knitty kitty
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About Me
Celiac.com Forum Moderator
There is no wealth like knowledge.
No poverty like ignorance.
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My cat bumped me while typing to remind me it's his dinner time. LoL
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I'm so glad I could help! Make it a "Bon Voyage" party and treat yourself to all your gluten-y favorite foods in the coming weeks. Chewy breads have more gluten in them than cakes and cookies. Think thick pizza crust, rolls and such. Vital wheat gluten can be weighed out and sprinkled into meals.
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knitty kitty reacted to a post in a topic:
Struggling with gluten challenge and not sure it’s worth it - looking for advice / experiences / encouragement
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Are you taking your B Complex a magnesium, too? Thiamine needs B 6 Pyridoxine, Riboflavin B2 and Niacin B 3. There's sulphur in thiamine, so it can make urine smell funny. Asparagus does the same thing. It's harmless. Molybdenum helps process sulphur out of the body. Have you tried taking 500 mg twice a day? Have you tried taking... -
@smiths, I'm curious about the genetic test. Some doctors only test for the two most commonly found Celiac genes HLA DQ 2 and HLA DQ 8, mostly found in people of Northern European descent. However, there are other genes, HLA DQ 5, 7, and 9, that denote Celiac disease in other populations from the Mediterranean, Asia, and others around the world. You...
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knitty kitty reacted to a post in a topic:
Is Thiamine Deficiency the Beginning of Celiac Disease?
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knitty kitty reacted to a comment on a blog entry:
Is Thiamine Deficiency the Beginning of Celiac Disease?
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Is Thiamine Deficiency the Beginning of Celiac Disease?
knitty kitty posted a blog entry in Thiamine Thiamine Thiamine
I've been researching Celiac disease and Thiamine deficiency for a long time. Recently I found information that shows a relationship between the lack of Thiamine and Celiac Disease pathogenesis. What do you think? Thiamine is used in the mitochondria to produce energy (ATP) in the body for cells use as they go about their various functions. Various... -
Blood tests for vitamins are notoriously inaccurate. Was thiamine specifically tested for? An Erythrocyte Transketolace Activity Assay is more accurate than blood tests. Thiamine Deficiency Testing: Understanding the Labs https://hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ High carbohydrate diets can cause low...
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Welcome to the forum, @dsfraley, Has your son been checked for nutritional deficiencies? Celiac Disease causes inflammation and malabsorption of nutrients. It's part of proper follow up care to correct nutritional deficiencies. Talk to your dietician and pediatrician about supplementing with essential vitamins and minerals while healing. The...
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knitty kitty reacted to a post in a topic:
Starting gluten free diet
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Thiamine is found mostly in meats. But mashed potatoes, rice, and an empty calorie soda would have worsened a thiamine deficiency. Aspartame can aggravate thiamine deficiency and messes up brain chemical balance, also affecting thiamine. I can't do aspartame because of this. Read this study. Alterations in uptake and metabolism of aspartate...
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I understand your concern about getting enough calcium. Since I don't do dairy, I focus on green leafy vegetables. Broccoli, Brussels sprouts, Bok Choy, turnip greens, kale are good sources of calcium. But NOT Spinach! Spinach can cause kidney stones because it's high in oxides. Celiac people can have a problem dealing with the oxides in...
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knitty kitty reacted to a post in a topic:
Starting gluten free diet
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@GFreeIowaMom, I hear you. No, I don't think steroids would cure Beriberi, but steroids could lower inflammation allowing available thiamine (which has anti-inflammatory properties) to be utilized elsewhere. I would be fine during the summer eating carb free or low carb, but come winter, with all the high carbohydrate seasonal foods, I'd be sick...
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Thanks for answering all my questions! Your symptoms sound very similar to mine when I had Gastrointestinal Beriberi, a deficiency in thiamine Vitamin B1 localized in the digestive system. The pain was unbearable. Every thing evacuated at the same time through the nearest exit like a fire drill! It wss horrible. I'll attach some case reports of...
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knitty kitty reacted to a post in a topic:
Celiac Crisis - Experience?
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@GFreeIowaMom, welcome back! Sorry to hear you're feeling so poorly! Would you mind sharing your test results along with reference ranges? Was a Total IgA done in addition to tTg IgA? Have you been checked for anemia? Have you had a genetic test done? You don't have to eat gluten for a genetic test. A positive gene test doesn't diagnose...
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References about Thiamine: Thiamine (Vitamin B1)—An Essential Health Regulator https://pmc.ncbi.nlm.nih.gov/articles/PMC12251314/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/ The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/P...
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Have you thought about cutting dairy out of your diet? The protein Casein in dairy causes the same inflammatory response as Celiac Disease does. About half of people with Celiac react to Casein. I can't have dairy at all. Perhaps you could try eliminating dairy and see if there's any health improvements. P.S. all the B vitamins work together, so...
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I've been researching Celiac disease and Thiamine deficiency for a long time. Recently I found information that shows a relationship between the lack of Thiamine and Celiac Disease pathogenesis. What do you think? Thiamine is used in the mitochondria to produce energy (ATP) in the body for cells use as they go about their various functions. Various...