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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED How Do You?
tarnalberry replied to emmybeans's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
1. Quickly ridding the body of gluten - nope, not really. In the case of a celiac, it's not so much that you still have gluten in your system as the cascade of chemical reactions that is your immune system is still running. You can do supportive things to help your body - eating easy to digest food, making sure to get plenty of rest, making sure to take... -
ARCHIVED Tests For Celiac
tarnalberry replied to Darby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, being gluten-free for two months definitely increases the risk that you get a false negative. -
Bourbourygmi is not unique to celiac, but it is indeed one of the symptoms.
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ARCHIVED Tests For Celiac
tarnalberry replied to Darby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah... basically meaning you can get a false negative out of it, but you don't get a false positive out of it. Based on that, I'd say you should avoid gluten, but further testing - since he's already drawn blood - may be useful for you. -
ARCHIVED How Do You Deal With Friends?
tarnalberry replied to a topic in Introduce Yourself / Share Stuff
I'm not a teenager anymore, but the situation still comes up. The first thing I can tell you is that it's harder to do (though you still have to say no) for the first few months, until you get out of the habit of saying yes. Second, it's not easy for everyone. Some of the people on the board have noted they still have problems with it, no matter their... -
ARCHIVED Is There A Chance I Have Celiac's?
tarnalberry replied to Comet's topic in Introduce Yourself / Share Stuff
It could be, but none of us can tell you for sure. You might want to consider asking for a full celiac panel to be done on a blood sample as a place to start. -
I'm a fan of the many separate categories myself, and you can save some time when looking at new posts by selecting "view new posts" in the upper right section of the window on the same bar that says who you're logged in as. It'll show only threads that have new posts since the last time you visited. (You do need to be logged in for this.)
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ARCHIVED The Medical Community Are Clueless
tarnalberry replied to anewsprue's topic in Coping with Celiac Disease
Yep, most antibiotics run that risk - I get a bit of loose stools, but nothing too bad. Biaxin, on the other hand, I believe is also gluten-free but won't let me keep anything in my stomach. It's awful for me. -
ARCHIVED Book On Gulten
tarnalberry replied to 11111's topic in Parents, Friends and Loved Ones of Celiacs
debberdee, no worries. I would even go so far as to make the argument that if you did find something useful/helpful out of it, then it's a good thing you got it. :-) -
No, but I already did a lot of cooking from scratch and had done a lot of research on nutrition and food. If you're not up to speed on those subjects, it may be worth your while, but if you are, it may not.
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ARCHIVED New And Need To Learn More
tarnalberry replied to marycubs's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I haven't gotten signficantly more sensitive, but some. (Then again, if you walk around with your nose stuffy all day, do you notice it getting a little more stuff? Not nearly so much as if you nose clears, and then gets a little stuff.) I was dx'ed at 24, and may have had it for two years or so prior to that, but I don't believe I had it in childhood... -
ARCHIVED Gluten-free Coffee?
tarnalberry replied to amyfeistel's topic in Gluten-Free Foods, Products, Shopping & Medications
Amy, have you investigated if you have a problem with dairy? If it's a dairy protein issue, yogurt would be just as bad as any other type of dairy. -
bourbourygmi - the noisy sounds your intestines can make - is a symptom of celiac disease. if I get glutened, it happens within 4-6 hours. ;-)
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ARCHIVED Tests For Celiac
tarnalberry replied to Darby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since celiac disease is DEFINED as intestinal damage that occurs upon the consumption of gluten, many doctors will only take a biopsy results for a diagnosis - they want direct evidence of the damage which is celiac disease. The blood tests are markers which are generally only present if such damage is occuring, and hence are an indirect measure of whether... -
ARCHIVED Embarrassed But Need Help
tarnalberry replied to 12bGF's topic in Coping with Celiac Disease
I found that balancing my calicum and magnesium intake was important for that - not to mention plenty of water and fruits/veggies. But calcium can be constipating, magnesium ... goes the other way. (I find magnesium to be better for dealing with that sort of thing than, say, Senekot, which my doctor recommended at one point when my hemmhorids were worse... -
ARCHIVED How Quckly Can Reactions Occur Post-ingest
tarnalberry replied to a topic in Coping with Celiac Disease
I don't get intestinal symptoms that quickly, but I'm not very symptomatic. I feel the effects (disorientation/dizziness) within 15-30 minutes, bourbourygmi (intestinal noises) within about 4-6 hours, and stool changes (not terribly severe) within 12 hours. -
ARCHIVED The Medical Community Are Clueless
tarnalberry replied to anewsprue's topic in Coping with Celiac Disease
Yep, Z-packs are gluten-free. (the starch isn't wheat whenever I've checked). I've got to take that stuff... not infrequently. ;-) (stupid respiratory infections... grumble.) -
Many of the gluten-free replacement items use flours that have a high glycemic index, so they spike your blood sugar, causing a large insulin rush, which then leads to low blood sugar after it's all swept up into your cells. (Note that *technically* hypoglycemia merely refers to the state of having low blood sugar. It could be caused by a diabetic taking...
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There's a restaurant in Monterey... on a pier across from Cannery Row... Crap... can't remember the name... At the front of the pier, closest to the road, there's a Tony Roma's... If I think of the name, I'll post it, but if you see a pier near a Lamborgini store, not too far off the freeway, with a Tony Roma's out at the closest spot to land, the restaurant...
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ARCHIVED Preparing For The Gf Future!
tarnalberry replied to Emme999's topic in Gluten-Free Recipes & Cooking Tips
For the most part, I stick with naturally Gluten-free Casein-free stuff. So listing my favorites there would look like: salmon, tri tip, chicken breast, mango, carrots, strawberries, peaches, cherries, bell pepper, sugar peas, baby broccoli, brown rice, peanut butter... Not real helpful since you already know about fresh foods! Here are a couple of things... -
ARCHIVED Book On Gulten
tarnalberry replied to 11111's topic in Parents, Friends and Loved Ones of Celiacs
debberdee, you'll want to be aware that Lowell apparently has some non-trivial misinformation in the book. some of the things she said are not gluten-free are, and it's NOT safe to pick the insides out of a regular sandwhich and eat them - you'll get contaminated. -
ARCHIVED Do You Call Companies To Ask About Ingredients?
tarnalberry replied to mytummyhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
Not a pain the butt at all. Some places need a little more guidance than others when asking, some know what you're talking about right away. I think I've called about 5 places and emailed another 10 or so. I've never had anyone get annoyed, but one or two who just couldn't help because they didn't have the information. -
ARCHIVED Cookie Crust For Pies And Cakes
tarnalberry replied to LLH's topic in Gluten-Free Recipes & Cooking Tips
I make banana bread or pumpkin bread, then dry it in the oven to make crumbs when I want to make a crumb crust for my pies. -
ARCHIVED Gf Cookbooks
tarnalberry replied to discouragedmomof5's topic in Gluten-Free Recipes & Cooking Tips
I love amaranth flour! It's one of my favorites. Perfect for pancakes. I don't use oats, but haven't yet made a recipe that calls for them. I also use quinoa, sorgum, millet, teff, buckwheat, and soy flours, besides the usual rice, potato, and tapioca flours. -
ARCHIVED Gluten Free Kitchen
tarnalberry replied to Kenster61's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Fascinating... my friends who had restaurants weren't allowed to have automatic dishwashers. Interesting difference. Of course, there may have been a prewashing area I forget about, but I remember the other one. Or maybe my memory is all twisted up... Either way, in the home... I'm unfamiliar with that type of dishwasher that you note - I'd recommend...