brileighlevi

We started yesterday. I haven't switched out dishes or anything though for cc. I did buy her new tupperware containers for her breakfast, lunch, and snack at school. We started recording food and notes on sleep or pains and such yesterday. I don't know what else to do.

We got results back today. They said her antibodies are normal and she doesn't have any genetic markers for celiac disease. So no celiac. The nurse seemed happy like this was a good thing but I'm concerned now because I don't know where else to turn.

Yep if her blood work was positive she has celiac. I have the other problem with my daughter... "possibly" positive biopsy, negative on the tests they ran so far. We're waiting on more tests before going gluten-free. I hope she continues to heal and definitely check for cross contamination.

I'm glad things have been improving for your son. My son hasn't had issues with his younger sister and his teacher isn't complaining about his behavior at school but she does have some over the top kids and says he isn't out of sorts compared to some of the others. The testing is part of why I've been stalling on going gluten-free yet. His older sister is...

I am about to go gluten free at our house as we wait for final diagnosis on my oldest daughter. She has no sensory issues really but has celiac signs and that's why we did testing. My son has some sensory type issues though and always has. Nothing major enough for doctor concerns but definitely some small issues like certain clothes, foods/textures, overly...

We're still in the diagnosis process so I don't know yet how this will go with family. My mother and sister are already asking questions and checking on things - mom sending me recipes she found and sis asking for suggestions for a "care package" box of safe stuff to keep at her house. We did get a lactose intolerance diagnosis while waiting on celiac confirmation...

Thanks so much for the helpful info on the TSH! I'll definitely be getting the other tests done. I am hoping to get a full nutritional panel soon as well. I'm not sure how helpful her primary is going to be with this but I may use AnyLabTestNow. They offer all of those tests. I definitlely want to get the thyroid checked now. I wasn't sure how likely it was...

They also ordered a anti endomysial antibody screen. Is this with the other tests they set up going to make for complete testing? I want to make sure that they get everything since this will be the 3rd time doing blood work that my daughter hates. I don't want to put her through it again for one more silly test or something. Thanks so much for the help everyone...

Wow! I'm so sorry mama! That's insane. Definitely get the 504 since they might take that a little more seriously. I'm lucky that my daughter's school isn't as crazy. Although we haven't gotten confirmation yet about the celiac we were told lactose intolerance for sure and we're waiting on more results. The school has been great about being careful of her...

Interesting question. I haven't even thought about that. I'd love to see what ideas everyone has about this. I'm very new to the celiac testing and have no real clue what is going on. It would make more sense if the labs did different tests or just read them at different levels but that seems unlikely. I wonder what difference it does make. My daughter had...

I think the cleaning the house from gluten is probably the worst part of this change. My husband is so upset over the possibility of my oldest having it that he's already been running around looking at what in the house we'd have to replace. I haven't broken it to him yet about the all new kitchenware until we get a final diagnosis. He's not gonna be happy...

Is that high? I thought so but the doctor didn't mention it and I wasn't sure. Of course we're seeing a gastro not and endocrinologist so that may be why she didn't say anything. What should it be? Do you have any ideas or suggestions on what to do to find out more about that? I got the lab orders in today. They've ordered a gliadin Ab and GIA celiac...

Thank you for the support and concern. I'm glad you got an answer for your little girl! I don't know what's going on with mine. The doctor seems to think it isn't celiac but it's the only thing I've come up with so far that could potentially explain all her symptoms. She also has some cold intolerance and weird smelling breath (even after brushing, mouthwash...

Hi! I'm new here. My daughter is currently being tested for celiac disease at my request. She's had bad gastro issues including encopresis at around 3 years old and off/on constipation for years. It's been treated by doctors with Miralax and fiber supplements but it's never made much of a difference and obviously isn't making it disappear. She's also always...