
rcheltrvel
Advanced Members-
Posts
32 -
Joined
-
Last visited
Recent Profile Visitors
rcheltrvel's Achievements
-
I have 20 years of gluten symptoms, have a history of Fibromylagia and CFS. I went to a new doctor, a nurse practitioner actually. She wasn't satisfied with just a Fibro/CFS diagnosis and decided to test me for Celiac and I tested positive on a TTG-IGA antibody test. My NP diagnosed me with Celiacs without any further testing and told me if I want to live...
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No way, stay on my thread, I love a good argument! I don't have to think about me and my problems for a minute!!!- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
gene test and biopsy both negative and my uncle is a good pathologist in new york city and I had my slides sent to him for a second opinion, he said the GI took enough samples and everything looked fine.- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So far I have elevated TtG antibodies and nothing else wrong. What happens then? What if every test under the sun comes back negative besides TTG-IGA?- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe that is it Lisa, I hope so.- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Who knows, it could be the sulfides effecting me but then why would vodka bother me?- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have read that article and many others. Some people react to stuff that is below the lower limit of gluten, right? I seem to be that one that has reactions to things with gluten in it under 20 parts per million.- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And no to the cracker thing. I brought all my own gluten free crackers and never touched anything else with wheat.- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I happen to live on the eastern end of Long Island, NY, gateway to the Long Island wineries (we have over 70). It's a big thing here and my husband and I go all the time, especially when visitors from out of town come to visit. This past weekend we went and at every winery, I asked about the glue/wheat thing. Most people said they didn't know but a few knowledgable...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, all my tests are in. Positive TTg-IGA, negative biopsy, negative genetic markers. After being gluten free for over 3 weeks now, some of my neck inflammation and pain has subsided, although pain still there, migraines are under control, a little less tire (only a little), a little more energy (not that much) and can think a little clearer (but not that...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Lisa, How do you know from what I wrote that there were only two samples taken from my small intestines? When I was going in for the procedure, right before I went under, I asked the GI if he could please make sure he takes 6-8 samples. He says, don't worry, I take plenty. When I first read the report today, I also thought he only took 2. But then...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Well 10 days later, I got my Upper Endoscopy report, so confused at this point and disappointed. GI said my Villi look fine, I do have Gastritis with bleeding, as I mentioned. He said probably from years of anti inflams. He said because I have the positive iGG-iGA test, symptoms and a negative biopsy, he now wants me to take the genetic blood test ...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Actually, my GI doctor did not confirm Celiacs at all. My regular doctor did based on my 20 year history of symptoms, some deficiencies, raised liver and cholesterol. etc.. plus a positive Celiac blood test. The GI doctor did the endoscopy and said I have a large amount of inflammation and bleeding and he said it could be worsened by possible Celiacs but...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Made it through my endoscopy today, it was a nice sleep! I was relieved yet crying when I woke up. I have been having so much upper stomach pain since this two weeks of torture started, I thought I could have an ulcer. No ulcer but I do have an inflamed stomach (Gastritis) with a lot of bleeding. The Gastro said its from the anti-inflamitories I have been...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with:
-
ARCHIVED Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga
rcheltrvel replied to rcheltrvel's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, tomorrow I get my endoscope. Finally. I can't believe I'm saying this but I pray I am Celiac and can finally put closure to my search for answers. Yes, I feel like dying today, but I got to binge on Girl Scout cookies today! For my last time ever, no matter the outcome. I did discover on this gluten challenge that when I eat gluten at night, I wake...- 71 replies
-
- blood
- constipation
-
(and 7 more)
Tagged with: