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SillyYakMom

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Latest Celiac Disease News & Research:

Everything posted by SillyYakMom

  1. SillyYakMom
    Since Crohn's and Celiac are linked on the same gene has anyone found that they have Crohn's as well? I have been having many problems recently and Crohn's may be a possibility. It seems even though I am being very good on my diet and even when I am eating strictly fruits and veggies I feel like I do after I eat gluten. Strange. I have never had this happen...
  2. SillyYakMom
    Been diagnosed with this, anyone else have the same along with celiac disease? Any links known or feedback please.
  3. SillyYakMom
    Hey, not on here much. But I have had this now for about 12 years. Great Pediatrician diagnosed my whole family with it. I have heard SO many comments! And the ones you have all said are classic! I am very religious and had a freind in highschool tell me that if I "had enough faith in God I would be healed. And that I could build up an immunity to...
  4. SillyYakMom
    I was diagnosed with having H pylori. I have recently had triple treatment therapy for it. I have read that 1/3 of the population has it and it doesn't seem to cause problems in most people. However I also know (the University of Maryland Med school has my blood and my families blood), that through the tests done that people with celiac disease are IgA deficiant...
  5. SillyYakMom
    REALLY?? I have been a celiac for awhile, but even when I am gluten-free I still have the pain. Not to mention my mom has fibromyalgia. My sister seems to be getting fibro. symptoms and has tons of cysts, but has not had a laproscopy. I go in on the 9th of Dec. Maybe I should have them schedule a laproscopy when I go in.
  6. SillyYakMom

    ARCHIVED Visit To A Dietitian

    SillyYakMom replied to laurelfla's topic in Doctors

    I am not sure what to ask since I have never been to one, but when I had DD the hospital said "You don't need to ask for anything special because we are a dietary hospital and know ALL about celiac." So when I had my lunch brought to me they gave me white bread! Yeah, that doesn't come from wheat at all.
  7. SillyYakMom
    <{POST_SNAPBACK}>
  8. SillyYakMom
    Oh, I know JUST what you mean!! I feel like if a person comes to a doctor complaining about these things it should be one of the FIRST things they test for if just to rule it out! My mom didn't get diagnosed until she was in her 30's and has now had so much damage from it she is more like an 45 year old with an 80 year old body. I was lucky I got diagnosed...
  9. SillyYakMom

    ARCHIVED What Do You Do?

    SillyYakMom posted a topic in Doctors

    If there is a friend who comes to you with every symptom in the book, her children have the symptoms, her dad has had intestinal cancer, brother has lymphoma, cousins have Chrone's, was told she has IBS, etc. etc. and finally goes to the doctor to get her children looked at for it and you swear they got it wrong?? Everything she has told me sounds CLASSIC...
  10. SillyYakMom
    So sorry for your loss. That would be hard. I have never had anything so painful, my dad has died once from a heart attack. Survived and then had another one ten years later, he is around, but it did put things into perspective. I hope you and your family will feel peace during this difficult time.
  11. SillyYakMom
    Actually I don't live in MD I live in UT, but they came to our house and took all of our blood and sent it there. Since this was many years ago and a newly known about disease they were willing to bend backwards for us, even swallow any cost.
  12. SillyYakMom
    My Dh, who is not a celiac LOVES this stuffing recipe. It is made with short brown rice and he thinks it tastes better than bread stuffing. It also stays moist so much better because the rice soakes it all up. Rice Stuffing 3/4 Cup finely chopped onion 1 1/2 Cup chopped celery with chopped leaves 1 Cup butter 2 Cups short brown rice 2 tsp salt ...
  13. SillyYakMom
    I am not vegetarian, but many times I feel like I am. I think it would be relatively easy. I actually eat meat rarely. I eat more fruits and vegetables anyway. I have tons of veggie dishes that I love and get them off of vegetarian websites.
  14. SillyYakMom
    In my family of 10 children we all have celiac disease, but research has shown that both parents must have it. We know that my dad's family has it because of the symptoms, but no one will listen so we have stopped talking. My dad is 280 lbs and 5'11. He has always been this way. We have tried to get him to go on a gluten-free diet, but it is always short...
  15. SillyYakMom
    Just wanted to know. I have been a mess for the past 9 months with pain. I had an ultrasound and have a follow up appointment soon. I have felt pain on my bladder even. For two weeks out of every month I am in agony. I have wanted to go see through laproscopy if I have it. My mom is very fertile, but my sister and I suffer from cysts and pain and have a harder...
  16. SillyYakMom
    Sometimes people just don't understand. My Dh knew that I had it before we were married, but I asked him flat out. "So when you eat a wheat sandwich or whatever you don't have pain? You don't feel sick immediately." When he said no I realized he will never really know about it. But you know what your body is feeling, go with that feeling.
  17. SillyYakMom
    I know what you mean. Growing up with this I had a 'friend' tell me it was all in my head and I could build up an immunity to it if I just ate it all the time. I don't understand why people are not more open minded sometimes. My mom' s only full blood sister has all of the symptoms they both inherited from their dad and yet she refuses to believe it. She...
  18. SillyYakMom
    Hello, I will introduce myself. My name is Jessica and I am married with a 20 month old daughter Emily. I have been diagnosed with celiac since I was 11. There are 10 kids in my family, all who have celiac disease. My mom's dad died of Chrone's disease when he was 33 and my mom was 6. We have all had to deal with it and learn how to cook gluten-free so that...
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