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MominSoCal

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Everything posted by MominSoCal

  1. MominSoCal
    I would love to see healthier, gluten-free options, esp when dining out for KIDS. Often it is a choice of chicken tenders, grilled cheese, mac n chz or a PLAIN chicken breast. Can't eat the first 3 and the last one makes it seem like more of a punishment. Also, Canyon Bakehouse has the best gluten-free bread...hands down
  2. MominSoCal
    My daughter diagnosed a year ago with positive TTg and also had low vit D and iron. Went gluten-free, and levels rose nicely at 6 months. Retested this week and she is very low again. My question is this...does this mean she is somehow getting gluten again? OR Are iron/vit D levels something you struggle with even after going gluten-free?
  3. MominSoCal
    Just to add - my DD is 7yo and tested weak positive for Celiac and had a negative scope. She has suffered from constipation since birth, which worsened a few years ago. We did every intervention, diet change they asked and she still suffered. Finally - we got to a GI doc and he recommended gluten-free, despite the negative scan. She had been on daily...
  4. MominSoCal
    As far as I understand, he cannot be diagnosed with Celiac without the biopsy. (at least my doc told me that) But I wanted to add...my son is HF autism and had horrible stomach problems as a baby and young boy. We were gluten-free and casein free for 3 years and it was a remarkable improvemnt. Around kindy, we challenged him and did not see any more bad...
  5. MominSoCal
    Just to add...my 7yo DD had a weak positive TTg IgA this Sept, followed by neg biopsy results. This was very disappointing for me, because I felt a diagnosis would be critical to keeping her gluten-free in the future and to have relatives and school take it seriously. We are on week #2 of gluten-free and she is doing AMAZING. Her improvements are without...
  6. MominSoCal
    As I am new... I could be wrong. But any celiac work up would require him to be on gluten for quite a few weeks for accurate testing
  7. MominSoCal
    We are newbies, with my 7yo DD being blood test positive and biopsy negative. She has been gluten-free for about a week and we have really started to notice some great changes. Constipation is clearing up, gas and gas pains are way down and her bloated belly is starting to look normal. She also has almost no more complaints of pain, esp with eating...
  8. MominSoCal
    Well - i wasn't happy when doc told me DD did not test positive on biopsy after positive blood test. I asked for copy of path report, and I am really questioning the fact he took only 4 samples and he didn't give me all the results! 2 from Duodenum - which were negative. One from bulb area One from stomach, showing mild chronic gastritis (which he did...
  9. MominSoCal
    My 7yo had her endoscopy yesterday and the doc mentioned seeing "possible some mild blunting of the duodenum", but her biopsies came back negative today. She had a weak positive TTG-IgA, low iron and low Vit D. We are still planning on a long trial of gluten-free to see if her symptoms improve...but it is frustrating not having a definitive answer! ...
  10. MominSoCal
    We had her endoscopy today and doc told me to get her on a "good" gluten-free multivitamin (for goodness sakes...what does that even mean?) So if you have any recommendations...That would be great.
  11. MominSoCal
    I see their GFmenu, but just wondering if anyone has tried it?
  12. MominSoCal
    My daughters endoscopy is Wed, and I am wondering if results are same day or if it takes longer? Thanks
  13. MominSoCal
    My 7yo finally got her Vit D levels back...they are in "normal" range, but I want to know if they are in optimal range and/or is ok to have no Vit D2? VITAMIN D, 25-HYDROXY, D3 34 VITAMIN D, 25-HYDROXY, D2 <4 25-HYDROXYVITAMIN D 30 - 100 ng/mL 34 thanks!
  14. MominSoCal
    My daughter is having her celiac blood work re-run, after a weak positive test. They are running additional labs...early results show elevated ESR and albumin. I understand the ESR result... But everything I read about testing says her albumin should be low, not high? Does anyone have feedback or knowledge on why this might be high?
  15. MominSoCal
    I appreciate the feedback. I am feeling that education is the best approach, hence why I am looking for published material. We share a home, they love their grandkids. If you have any other specific articles, they would be appreciated.
  16. MominSoCal
    Hi all- My 7 yo daughter tested (+) and is awaiting her endoscopy for confirmation. We (5 of us) share a home with my parents. I have discussed with my mom about the changes that we will need to take place to keep the home gluten-free. This news is not popular and she is worried about my dad, since he is older and "likes what he likes" So if anyone...
  17. MominSoCal
    I used to make it all the time for my son when he was in kindy, and it was awesome. Eventually, the teacher asked that I make more, since mine would LAST so much longer and stay softer than hers. Until then, I put them in quart freezer bags and then in a clear pop top box, like a shoebox size. We did not have contaimination issues with other kids, but...
  18. MominSoCal
    My 7yo has had chronic constipation, almost since birth. She also suffers from gas, distended abdomen and daily pain. Her doctor two years ago just said she was slow motility and to continue daily miralax. Finally a doc at a pneumonia follow up ran a celiac panel and her tTg_IgA came back weak positive at 4 (‹4 no antibody, 4-10 weak positive, >10 ...
  19. MominSoCal
    thank you so much for updating. My daughter has tested positive on her blood and we see the GI doctor next week and now I know what other questions I should be asking.
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