Jump to content

cmc811

Advanced Members
  • Posts

    81
  • Joined

  • Last visited

Profile Information

  • Gender
    Male

Recent Profile Visitors

2,528 profile views
  • PersianCeliac

    PersianCeliac

  • JJav123412

    JJav123412

cmc811's Achievements

  1. DGP in and negative. DGP-IgA Result 8 Negative <20 DGP-IgG Result 4 Negative <20 Hmmm,,,,,now not sure what to do.
  2. So DGP result in and negative. DGP-IgA - Result 8 - Negative is <20 DGP-IgG - Result 4 - Negative is <20 Earlier in the year he had a negative tTg-IgA and EMA, so at this time it seems unlikely we're dealing with Celiac Disease. He did have an elevated ESR and he is severely constipated.....not sure what to do next. Doctors just seem to...
  3. I was wondering about anemia too...his hemocrit and hemoglobin are normal but his red blood cell count is low. Basically I've been told that isn't significant, but my blood work looked like that too and over time my other number fells into the anemia range. Was diagnosed with Celiac, went gluten free and for the first time my numbers are all normal after...
  4. My 6 yr old is still a mystery, but today we found out that his ESR came back high. Normal range is <10 and his was 38. Dr said they typically don't get too excited about it unless it's over 60 but it could be a piece to the puzzle. So far his Celiac tests have revealed nothing but we're waiting on the DGP still. tTg-IgA = <1 (range is <...
  5. For Vitamin D3 I like Rainbow Light Berry D-Licious Gummies. They are 2500 IUs and are free of gluten, soy and dairy.
  6. i've always had trouble with vitamins but I can take 1 kind without issue: Garden of Law Raw One for Women. The vitamins are from actual food sources, rather than synthetic like Centrum. The same brand also makes digestive enzymes and probiotics, which would be good for you to take as well.
  7. Yeah, ideally I want a diagnosis for him, but I understand that he may have to suffer for years before a test finally comes up positive and I'm just not willing to let that happen. We'll see how the DGP tests turn out and go from there I guess!
  8. Thanks! Follow up question: if this test is negative, along with the tTg-IgA and EMA he has already had done (IgA was sufficient) would you do the biopsy anyway? GI said that would be the next step but I just don't know if it is worth doing. I know if I just trial a gluten-free diet and he's better I'll never really have a diagnosis for him but at the...
  9. He eats breakfast at daycare and almost everyday it is something with gluten in it (pancakes, toast, cereal, etc). I also send prepackaged gluten containing items like crackers a few times a week in his lunch. On the weekends he may not have any gluten at all though if we are home all weekend. I say small amounts mostly to be conservative because I don...
  10. Just want to clarify that he has NOT been gluten free at any point. I've seen the everyday consumption for 8 weeks recommendation but that was for someone who was completely gluten-free. Since my son has had gluten on an almost daily basis, just in small amounts, would we need to wait that long? I've been making sure he a good serving of gluten every day...
  11. We're going through the same thing with our 6 yr old. Constant stomach pain but negative tests so far. He didn't have the DGP ordered initially so we are doing that in the next few days. What tests were included in the panel? Even if your little one isn't IGA deficient it is wise to get the IgG tests as well because some people only show positive on those...
  12. I have FINALLY found a doctor that was willing to order this test for my 6 yr old son after the TTG-IgA and EMA were negative. I have Celiac and he has symptoms so this is a test I've been trying to get ordered for over a year.... Anyway, since my diagnosis in March we are a gluten free household. My 6 yr old does get a bit of gluten everyday outside...
  13. WOW, that's expensive. Can you have it done at an ambulatory surgery center instead of a hospital? My fees were $1825.75 which included everything - facility fee, physician fee and pathology fee.
  14. Yes, they do have a Child Life department. I called today to get more details and they said we could even come in the day before so he could see everything in advance.
  15. I had an appt with a dermatologist for today but his rash is almost gone now, so I canceled it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.