks MW! Maybe our angels are playing together in Heaven now. Comforting thought. :) I am really excited, too. Already feeling better, but I know there is much more healing to come!
  6. NotMollyRingwald
    This has been my experience also. I always require more Novocain at the dentist, and needed extra anesthesia when I had my tonsils out, etc. I didn't realize this was a red head thing!
  7. NotMollyRingwald
    I was gluten-free 6 weeks before the blood work, and 8 weeks total before the challenge started. I suppose it's possible that my 4 weeks back on gluten weren't long enough to redo the damage undone by 8 weeks of healing, especially since I was "gluten light" prior to going gluten free for about a year...so many "ifs" and "buts" and "maybes" in my situation...
  8. NotMollyRingwald
    Dear Future Amy, I know you are doubting your intolerance/sensitivity to gluten. I'm sure, now that time has gone on, you're starting to doubt the trouble it has caused you. You have forgotten how very miserable your gluten challenge was, and have started allowing the if's and the but's and the maybe's into your mind. So, I'm writing to you now, to remind...
  9. NotMollyRingwald
    ((((((Hugs))))))
  10. NotMollyRingwald
    Will def keep this in mind! Admittedly, I wouldn't opt to try antibiotics w/o reasonable suspicion of SIBO (am allergic to several and they make me nervous), but if it needs doing, it needs doing!
  11. NotMollyRingwald
    Thank the good Lord for that!
  12. NotMollyRingwald
    Ugh. This kinda makes me want to bang my head against a hard object. LOL If they cant rule out Celiac and the SIBO tests are only 60% accurate and no reliable testing exists for other intolerances (e.g. Lactose), the only real viable option to determine what the heck is wrong with me is __________? Elimination diet? Give gluten-free/DF a shot and reassess...
  13. NotMollyRingwald
    I have considered asking his Ped to test him, regardless. He doesn't have classic Celiac symptoms, (nor do I) but does have there are a few things (e.g. frequent bouts of constipation, bloated stomach, sleep disturbances). I think the biggest hurdle here is my husband "it's just normal kids stuff." UGH. And you are absolutely right, getting back to...
  14. NotMollyRingwald
    Just got the word from my GI – the biopsy results are inconclusive. I don’t have a copy of the report yet, but my doc explained there was a small amount of damage to my villi. However, it was not full villus atrophy as would be expected from a full blown Celiac. He believes the damage could be from “early Celiac disease” or it could be the result of a se...
  15. NotMollyRingwald
    I can understand your disappointment. It's so backward, isn't it? To be disappointed when a disease has been ruled out?? I've begun preparing myself for "normal" results, too...caz, as weird as the normals would think this sounds, I know having Celiac would justify all the pain and suffering, and maybe make me seem less crazy to them. To "only have IBS...
  16. NotMollyRingwald

    No more gluten for this girl. Yeeeeeeeeeeessssssss. *fist pump*

    1. IrishHeart

      IrishHeart

      whoohooo! fist pump bump!! :)

    2. Celiac Mindwarp

      Celiac Mindwarp

      Great news, next stage of your new gluten-free life :)

  17. NotMollyRingwald
    Yeah I don't remember much...procedure at 9, home by 1130 (according to my hubby) and I slept from 1200-430pm. Then went back to sleep at 9pm. HAHA! I also "looked normal" so hopefully that's good news. Something about abnormal z-line, but I don't think that's too big of a deal. Results might be in as early as Wednesday. All that really matters right...
  18. NotMollyRingwald
    Lol!! As someone who just had this same experience I have to laugh. Hard!! I totally requested and consumed a gigantic rootbeer float after my EGD and I have zero memory of it. Pity, that's an experience I'd rather remember! So glad they took adequate samples, hopefully that means your results will be absolutely accurate. celiac disease or NCGS, I...
  19. NotMollyRingwald
    Cute idea! That might help my son (only 3) learn what he can touch and what he needs to keep his fingers off/out of.
  20. NotMollyRingwald
    Love the idea of having different colored utensils! I think that will help keep hubby mindful of what he's doing...bright pink oughta do the trick. Hopefully it won't come to it, but I'll keep the ultimatum idea in mind, too. I saw some dishwasher, microwave, & oven safe labels online (cant remember the brand...); anyone used these? Are they worth...
  21. NotMollyRingwald
    I heart Stash peppermint tea! The Stash website states it's gluten free, but you might double check, never can be too careful!
  22. NotMollyRingwald
    'Morning, Apologies if this is a duplicate post...I've looked around a bit and didn't really find what I was looking for...but that could be operator errror (I'm capt of the space cadet squad today). I was wondering if you gluten free veterans have some words of wisdom or maybe have favorite websites/resources for helping family and friends understand...
  23. NotMollyRingwald
    Great timing, Babsv, I was planning to cook my chicken tomorrow and was just starting to wonder, "how should I do this?" Sounds like you have a tried & true system. Sounds perfect to me.
  24. NotMollyRingwald
    Oh and to answer your original question (lol), the questions I have on my list (my EGD is Thurs): - how many biopsy samples will be taken (I plan to push for at least 4, if not 6) - what other samples (mucosal or otherwise) are planned in order to rule out infection/parasite, etc - what are the possible complications of the procedure? - expected recovery...
  25. NotMollyRingwald
    Just remember, you already know gluten is an issue for you, so I would go prepared with a list of the symptoms you've experienced since adding gluten back in. Even if Celiac is ruled out, the GI should consider NCGI, and push for that diagnosis so you can have it documented for college. Hugs honey, good luck!
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