Jump to content

Mamatomy8

Advanced Members
 View Profile  See their activity

  • Posts

    11

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mamatomy8

  1. Mamatomy8
    When my son first started having really severe symptoms, about July- his bloodwork showed a low hemoglobin of 9. In Early Sept. he was tested again and it dropped to 7! Now he was retested last week and it went up to 11. The dr. has no explanation for this, as he has tested negative for all his celiac tests.. but I put him on a gluten-free diet in mid Sept...
  2. Mamatomy8
    when my son was on gluten and horrible horrible gas pain/ abd. bloating (belly looked like a 9 month pregnant belly) he would start holding his urine for long periods of time,and he was not potty trained yet. Once when he was hospitalized he didn't urinate for 24 hours, until they placed a catheter-and it wasn't dehydration because he was getting IV fluids...
  3. Mamatomy8
    Thank you for your response. My son was also found to be lactose intolerant with the biopsy- but he never had dairy much before that either. Interestingly when I took a celiac class at childrens hospital every parent in there with a celiac child also was lactose intolerant .
  4. Mamatomy8
    hello- I'm looking for help here! For the past 15 months my now 5 yr old has suffered from severe abdominal pain, bloating and diarrhea . It has gotten so severe in the past few months he has been hospitalized 3x needing an NG tube and rectal tube to decompress his intestines from all the air. At first we thought it was a constipation issue but he only ever...
  5. Mamatomy8
    Got results of my celiac blood test and they were negative. Also today I had the endo/colonoscopy (trying to rule out cause of severe anemia). Nothing abnormal found,and biopsy was taken. Anyone know how long that takes to come back? I'm frustrated that there was nothing abnormal found (yet thankful no cancer, ulcers,etc) but I really would like...
  6. Mamatomy8
    just curious. What first led to me being tested for celiac was that I was very fatigued, went to the dr. and found out my hemoglobin level was 5 !! Went for procedures today and none of the nurses could believe I was functioning at all at that level. I'm guessing my body just compensated for it, and it happened so slowly it wasn't obvious how sick I really...
  7. Mamatomy8
    Well my blood test was negative... feeling discouraged. Endo /colonoscopy tomorrow. I'll be glad when that is over with, but I really need some answers! Had my hemoglobin retested and it hasn't gone up since my blood transfusion a month ago- still a bit low and I've been taking iron faithfully. hmmmm
  8. Mamatomy8
    Thanks for the reply. I don't know what ITP is, but they didn't mention my platelets being low. Only hemoglobin, iron and Vit. D.
  9. Mamatomy8
    HI, I recently got the blood test drawn to test for celiac and am waiting for the results to come back. Next week I'll have an endo done. I have questions though, about it because I've read different things online. I have been on a somewhat low carb diet for a year or so. I'm not strictly gluten free, but honestly don't eat a lot of gluten except for...
  10. Mamatomy8
    Thank yo Laura.. I agree on the celiac being the least bad! Other possible causes included stomach or colon cancer... I am praying for it to be celiac - or at least something else!
  11. Mamatomy8
    Hi, I'm new and looking for other's experience and advice. I recently went to the dr., due to having extreme fatigue for several months. Much to my surprise, my blood count/ hemoglobin was extremely low, so much that I needed 2 blood transfusions . I was shocked! Have always been slightly anemic, but nothing like that. Found out later, my iron and vitamin...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.