knitty kitty
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Celiac.com Forum Moderator
There is no wealth like knowledge.
No poverty like ignorance.
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Refractory celiac disease
knitty kitty replied to Grahamsnaturalworld's topic in Related Issues & Disorders
@Grahamsnaturalworld, It's never too late. Have you been checked for Small Intestinal Bacterial Overgrowth? SIBO can cause ongoing symptoms. Mast Cell Activation Syndrome (MCAS) and Histamine Intolerance (HIT) can also be the cause of ongoing symptoms. The AIP diet can help with these by starving out SIBO bacteria and calming the immune system... -
Refractory celiac disease
knitty kitty replied to Grahamsnaturalworld's topic in Related Issues & Disorders
Welcome to the forum, @Grahamsnaturalworld What exactly do you include in your diet? Do you keep a food journal to track symptoms? Have you tried an elimination diet like the Autoimmune Protocol Diet? It's very strict, but I found it excellent for reducing inflammation, calming the immune system, and promoting healing in the gastrointestinal tract... -
Scott Adams reacted to a post in a topic:
Help!
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knitty kitty reacted to a post in a topic:
This Roller Coaster Ride Needs to Stop
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@junell, Can you get a DNA test to look for genes for Celiac Disease? Have you had your thyroid checked? Have you been checked for nutritional deficiencies? Being on a restricted diet for so long and especially now since you are having symptoms can cause malabsorption resulting in vitamin deficiencies. Talk to your doctor and dietician...
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Zuma888 reacted to a post in a topic:
Burning sensation when I wake up
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Beverage reacted to a post in a topic:
Still unsure.....
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Beverage reacted to a post in a topic:
Still unsure.....
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Beverage reacted to a post in a topic:
Still unsure.....
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Beverage reacted to a post in a topic:
Still unsure.....
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Beverage reacted to a post in a topic:
Still unsure.....
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Beverage reacted to a post in a topic:
Burning sensation when I wake up
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knitty kitty reacted to a post in a topic:
almost a year in recovery - so many questions about to give up
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knitty kitty reacted to a post in a topic:
Burning sensation when I wake up
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Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
Please be sure to try Benfotiamine or Thiamine Hydrochloride. The form Thiamine Mononitrate is not absorbed nor utilized well. Benfotiamine is much more bioavailable. Perhaps Thiamine Mononitrate was in your previous B Complex supplements, explaining why they didn't work for you. All the B vitamins work together. Thiamine needs the other B vitamins... -
Zuma888 reacted to a post in a topic:
Burning sensation when I wake up
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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Burning sensation when I wake up
knitty kitty replied to Zuma888's topic in Related Issues & Disorders
Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease. Those HLA genes code for other autoimmune diseases along with Celiac. Hashimoto's and Celiac overlap. People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must. It may be safe to assume you've got Celiac Disease as well. People with Hashimoto... -
@Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand. Their BioActive Complete B Complex has active forms of the B vitamins. Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption. Life Extension also makes Benfotiamine (100 mg). Take one at...
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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mystery gluten?
knitty kitty replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too. I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's. So antibodies aren't necessarily due to gluten ingestion. https://pubmed.ncbi.nlm.nih.gov/31149170/ Take a B Complex supplement and Benfotiamine... -
@Rejoicephd, Would you consider adding a B Complex to your supplements? I was taking a multivitamin and still became deficient. There's a question as to how well multivitamins dissolve in the digestive system. I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery...
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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knitty kitty reacted to a post in a topic:
Struggling to get into a good pattern
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@kopiq, Your case is not hopeless. Doctors are not required to learn much about nutrition. Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals. The eight essential B vitamins and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies...
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You're welcome! Be sure the patient eats at least ten grams of gluten per day for a minimum of two weeks prior to repeating antibody testing. Some people unconsciously reduce the amount of gluten in their diet because the feel unwell. Three grams of gluten per day is sufficient to produce symptoms. Only at ten grams or more is the immune system...
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knitty kitty reacted to a comment:
The Impact of Anxiety and Depression on Celiac Disease Management
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Welcome to the forum, @Wamedh Taj-Aldeen, How is the patient's thyroid? You could check for thiamine deficiency which can cause the thyroid to either become hyper or hypo. TTg IgA can be high in both hyperthyroidism and hypothyroidism. tTg IgA can also be high if patient is taking medications to stimulate the thyroid as in hypothyroidism...
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Welcome to the forum, @Rejoicephd, I found the Autoimmune Protocol diet (Dr. Sarah Ballantyne) extremely helpful in getting my health back. The AIP diet is very strict, removing any possibly irritating foods and allowing time for the digestive tract to heal, then other foods are added back in with less risk of reaction. Keep us posted on your...
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Weakly positive DGP IgA
knitty kitty replied to Cat M's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, @Cat M, welcome to the forum! I noticed you are low in ferritin and thiamine as well as other nutritional deficiencies already. Deficiencies in iron and thiamine affect your body's ability to make antibodies. Since you do have symptoms, nutritional deficiencies evidence of malabsorption, MTHFR and one celiac gene, I'm suspecting you do have... -
Welcome to the forum, @kopiq, Have you been checked for nutritional deficiencies? Nutritional deficiencies may account for many of your symptoms. Celiac damages the intestines which lowers our ability to absorb essential vitamins and minerals. Have you been referred to a dietician to discuss a nutritionally dense gluten free diet? You are eating...
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Newly Diagnosed
knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
@DebJ14, Yes, Celiac Disease causes malabsorption of all the essential vitamins and minerals, not just thiamine. All the B vitamins work together and many minerals are needed as well. If one is missing, the rest can't work well without it. Thiamine is used at the beginning of the energy production cycle and interacts with each of the other B...