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PCB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by PCB

  1. PCB
    After this post I will leave the subject of night blindness to others. Thanks to those who have offered suggestions and to Scott Adams for creating the forum. It is a fine website and I also like the review articles by Jefferson Adams. I have suffered from patchy night blindness in the summer only for the last 8 years. The winter reprieve is now less complete...
  2. PCB
    On 4th June I posted on the ehealth vision forum under the title seasonal night vision scotomas, but there were no replies. I have just had my eyes tested by an optometrist. Acuity is 20/25. She did field testing and Topcon tomography and did not find anything alarming for my age. However in dim lighting against a light background I can sometimes see a round...
  3. PCB
    A very good suggestion GFinDC. I have thought for some time that I should have made the title of the topic night vision celiac because it may have nothing to do with celiac disease even if it started at the same time. Key words are so important. I will search first and may post on one of these sites later. I have now searched quite extensively and have...
  4. PCB
    Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
  5. PCB
    Scotomas returned for the 7th year on the 24th February despite liver pâté and have varied since with 3 brief gaps. I have always had migraine, latterly occurring more than once a month, usually of basilar or retinal type with aura (but no headache) lasting less than 5 minutes. A recent bout looked like a TIA and led to a CT scan which revealed clear major v...
  6. PCB
    Thanks for your ideas GFinDC. My mother had rickets as a child and thyrotoxicosis after pregnancy treated surgically. Her mother and both her mother's sibs died of diabetes. My BP is around 115/75, wt about 63kg for years, blood glucose 6.6mmol/l pp (n<7.8) last year. I have the genetic basis for celiac - eg HLA-DQA1 Rs2187668 TT (risk allele for celiac...
  7. PCB
    The scotomas this year disappeared finally on the 18th October. Are they caused by toxins, the immune system or malabsorption? From the 7th Sept – 14th Oct I avoided all tomato products. On the 22nd September I had a CLA-1 blood screen for IgE allergies by the Biolab Medical Unit, London. Inhalants were all negative including birch and pellitory (a relative o...
  8. PCB
    Cristiana - you are another celiac with night vision problems when driving. Have you looked at the topic Celiac Night Vision? If there are other celiacs with night vision problems which do not respond to vitamin A puzzling their opticians and eye doctors we might get experts interested enough to investigate why! I am admittedly in my second childhood, but...
  9. PCB
    I have confirmed celiac disease (family history of celiac and autoimmune disease, biopsy, enzymes) and recently had my genome done by 23andme. On websites such as eupedia.com there are lists of genes contributing to disease liability. The HLA-DQA1 Rs 2187668 risk allele T appears to be the strongest indicator (I am TT) with an odds ratio of 6, but other...
  10. PCB
    Here is a description of the scotomas to help others with celiac night vision problems compare their symptoms. The scotomas are usually at a maximum about this season. In the night against a dim ceiling they are round dark areas affecting central vision about 20 degrees across. At first light they seem to get slightly smaller and more triangular in shape...
  11. PCB
    In the UK we celiacs are grateful to non-celiac gluten avoiders. Since last year restaurants have to list allergens and many have gluten-free menus, which suggests that more than 1 percent of the population is avoiding gluten. The U.S. Is usually ahead in these things and I guess your labelling of food products is as good as ours with gluten-free prominent...
  12. PCB
    Next update! Scotomas disappeared as noted in September and returned on the 2nd March 2015. They disappeared again twice but have been present continuously since April. This is now the 6th year. They are more persistent with fewer gaps each year but have always vanished for five months in the winter. I usually eat baked tomatoes but ate them raw a few times...
  13. PCB
    After doing the IgE test I was sent September nettle pollen data for Worcester (which included all members of the Urticaceae). Levels decreased to low about the 11th and almost disappeared by the end of the month. The scotomas could therefore be a reaction to pollen but I will perhaps try to do an IgE test for tomato allergy next year if the scotomas return...
  14. PCB
    As people still seem to be reading this thread here is an update. After eight bouts of the scotomas through the summer (they were continuous through June - August) they disappeared at the end of September. We live in southern England and the National Pollen and Aerobiology Research Unit at the University of Worcester kindly sent me pollen counts for near...
  15. PCB
    Colleen: see posting 5 July 2013. The ophthalmologist wrote ' to be honest I could not find any pathology to account for this scotoma . . . ' NatureChick: sun exposure and optometrist see posting 1 Aug 2013 The only reason I am posting all this is because this symptom so far appears to be unique. In case it has a celiac basis this seems to be one place...
  16. PCB
    Hello anyone still interested in this subject! The scotomas disappeared on the 24th September last year and did not reappear until the 26th March this year. Since then there have been 5 episodes with clear gaps. The latest has been going on since the 1st June. The scotomas peak each year in June and July and the present peak has varied considerably. The...
  17. PCB
    Suzanne - Rachelle is right! It is worth looking at family history for autoimmune clues, particularly if like me and people posting here you have no obvious celiac symptoms. My brother died of lymphoma due to celiac which was diagnosed after 14 years of symptoms - anemia + abdominal. Our mother suffered from rickets as a child and thyrotoxicosis. She always...
  18. PCB
    We are just coming to the end of our greenhouse tomatoes. Large portions of them (baked) have not produced any more scotomas. Loren Cordain Ph.D (Paleo Diet) suggests that a glycoalkaloid present particularly in small green tomatoes can make the gut leaky. Cooked green tomatoes, or ripe tomatoes contain much less of it. He thinks that similar chemicals in...
  19. PCB
    No further scotomas despite excess baked tomatoes. No cataracts. I am still hoping to read a more convincing explanation of why plants of the tomato family are called nightshades. It will be interesting to hear some more from contributors who have had poor night vision when driving what they think has caused improvement.
  20. PCB
    Sixth instalment! Our greenhouse is full of tomatoes of different varieties so the next experiment lasting 4 days was to eat plenty each day baked at 150ºC for about 45 minutes. No scotomas. On 23rd August raw tomatoes were substituted and that night on going to bed and turning out the light I had unexpected and most amazing scotomas which looked like a ...
  21. PCB
    Fifth instalment! An encouraging progress report. After eliminating potatoes, tomatoes and peppers there were no scotomas. Potatoes were then started again: still no scotomas. However on adding tomatoes the scotoma in the left eye came back after two days. Eliminating tomatoes again for three days has made it disappear, so it lasted a week altogether. I now...
  22. PCB
    4th instalment!. The 19th bout of these summer night vision scotomas has just cleared after 3 weeks. There is more light (and UV) in summer but I was given some Ray-Ban sunglasses 2 years ago (Ray-Ban say they are 100% UV proof) and since then the scotomas have been more frequent and longer-lasting. I have been keeping a food diary in case they are due to...
  23. PCB
    notme! is understandably pleased to be able to drive at night again. As vitamin A deficiency is worldwide and easily treated, I presume those multivitamins include A. One trouble is that multivitamins are treated as foods and not medicines so there is no independent testing of whether they contain what they say they do, and how well they are absorbed. Since...
  24. PCB
    Following my last post I continued multivitamins and cod liver oil 1 capsule daily and vision remained normal for a week. The night vision loss (scotoma) then returned mainly in the L eye, lasted a week, disappeared and returned for another week. In the second week it started suddenly and gradually decreased. It has now gone again, at least for the moment...
  25. PCB
    No reply from University of Chicago Celiac Center. There is a lot of information on the web but I have still not been able find out what happens to gluten sensitivity over time on a strict gluten free diet. Somebody must have done some experiments on this because if sensitivity increases it would help in understanding new symptoms which appear after dieting...
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