YankeeDB
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Latest Celiac Disease News & Research:
Everything posted by YankeeDB
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ARCHIVED Does Anyone Feel Better?
YankeeDB replied to SteveW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiacfreeman, I wonder if the extreme thirst might be associated with a blood sugar problem? That could explain the weight gain. I know celiac disease is linked to diabetes. Might be worth looking into. Good luck! Shar4, THANK YOU for your story! It made my day. For myself, I've been gluten-free (more or less) since the end of January with... -
I wonder if it would be helpful for those whose family members are resistant to acknowledging the seriousness and requirements of the disease to draft a letter for your own doctor to sign that gives a concise description of the illness. You can explain to your doctor that you need it for restaurants and other situations to convey the seriousness of the problem...
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ARCHIVED Gluten-free?
YankeeDB replied to YankeeDB's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm going by the list on this site that includes "rice malt (contains barley or koji)". https://www.celiac.com/cgi-bin/webc.cgi/st_...-33104374558.f1 -
ARCHIVED Tyramines In Food
YankeeDB posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe that something besides gluten is causing my continuing problems with fatigue and headaches. My bowel symptoms are extremely improved and I think I can detect a gluten accident by relapses in that department. But, I'm still bothered by these other symptoms about half the time and suspect other food intolerances. Perhaps a "leaky gut" brought... -
ARCHIVED Does Anyone Feel Better?
YankeeDB replied to SteveW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
SteveW, I'm glad you posted this as I feel the same way. I've been gluten-free for 6 weeks or so and while I have good days, I'm still not feeling as energetic as I believe I should. I'm currently combing through my diet to see (again) what else I might be reacting to (eggs? corn? yeast? milk products are already out) I've been keeping a food diary... -
ARCHIVED Newbee And A Runner
YankeeDB replied to nthei's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
nthei, You have probably already come across this advice, but be sure NOT to go gluten-free prior to your biopsy as that may influence the results. Many of the gluten-free grocery sites (some advertise here and you can do a search) sell energy bars that are good. My favorite is the Bumble bars. Good luck and welcome! -
ARCHIVED Short Of Breath?
YankeeDB replied to Interval's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My understanding is that the stool tests done at Enterolab are more accurate than the blood tests as they measure antibodies in the intestinal tract before they become elevated in the blood stream. They also do a family discount for multiple tests. Definitely worth looking into. -
ARCHIVED Grains?
YankeeDB replied to SteveW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sarah, what an interesting and informative post! Thank you! Wow, you certainly do your homework. I will definitely look into the blood typing approach to diet choices. Have you heard anything about oligosaccharides and their role in helping lectin intolerant (I guess that would be specific lectin intolerance if I understand your post correctly) people... -
ARCHIVED Gluten-free?
YankeeDB posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I bought some very tasty cashew brittle for a snack treat and despite its label of "gluten-free", it has rice malt in it. Hmmmmm! I know I've been reacting to something--could this be it? Got to ALWAYS read those labels. Whole foods are looking better and better..... -
ARCHIVED Grains?
YankeeDB replied to SteveW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might have a sensitivity to lectins, another potentially problematic protein found in most grains. Do a search on this and maybe on the "paleolithic diet" or the "caveman diet" which it sounds like you're already starting to follow. Info on "inflammation" also makes reference to lectins. I'm starting to wonder about myself along these lines... -
On the other hand, if you DON'T get biopsied you won't officially have "celiac disease" and therefore be a candidate for refusal of life insurance--just one more twist in the maze we face....
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I decided to subscribe to Clan Thompson's pocket pc database of gluten-free/non-gluten-free (and vegetarian/non-veg) foods (he also has one for drugs). It has 3,000+ food items in it. So far it's been fairly useful, although there are thousands of foods not included. You can get a trial version for free to see how you like it. I think he has a PC-based...
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I was never a super-athlete, but up until a few years ago, I danced, did aerobics, and strength-trained on a regular basis. I became too ill to exercise a few years ago but since diagnosis and going gluten-free, I'm optimistic I'll be able to start again. My own plan is to take it really slowly. I believe my body is damaged and malnourished from years...
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ARCHIVED Several Yrs Of Illness
YankeeDB replied to tjb1226's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Debmidge, depression is SOOOO treatable (I work in depression research) with medications and therapy and these may be worth exploring in your husband's case. There is a good chance the depression will remit when he has been gluten free for enough time, but meanwhile, he can feel much, much better with treatments that have been proven to help. Of course... -
Just wanted to add a quick note that coconut oil (contains medium chain fatty acids) can be good for energy for those who are having trouble with fat absorption as it is absorbed through a different mechanism than other fats. This may be especially useful for those with the symptom of steatorrhea (frequent floating, malodorous, large, light colored stools...
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ARCHIVED Not Getting Better At All, Help?
YankeeDB replied to rdawn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It might be good to consult a professional dietitian, even if you have to talk to him/her by phone. Your situation sounds fairly complicated and knowledgable guidance from specialists would be well worth it. Perhaps your insurance would cover it--doesn't hurt to ask. Best wishes! -
Oh thank goodness! I thought I was the only one who sees celiac "everywhere!" I think most people don't want to give up bread, pizza, cake, etc. (who can blame them?) and a surprising number of people simply don't want to know bad news. What amazed me the most was my brother's GI doctor. My brother developed colitis in his teens and went on to have...
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This topic terrifies me. My mother spent her last years suffering from rheumatoid arthritis and peripheral neuropathy (and bowel problems and dementia) and I strongly suspect she was an undiagnosed celiac. She was unable to walk the last five or so years of her life. In the last few years as my fatigue has gotten worse and worse, I've developed painful...
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I used to donate blood regularly and often barely squeaked by on the iron tests (although I was not officially anemic). However, I usually felt weak afterwards. I think anyone who is feeling tired due to celiac disease should NOT donate. They are so desperate for blood these days that their criteria for accepting people may not be as stringent as it...
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Sarah, Hi! I'm VERY interested in how your experience goes, so please post again. As I understand this, one can do total fasts (water only) for one day or up to about two weeks or so and these are the true "fasts". Then there are "juice fasts" where you have only juice and there are other programs that incorporate specialized nutritional substances...
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I'm looking into this and was wondering if others here have experience or knowledge on this topic. It seems commonsensical that leaving the intestines alone to heal themselves for a while would be beneficial. I know this has to be done carefully with attention to health and motivation (i.e., not as a way to lose weight quickly). I just did a quick...
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I just finished the book "Dangerous Grains" by Hoggan and Braly. I thought it was very well-written, totally fascinating and covered topics I hadn't encountered in other books including the "leaky gut" concept. (I also got a lot out of the chapter on various tests.) I learned that a "leaky gut" caused by gluten intolerance can allow substances to pass...
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ARCHIVED Digestive Enzymes?
YankeeDB replied to gf4life's topic in Gluten-Free Foods, Products, Shopping & Medications
My understanding is that a condition called "pancreatic insufficiency" usually underlies the need to take digestive enzymes. Perhaps this is secondary to celiac disease or maybe it exists on its own. In any case, perhaps there are tests for it that would help determine which enzymes are needed and that would help tailor the treatment for specific cases... -
ARCHIVED Accidental Gluten Exposure
YankeeDB posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have pet birds and wonder if handling their food (contains wheat) might cause a reaction or if I just wash my hands carefully, that this would not be a problem. Along these lines, they create a certain amount of dust in the air as they crunch up seeds and their nutritional pellets--what about this? I imagine dog food and other pet foods that come... -
What happens if your significant other is a gluten-eater and you kiss that person? Seriously! Could this be another source of gluten exposure? Sigh--is there no end to this???????