knitty kitty
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Celiac.com Forum Moderator
There is no wealth like knowledge.
No poverty like ignorance.
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Duodenum biopsy result confusion
knitty kitty replied to jamiet06's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the forum, @jamiet06, Yes, it does point in that direction. Your report says "Correlation with clinical findings and results of serological studies is recommended" is saying you should undergo a gluten challenge and be tested for antibodies associated with Celiac Disease. These antibodies are produced in celiac disease in response... -
@elizabethhousworth, I found that supplementing with Riboflavin Vitamin B2 has helped my migraines immensely. Effect of Vitamin B2 supplementation on migraine prophylaxis: a systematic review and meta-analysis https://pubmed.ncbi.nlm.nih.gov/33779525/ "Conclusions: A pooled analysis of available randomized controlled clinical trials...
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Interesting reading on Histamine Intolerance (HIT): Histamine Intolerance: The Current State of the Art https://pmc.ncbi.nlm.nih.gov/articles/PMC7463562/ Histamine Intolerance—The More We Know the Less We Know. A Review https://pmc.ncbi.nlm.nih.gov/articles/PMC8308327/ We need the enzyme DAO (Diamond Oxidase) to break down h...
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Testing Help
knitty kitty replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Keep us posted on your progress! -
knitty kitty reacted to a post in a topic:
Testing Help
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I prefer not to use Nature's Bounty because they use Thiamine Mononitrate which is not a useable source of Thiamine. Only thirty percent of Thiamine Mononitrate is absorbed, and it must undergo chemical changes to convert thiamine mononitrate into a form the body can utilize more easily. Look for multivitamins that use Thiamine Hydrochloride, or take...
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Beverage reacted to a post in a topic:
How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
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Intermittent Fatigue
knitty kitty replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Doctors don't usually test the levels of all the B vitamins. B12 is frequently the only one checked. Ask for an Erythrocyte transketolase test to check Thiamine Vitamin B 1 levels. The eight B vitamins all work together, so they should all be supplemented. Additional thiamine in the form Benfotiamine can be taken. -
Testing Help
knitty kitty replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No. The damage done to the lining of the intestines is caused by the autoimmune response of Celiac disease. People who have been off of gluten for an extended period may take longer to mount an autoimmune response. Twelve days of gluten after two years off probably wasn't enough time and not sufficient gluten. -
Testing Help
knitty kitty replied to LizzieF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@LizzieF, The anemia which can be caused by low iron can impede antibody production. NCGS can be a precursor of Celiac Disease, especially in those who already carry Celiac genes. Celiac is the only disease where you have to self harm to get a diagnosis. Do talk to your doctor about the updated gluten challenge requirements and a... -
Intermittent Fatigue
knitty kitty replied to ChrisDun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @ChrisDun! Has your husband been checked for nutritional deficiencies? Many newly diagnosed are short on the B Complex vitamins (especially Thiamine), Vitamin D and minerals like magnesium and iron. Talk to the doctor and nutritionist about supplementing the eight essential B vitamins while healing. I had episodes... -
knitty kitty reacted to a post in a topic:
Getting sick much more often
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Yes, zinc is very important to immune system and health. @Sanna King, how are you doing? I got really frustrated reading labels! On the Autoimmune Protocol Diet I don't have to. The AIP diet includes meat and veggies and some fruit. No processed foods. No dairy, no nuts, no nightshades (tomatoes, potatoes, peppers and eggplant). The AIP diet...
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knitty kitty reacted to a post in a topic:
Getting sick much more often
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Have you tried adding in additional thiamine in the form called Benfotiamine? Athletes need extra thiamine. We need more thiamine when we're physically ill and also when we're emotionally stressed. A regular B Complex or multivitamin probably doesn't have enough thiamine. Check the label for which type of thiamine is in your vitamins. Thiamine...
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What were/are you supplementing? What sort of bloodwork? Testing for vitamin and mineral deficiencies?
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Hello there! @Jordan Carlson , you said "Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger?" I think you may have that backwards. Your...
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knitty kitty reacted to a post in a topic:
No crypt hyperplasia but there's lymphocytic infiltration and villi atrophy?
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knitty kitty reacted to a post in a topic:
No crypt hyperplasia but there's lymphocytic infiltration and villi atrophy?
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Momma Cas reacted to a post in a topic:
Inhaler problem
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Inhaler problem
knitty kitty replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
Hello, The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine. We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease. Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals... -
Have you had a DNA test to look for the most commonly occurring Celiac genes? There's some scientific evidence that Non Celiac Gluten Sensitivity is a precursor to Celiac Disease in genetically predisposed people. Which foods do you react to? How do you react?