Patti J
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All right, everyone.....I may have written that Newbie 101 thread and I stand by all the info in it, but I never wrote a single sentence proclaiming: you can't eat at someone's house.
Because I do not believe that.
This is how you survive Thanksgiving at someone's house:
(1)My friend is making an unstuffed turkey in a silver foil pan I gave her ($2.50)with a new baster. ($1.29)
I insist on new basters because I was "glutened by baster" my first THX (long story about two turkeys--1 stuffed, 1 not and a sister who thought it was ok to baste them both with 1 baster)
and I have "issues" with those damn things.
Anyway, no gluten involved in turkey. I still have NEVER seen a turkey with gluten in it, despite what some people have posted here in the past.
(2) She makes the roasted root veggies, but we slice and dice together while we chatter away drinking champagne.
We cut them on flexible cutting boards I bring her . they can be found in a variety of places, and they look like this:
Open Original Shared Link
(3) I make the gravy with some G F flour I bring using the pan drippings that have never been near any gluten..
(4) I bring G F stuffing made in a crockpot that everyone loves. No gluten.
recipe here: Open Original Shared Link
(5) We make a cheese, pate and veggie platter with Crunchmaster crackers for appetizers. No gluten.
(6) we have a shrimp cocktail platter. No gluten.
(7) she makes her family recipe of cranberry-orange relish. No gluten involved. I have watched her make it a dozen times.
(8) She makes a green bean casserole the day before Thanksgiving. I can't eat it and I do not care anyway. Never liked it. Even if it is passed around the table,
it's not going to miraculously gluten me.
(9) I bring the desserts because I am the one who makes them the best
Flourless chocolate cake with ganache
recipe here:
Open Original Shared Link
and
Pumpkin cheesecake with pecan/gingersnap crust
recipe here
Open Original Shared Link
(10) select a nice wine for dinner and one for dessert.
This does not have to be the end of the world. It just takes common sense, planning and it requires some assistance and understanding from the hostess,. But unless you are going to be cooking (which I normally do), you need to do a bit of advanced prep, but you can dine at someone's home and be perfectly fine. I have done it many times.
I am very sensitive to trace gluten, but I can assure you, I will not be dining outside or in another room. I eat at the table with everyone else. There's no reason celiacs can't enjoy dinner with friends and family. It just takes a few steps of precaution and an understanding hostess.
If you do not feel up to this task just yet, and that is understandable when you are newly diagnosed, then just bring your own dinner and go and enjoy your relatives. If they keep pestering you about why, just say this:
MY DOCTOR SAID I HAVE TO EAT THIS WAY RIGHT NOW SO I CAN GET WELL.
leave it at that. All older relatives will get "MY DOCTOR SAID"
Don't spend your time defending, explaining or being upset. Later, you can mail them all an explanation of celiac and what it takes
to be truly gluten-free and they can read it and learn about it and maybe talk with you about it..
Don't avoid seeing family members --they love you and you love them!-- and you can use their loving support right now.
Cheers, IH
PS>>and now, I am going to make this post its own thread so I do not have to write this mother of a post all over again.
What great information. Thank you so much for this.
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Last year my mom and I each tried a different gluten free dressing recipe, and both of them were horrible. Does anyone have a really good stuffing recipe they will share? I've thought about trying a cornbread based recipe. Have a good one for that? I'm starting early to practice before Thanksgiving.
This will be my first gluten free Thanksgiving as was just diagnosed about 5 months ago. What I have been doing is saving, in the freezer, the ends of my gluten free bread. Last week I took out the pieces and put them in the food processor and made my bread crumbs. I thought I would just follow my regular recipe minus the regular "bread"..and yes, I plan on adding corn bread to it as well.
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Being recently diagnosed is hard and many people tell me their nutritionist was not very helpful when they visted after being diagnosed. I agree, there was so many things they left out and never mentioned,like they say we can eat everything but gluten, NOT TRUE. Like eating gluten free oats, hello- bad suggestion doc! I will be seeing a different nutritionist in sept, needless to say.
I challenge the veterans (or those who have been healing well) to create a meal plan for a newly diagnosed person. Meal planning is overwhelming for me especially planning for an entire week at once.
Meal plan for 1 full day- 3 meals and a snack or 2. Please be specific on cooking methods.
I can relate to your frustration of meal planning. I too suffer from that and find myself eating the same old things! I have lost weight I can't afford over these past almost 2 months. I have seen some interesting dishes suggested in these forums, just some things I can't eat for other health related ideas. Give these folks time, they will offer suggestions to help!
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Hi, my friends birthday is coming up and she is a coeliac. It's a big birthday so I wanted to bake her a cake.
I bake normal cakes all the time (I'm a cake decorator) so need to check a few things before I start as I want to make sure I do everything properly and don't make her ill!
Please let me know if I've missed anything out or if anything is not necessary.
Before I even start I need to buy new equipment, new mixing bowl, cake tin, utensils, decorating tools etc? Or is washing in a dishwasher sufficient?
I need to switch the flour to a gluten free flour which will be stored in a different cupboard to my usual flour.
I'm going to buy a new decorating mat (plastic) for rolling out fondant on and filling/crumbcoating the cake, even though I will obviously clean the surfaces too. I want to play it safe.
Everything will be either metal or plastic, no wooden spoons.
Wash my hands more often than normal after every step and not touch anything I don't need to (ie kitchen chair) with my hands.
The main thing I am worried about is the flour in the air. I bake a lot and when mixing it does go into the air. Will this cause contamination if I make sure no 'normal' cake is baked 24 hours prior?
Check any flavouring/colouring for gluten before using them.
Is there anything I've missed? She never gets to eat cake so I really want to do this for her but I'm scared of making her ill. I want it to be a surprise also which is why I'm asking here rather than asking her, although she has no idea how to make a cake so probably wouldn't be much help anyway!
Thank you in advance for your responses.
I live in FL. I am not sure where you are. But a friend of mine just had a gluten free cake baked for me. The lady that did it lives in Ft Walton Beach FL. She does all kinds of allergy free baking and knows all about it. She is " Different Kinds of Cake...850-496-5308. If you would like to call her, perhaps she can answer your questions.
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My dad had severe anemia and a blood disorder that required periodic blood transfusions for 9 years. My best friend has hemochromatosis and another has thromobocytosis. 2 of those 3 were/are celiacs. Isn't that interesting? yeah, I thought so too.
Many in my family have anemia. (I had B-12, folate and iron deficency--all resolved now off gluten and supplemented)Honestly, unless that had happened, I would never have known anything about blood disorders. But I like to read the science and I am always
fascinated by what celiac does to the body. (well, fascinated may not be the right word....more like astounded?.)
A really cool book that discusses how celiac affects all the body organs and systems is
Recognizing Celiac Disease by Cleo J. Libonati, if you feel like reading something like that.
Thank you for the info on the book. I have it on my order list! I, too, have always had an interest, in research, medicine and thinking outside the box of the natural when possible..if the 2 forces would join, we could really get a lot accomplished in the cures. From my childhood background...medicine and sense were taught to me. Thanks again. P
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I have ITP and celiac disease. I am pretty sure I have had celiac disease since infancy although it was diagnosed in my late 30's. I developed a pretty severe case of ITP when I was 18. The doctors were unable to control it with meds and steroids so I had my spleen removed a few months later. Luckily, that seemed to do the trick and my counts are always over 150K rather than my lows of 2K. LOL
I have read in a few places that ITP is linked to celiac disease. I did a quick google search and found some papers pretty easily:
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
ITP is rare, but slightly less rare among celiacs... I wish my doctors would have mentioned the link to celiac disease and thyroid problems 20 years agao - it could have saved me some grief. ; LOL
Best wishes.
You have had a time with this. I am glad the spleen thing worked for you. I have been reading that it did not have as high a % of success as they had hoped. Can't remember where I read that..have read so much over the last 2 1/2 years..I am glad you are keeping those numbers up. Thank you for the articles...Shared with my doctor yesterday.
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Irishheart is right about the blood disorders being connnected with celiac. I too had a blood related issue that is connected with celiac disease. Prior to my celiac diagnosis, I had a blood clot in my ovarian vein. Very unusual spot to have a blood clot and typically only occurs in post-partum women, post-hysterectomy or in those with a clotting disorder. I had none of the above. Ended up going to Mayo clinic for it since it was so rare. They told me there is only 1 other documented case of someone having this blood clot for no appparent reason and I was number 2. Took another 1.5 years before I was diagnosed with celiac. Looking back and looking a the clinical literature, there is some evidence that says this type of blood clot can be a presenting symptom of celiac disease.
Wow ..you could be in one of the medical journals.
There is so much info coming out almost on a daily basis, I hate to get irritated with docs not keeping up, I believe, if you want a job..you need to do the job. Keeping in mind also, just because a study is performed, does not make it true/valid. It must be redone over and over..this is why it takes us years. Wonder if you anyone would be able to get in touch with #1 and see if that person was Celiac also. would be interesting. Patti -
Thrombocytosis (too many platelets) is more common in celiac patients (according to the Pub med articles I have read) but thrombocytopenia is also connected.
Many hematological conditions are associated with celiac disease.
Take a look at Pub med...many articles on there. Here are just two.
Open Original Shared Link
Open Original Shared Link
Thank you Irish Heart...is never ceases to amaze me at how much we can learn when we read literature from other countries. They are so far advanced perhaps because they do not have the amount of government inclusion. I have, over the years, had the need to research many medical things. This has always been the case, in my experience. Thanks for these..was not familiar with them..and as I said in previous posts...Celiac/ G sensitivity..is all new to me. Have had ITP for 2 1/2 years.
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Thrombocytosis (too many platelets) is more common in celiac patients (according to the Pub med articles I have read) but thrombocytopenia is also connected.
Many hematological conditions are associated with celiac disease.
Take a look at Pub med...many articles on there. Here are just two.
Open Original Shared Link
Open Original Shared Link
What great information you provided. You are really on top of this stuff!!! Thanks.
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I was wondering if anyone else out there has been diagnosed with ITP..low blood platelets and has there been a confirmed correlation between Celiac and ITP. I have a doctor who believes there is and I read an article that briefly suggested it on the PDSA newsletter.
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I'm in the same boat you are - trying desperately to gain weight. My target acc. to dietician is to aim for 3,000 cal per day. I can't get anywhere close to that. I just finished round two of meds for SIBO. I have a few more weeks of the Fodmap diet, and hopefully I can begin to eat more carbs. In the meantime, I eat bacon every day (when I get to target weight I swear I will never eat bacon again!) I make it a point to eat almonds and walnuts every few hours. Also, I buy cans of full fat coconut milk and eat several spoonfuls a day. If you aren't dairy intolerant, you could try Boost. If you are making smoothies, add peanut butter or the coconut milk to them.
Gee, I think I gained 10 lbs just reading your post! I do the Ensure plus..that is a good 350 calories right there..Liberte yogurt is also a high calorie one, if you can tolerate. I had 2 pieces of bacon with my lunch on the sandwich. I think you may have everyone on here doing a bacon run!! Thanks for your input. P
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She taught me so much about adapting my baking skills to G F baking...come stay with me. I'll fatten you up.
She's in upstate NY. I live in FL now. I miss her, but she and I are still close friends. Everyone needs a Sherry Lynn.
She's an angel on Earth, giving the G F community the goodies they need.
what a hoot...I am from NY ( Long Island) ...many years ago came to Fl to attend college. I am still a FL gal
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My friend Sherry Lynn owns a gluten-free bakery and I hold her personally responsible for my weight gain and the expansion of my thighs.
No, we do not have one. I think the closest thing I may find with be at Fresh Market. So I am using the frozen UDI bagels, with are not and and the UDI bread..not fond of the texture of that. There is a Fresh Market about 45 miles from me. Am planning a trip over soon. You must live in a nice sized place to have a gluten-free bakery. That is awesome.
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i am still underweight, and i feel like i am eating almost constantly. i find that i have a better idea of how close i get to my target caloric intake by using the app 'fitness pal' - it has a bar code scanner on it if you have a smartphone, just scan the package - or search for foods - the database is pretty large. i am supposed to be eating 2130 calories per day. i sometimes add some coconut oil or olive oil as karen suggested. but, i also indulge in GELATO lolz. if i get close and i still have some calories left and i don't feel like eating, i have a beer
or two........... 
it *is* a struggle, but i am almost always hungry nowadays. the fitness pal is sort of a game - "hmmmm, it's 4 o'clock and i still have 800 calories left. best get SNACKIN' !!" (the thing yells at me if i eat too much sugar, lolz, i'm sure more people use it for weight *loss*)it's not out of the ordinary for me to eat 6 or 7 times a day, between meals and multiple snacks. keep on eatin'!!!
I had a few days of felling just like that..all I was doing was eating! Keeping track of everything I eat and have been doing that for 2 years. There are a lot of things I can't eat as I have ITP (low blood platelets) and many foods naturally lower ones platelets, plus I can't taste or smell..so eating is more of a pain in the butt than a joy it was many years ago. The beer...I will have to send you mine! Drink 2 or 3 for me. Thanks for your suggestions
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Adding as I think of things -
Make smoothies - add a little protein powder to a bunch of fruit - some fresh & some frozen. a banana & 2 cups of fruit is about 250-300 calories.
Edit to add- can you eat nut butters & seed butters? PB on a cracker or celery or apples is a good high calorie snack. Add nuts to a dish - peanuts or cashews to a stir fry, peanut butter to plain rice noodles, almonds on cooked carrots, nuts on yogurt ( there is coconut yogurt if you don't want dairy).
Again some wonderful ideas! Protein smoothies I do ...when I think about it...but must really watch the time of the day or it can kill meals! Thank you..I do Liberte yogurt that is the highest calorie one out there that I have found. Found that about 2 1/2 years ago. My weight was staying at about 111..then I started having GI problems again and the decline was pretty rapid. In fact, 2 years ago when I got back from Mayo I started visiting a thing I had done very little in my life...fast food places. I knew all the highest calorie things in each one...well those are out now with the gluten-free things. I sure do appreciate your ideas.
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I'm not sure what you mean about additives, spices, etc. spices are gluten-free.
Add a little olive oil to foods - if you eat some veggies - add a little extra olive oil or butter. If you can use milk - use cream or half cream half milk on cereal, in coffee, etc. cream has a LOT of calories.
Use an on- line calorie finder. See what has more calories and choose the one with more calories. Don't fill up on celery ( almost no calories) and eat a potato or avocado instead.
Another strategy is to eat every hour - just a 2 bite snack. Pick something with some calories - like a couple of bites of chicken, nuts or cheese. Still eat your three meals, too. This was recommended by dietitians to get my mom's weight back up
Thank you so much for your input. I will certainly take your advise. Last week, I was eating every 2 hours and felt well but found I was eating all the time. I know some people would not consider that a curse. Re the spices, I was reading that many spices have adds ons in them and this can be a problem for some people. Also read about cross contamination in them. Don't know the truth in this, but I figured it could be a possibility. Thanks again for your advise. Patti
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I have read about many people gaining weight on Celiac diets. I find I am losing too much and I do not have the weight to lose. Can anyone suggest foods that are higher in calorie intake? Often I am dealing with a very full feeling and nauseated sometimes...so this does inhibit the food intake. I am sticking to this Celiac plan to the T, including all the "additive things, spices etc...and have had many days I feel so much better. But I guess I am not getting the calories I need. Thanks for your input. Patti J
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Hello! My names Jen and I'm a new member on celiac.com. I developed a very bad gluten intolerance about 13 months ago. I don't officially have Celiac, but the intolerance I do have is extremely bad. Even a small amount of gluten makes me very sick, tired and lethargic to the point where I can't think or function properly. The systemic inflammation can get very frustrating and make simple everyday tasks feel daunting. Anyway, i've started to learn how to avoid gluten over the last 13 months and feel a bit better but still struggle with it sometimes.
I wanted to share a android app I found on the google play store recently, it's the first gluten-free recipe app I've found in the last 13 months that actually looks decent, is easy to use and has good recipes and links to gluten-free websites including this one, that's how I found this site actually. It's called delicious gluten free recipes, here's the link Open Original Shared Link
I hope my contribution helps and stay positive, I know how hard it can be dealing with this. It's a constant struggle, before I started learning how to cook gluten-free, I basically ate sweet potatoes and chicken because everything else made me feel sick. Thank you so much for your contribution celiac.com, you really do help people cope with a life changing situation.
Hi Jen,
I am new to this also. Very new. Thank you for your words and for the link to the app. I can so relate to the sweet potatoes, it made me laugh! Hope you continue to feel better.
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Interestingly, I saw a commercial for Klondike bars the other day and have been thinking about them since. Also saw a commercial for a local ice cream and burger place that has chocolate lava cake sundaes. Yay summer food advertising! I will write klondike and ask them, now for my own curiosity. But as Karen said, unilever is really good with their labeling and if there isn't an obvious gluten containing ingredient on it, I will eat it.
as a new Celiac can you tell me what are the "obvious gluten containing ingredients"? Or can you refer me to a web site that will be helpful in finding them. This is frustrating!
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Hi,
I have recently been having stomachaches after eating almost everything. I was wondering what was wrong so I went to the doctor today. I gave my doctor a food diary and she seemed to think it may be dairy and she said possibly Celiac but probably not because I had no symptoms after eating plain white rice. According to her white rice has gluten and that Is not true,right. Anyways so she ordered an x ray for me to check for constipation. I thought this was crazy because I have never had trouble "going". Surprisingly the x-Ray showed that there was a little backup. I know that constipation can also be a symptom of celiac so that also leads me to think its celiac. Anyways the doctor also ordered blood tests for celiac among many other things and I was told to stay off dairy until I get my test results. I think my issues with dairy may have to do with the damage celiac has done to my intestines. Anyways I'm jut looking for what you guys think of all this.
Thanks,
Stephanie
Please keep close look on this. I had the same thing happen 2 years ago and I had a partial blockage/ twisted intestines. They tested me for Celiac back then also and I was told I did not have it. My new doctor yesterday, a brilliant man, showed me the error in 2 doctors findings..one of them being Mayo Clinic.
1St Holiday Season After Dx - How Did You Feel/do/cope?
in Coping with Celiac Disease
Posted
WE have good news...in Heaven we will not have to worry about gluten or anything else...understand and believe it is a disease free zone!