Jump to content

Cboogy

Advanced Members
 View Profile  See their activity

  • Posts

    10

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Cboogy

  1. Cboogy
    My understanding of an IEL (intraepithelial lymphocyte) is that it is just a type of white blood cell that indicates inflammation of whatever tissue it is found in. I went from an old diagnosis of Celiac to a new diagnosis of lactose intolerance, carnitine deficiency and likely H. Pylori. I am having my blood celiac panel rechecked now that I've been on a...
  2. Cboogy
    My new doctor says I do NOT have Celiac disease based on my history. According to his research only 12-20% of patients with elevated IELs actually have celiac, so you cannot diagnose Celiac based on this result alone. At least not without ruling out all other possible causes for the IELs (there are several). In fact, he performed some simple tests (breath...
  3. Cboogy
    I will reply even though this is from 2008... I just got diagnosed with Celiac Disease because my IELs were "greater than 30." I do not improve on a gluten free diet. My bloodwork is all negative. All my blood vitamin and mineral levels are normal. I have the DQ2 gene so given that it's possible for me to have Celiac they went ahead with the diagnosis of...
  4. Cboogy
    The reason I'm following this topic is because a few weeks ago I was diagnosed with Celiac based solely on elevated IELs, so I am really scrambling to understand because everything I've been reading does not match my test results or experiences. Talk about frustrating. I had negative blood work and I'm not IgA deficient, so I tried eating a high-gluten diet...
  5. Cboogy
    I am not referring to villous atrophy, as that is the Gold standard for Celiac diagnosis. Maybe all of these sites are out of date, but I thought it could still be a possibility to rule out. My apologies. Open Original Shared Link
  6. Cboogy
    Yes, it can cause increased IELs, which is also a warning sign of Celiac Disease. Here are a few research articles explaining: Open Original Shared Link Open Original Shared Link Open Original Shared Link
  7. Cboogy
    Thanks for your reply. It's good to know I'm not the only one diagnosed in this way, because I've scoured the internet and barely found any mention of Marsh 1 being diagnostic in and of itself. I'm also just outside of the standard range for hypothyroidism but not quite enough to get taken seriously. I'm in the "sub-clinical" range. I recently developed...
  8. Cboogy
    Blood test results BEFORE challenge: TTG IGA <4 U/mL no antibody detected (my value = 1) IGA standard range 91-463 (my value = 150) Blood test results AFTER 8-week challenge: TTG IGA <4 U/mL no antibody detected (my value = 1) IGA reference range 81-463 mg/dL (my value = 145) gliadin deamidated IGA <20 units = none detected (my value ...
  9. Cboogy
    Hm, but what if all you have is elevated lymphocytes in the colon and small intestine? No anemia, no deficiencies, no villous atrophy, normal architechtural as they say, negative bloodwork on every possible antibody test, and no response after years of being gluten free ... then what? That's where I'm stuck right now.
  10. Cboogy
    I am not convince I have active Celiac Disease. I'll summarize as briefly as possible. Past 5 years I've been gluten-free because I thought I had Celiac (long story). Decided to start over and get thoroughly tested by a new doctor. Here are the deets: Symptoms: cramping, burning in stomach, gas, distention, random abdominal pains (no diarrhea, no dematitis...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.