jojoe72
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Latest Celiac Disease News & Research:
Everything posted by jojoe72
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ARCHIVED What To Do?
jojoe72 replied to jojoe72's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the replys. Sorry I didn't write back sooner but I'm not feeling too hot right now. Im so damn drained and irratible right now. Stomach isn't too bad right now but the rest of me feels not so good. I'm going to try to finish this out for the next 3 weeks. Again, thanks for the input. Joe -
I need a little advice from you guys. Here's the deal. Up until last year I never knew anything about Celiac but as I look back on my life I see that I have and had all the symptoms. Anyway, I was horribly sick last year with severe malabsorbtion (food was passing right through me undigested) and other gut problems. Someone mentioned to me it sounded like...
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I can completely relate. Before going gluten-free I would smell like ammonia after I would go to the gym. I never saw a connection to the diet but now that I think about it, I haven't had this happen in about 3 months. Maybe there is a connection. Joe
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I can totally relate with all of you. One book that has been a incredible help to me is "The Mood Cure". It was recommended to me by Thomas3000 (another member on this board). I was going through horrible depression and anxiety over the past year. I read this book (took me 3-4 times of rereading it for the info to "click") and am now following the protocol...
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ARCHIVED Gluten Reaction And Constipation
jojoe72 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not a nice topic but I've got to ask. I've been noticing some fairly odd reactions lately. Over the last week I've been feeling horrible and also been terribly constipated. Two days before this I had gotten some gluten in my diet by mistake. Each passing day I got more constipated and felt worse and worse. Finally after a week of this I took a bunch of laxitives... -
This is one of my concerns with celiac. I'm a Catholic and I definately get reactions when I have gotten communion. I've looked into this and the Catholic Church states that the communion wafer must be wheat with no substitutions. So basically rice or potato, etc... will not be considered the Body of Christ. I stopped taking communion and if they don't have...
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Thanks for your insight. I'm trying to do everything I can to stay gluten-free but I keep making stupid mistakes. Like during Christmas, it's a family tradition to eat these wafers with honey before dinner (an Italian thing I can't remember the name for) and I never associated it with gluten. 2 days later I'm feeling really strange but thankfully it went...
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Quick question for you veterans. I'm still very new to this disease (only about 3 months into it) and was wondering about the mental aspect of this disease. I've been getting these days where my emotions are totally out of whak. One hour I can feel great then the next I feel painfully depressesd and then back to normal again. It scares the hell out of me...
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Hmmmmm...I only had 3 drinks and a small glass of Champaign. The night before we went out and I had 3 Captain and cokes and was totally fine. Im assuming it was cheap cranberry juice because it came out of the gun. This was the most I drank since going gluten-free. Last week during Christmas I had a couple of gin and grapefruit juice (real juice) and also...
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So I've been feeling really good now since going on the gluten-free diet. Went out with a couple of friends for New Years Eve and had a couple of Stoli and cranberry's. The next day I felt like I drank 20 of them. Extreme stomach pains, a splitting headache behind my eye that lasted 14 hrs, brainfog, etc... The only thing I could think that caused it was...
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ARCHIVED Does This Happen To Others, Or Am I Weirdo?
jojoe72 replied to VydorScope's topic in Coping with Celiac Disease
What a great topic. Just reading this today made me feel really good knowing there are other people feeling the same way I do. It really puts things into perspective by thinking of gluten foods as poisin. What seems to be helping me with the cravings is l-glutamine. The other thing that helps when the cravings get really unbearable is having a cigarette.... -
Thanks for the input. Im just starting to add fiber foods into my diet...hopefully that will help. Kevsmom, isn't the depression a major symptom of Celiac? I've only been gluten free for about 4-5 months and I'm very very slowly getting better. The worst part of this whole disease for me is the mental rollercoaster...all the physical pains are almost bareable...
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Is it normal to be extremely hungry all the time? I can eat a really big meal and an hour later I'm totally starved again. It dosen't matter how much I eat...I'm still hungry. I'm an athletic 175lb guy and strictly sticking to the diet (but have slipped up a couple of times). Just can't figure it out. I get really hungry late at night but if I eat before...
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ARCHIVED Results Negative, Family History, And Symptoms
jojoe72 replied to Hall100's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok...you all make it sound so obvious but up until last week I was feeling absolutely on top of the world. I was on the gluten-free diet and it literally was the best I've felt in years. But for some mysterious reason I felt horrible again and couldn't find any source of gluten. Before this happened I was 110% convinced that this was caused by gluten. Is... -
ARCHIVED Results Negative, Family History, And Symptoms
jojoe72 replied to Hall100's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You're right Claire. I wasn't totally convinced by Enterolabs just because it wasn't "mainstream". I'm still new to understanding the disease and if I got "official" diagnosis I could get some local support and guidence. It's totally frustrating because I've been having digestive issues ever since I was a kid and no one ever mentioned Celiac. I've literally... -
ARCHIVED Results Negative, Family History, And Symptoms
jojoe72 replied to Hall100's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm going through the same thing right now. Through EnteroLabs my results were positive for the gene, positive for the antibodies and positive for casein sensitivity. To verify, I went to my doc last week and got the blood panel done. The results were negative. I told the doc I'd been gluten free for almost 5 months with only a slip up here and there but... -
It is rocket science....From what I can gather from this report it seems to mean that it is a gene for Celiac but I was never too good with the scientific stuff. All I can say for sure is it looks like I came to the right place. I really appreciate all of you giving me your input. I can't imagine trying to figure this out on my own when even the docs don...
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Hmmm...funny you should bring up work and relationship. Both blew up for me right before this happened. 60hr weeks and a girlfriend that....well let's just say the relationship wasn't working. It scared the hell out of me thinking I was loosing it due to the stress...but I've always handled stress in a really positive way. I went to a couple of docs and got...
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I really don't want to go back on gluten. I've been an athlete all my life and when I got hit hard with this I could barely get out of bed. Just to clarify, if I am only gluten sensitive and do not have Celiac disease are the symptoms basically the same? Could Gluten sensitivity alone be whats causing my problems? Thanks again Joe
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Thanks for all your input! I'm going to make a appt. with my doc to talk it over. What makes me suspect is ever since I was a kid I had sensitivities to foods. I talked to my parents and my Mom said she had taken me to many doctors when I was a young trying to find out what made me so irratible especially after eating certain foods (which ones I don't know...
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Hi, I was hoping some of you may give me some insight to some test results I got back. I've been suspicious of celiac disease for the past 3 months after reading about the symptoms. I also just got tested through Enterolab and my results were 15 units Fecal Antigliadin Iga (they said that's very high) and 10 units Fecal Antitissue Transglutaminase (on the...
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ARCHIVED New And Confused
jojoe72 replied to jojoe72's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks!! I'll post it there. Joe -
ARCHIVED New And Confused
jojoe72 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I was hoping some of you may give me some insight to some test results I got back. I've been suspicious of celiac disease for the past 3 months after reading about the symptoms. I also just got tested through Enterolab and my results were 15 units Fecal Antigliadin Iga (they said that's very high) and 10 units Fecal Antitissue Transglutaminase (on the...