Lirren

Yar, good point on the probiotics. I had come to that conclusion about dairy but wasn't thinking about the probiotic - or else was hoping the dose would not be big enough to matter. Maybe that's why I'm hurting so much today.

Hi all, I am so sorry to be posting so much in this forum, but I feel like I'm close to losing my mind for lack of information, and it is SO reassuring to be able to hear from other celiacs. (Please don't cut me off, mods. I've hit the three-week gluten free mark, and seen some reduction in my abdominal pain, but one thing that hasn't gotten better...

Thanks! I am so sorry for your back fracture but glad to hear you are back in action - congrats on the new bike! Grrr, patience. I'm short on it. I know it's good advice, though.

Waugh! I hope so. I am so depressed, anxious, and frustrated. A month before the gastroenteritis set me off, I could run five miles. Today I shambled a quarter-mile on the treadmill before I had to stop - not from lack of energy, but because the impact of every step jarred my guts and caused too much pain to bear! (Besides, I typically take that kind of pain...

I'm finding myself still very anxious and uncertain that my GI doctor has done a good job thoroughly checking out/testing alternatives. Mostly, I want a doctor I can actually discuss my concerns with - and my current one doesn't communicate. Combined with his staff's lack of follow-through (not refilling prescriptions, even when the pharmacy is following...

Drat. Thanks, bartfull! I just checked the ingredients in my cats' food and the third ingredient is "cracked pearled barley." As much of a hassle as it's going to be, I'm going to have to transition them to a gluten-free cat food, because they are in my face all the time. One of them practically sleeps on my head.

I've encountered some of you on the pre-diagnosis board, but I think it's time to tentatively start reading in some other areas. Based on my biopsy (lymphocytes in s.i. and damage to villi - not severe) and gene tests indicating I'm homozygous DQ2, my doctor is confident that I have celiac, despite a negative blood test. All of this started after a...

I understand this entirely, tallypop! My doctor's first "diagnosis" for my abdominal pain was IBS, and they would not see or treat me again for a month and a half of agony. Then they did a biopsy and found lymphocytes in my small intestinal tissue, which is why I'm currently being tested for celiac. The endoscopy/biopsy would not have happened if I hadn't...

Thanks for the clarification. It makes sense that inflammation could be indicative of damage, even if damaged villi aren't seen - especially since they can really only biopsy a tiny portion of the small intestine. After my procedure the doctor initially said everything looked normal, and it wasn't until the biopsies came back that they called to tell me my...

Thanks for the responses! It's so great to have insight from those with more experience in the matter. This forum has been a godsend in the short time since I've found it. It sounds like everyone's experience is different, but that it's not uncommon for people diagnosed with celiac to say "a-ha, that's why I've had these problems for years and years!...

I know this is a no-no! It wasn't something I did deliberately. I followed my doctor's instructions and kept eating gluten until my blood was drawn, and then stopped eating gluten to see if it improved my symptoms. However, the local lab messed up the labels on my vials, so the receiving lab couldn't use them. I was nearly a week into eating completely...

Very interesting list! Thanks for sharing. I have psoriasis, dry skin, brittle curvy ridged nails. I'm going in to do blood tests for celiac tomorrow. Of course, on a list that extensive, I suppose lots of people could find a few symptoms that match.

After two months of adominal/stomach pain and increased lack of appetite, nausea, anxiety, panic attacks, I had a colonoscopy/upper endoscopy last week with biopsies. They came back showing inflammation of both upper and lower GI. I'm going in tomorrow for blood tests for Crohn's, IBD, colitis, celiac... I am hoping for celiac at this point honestly! It...