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frustratedneicey

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    neiceypic
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  • Interests
    36 year old divorced mother of 3<br />Diagnosed with Celiac March 2005<br />Diagnosed with MS 2006
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    Jacobus, PA

frustratedneicey's Achievements

  1. Hi everyone. All summer I went to cookouts, couldn't eat 99% of the food of course, but what made it worse was watching everyone drink cold, frosty beer. Where can I find gluten-free beer and is it any good? Thanks, Denise
  2. I myself get very painful pimple-like blisters on my scalp,back of my neck, upper back, and forehead when I use shampoos that contain wheat. They become almost like boils, but when I asked my doctor about it, he looked at me like I am nuts (what's new) So, I took it upon myself to stop using those shampoos. Cover girl blush gives me those blisters on...
  3. I DEFINATELY get more sick now that I am gluten free. I would NEVER, EVER, purposely eat gluten because I know how I will react. Before I knew I had Celiac Sprue, I had alot of diarrhea, and felt washed out all the time, but now, one little crumb in my peanut butter, by a kid who can't read my name on the lid, and BAM, I get horrible, horrible stomach...
  4. Tiffany, It was not you who made those comments. I recognize your name and know for a fact it was not you. I am not sure what the lady's name was, but I know it was not you. Denise Thank you for asking. As far as Celiac is concerned, I am doing very well. A few cross-contaminations here and there, but I recently had a endoscopy for gastritis...
  5. I am not a doctor, but I am sure that many food allergies carry the same effects.In fact, I am going go back to my allergist to finish off my testing because I am sure that I am allergic to some other foods. There are times when I am 100% certain that I have not been glutened, yet I get the same or close to the same reactions. My advice is to look into...
  6. Hi. I have not been on here on a regular basis, but I want to say a few things. I want to thank all who have been supportive and helpful and sympathetic. I have had good experiences on this board for the most part. I also want to welcome all new members and say that please don't be discouraged if you get one poster who is not so supportive. This happened...
  7. I am sorry for your illness. I have always worked in the medical field, so I know somewhat about ALS. I hope that the gluten free diet eases some of your pain. If you are feeling a difference after 3 days, I know that a few weeks will make a great difference. Good luck and God Bless. Denise Gail, making an appointment with a Neurologist will help to...
  8. Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my...
  9. I have Multiple Sclerosis, so those kind of sensations are the norm for me. But, my neurologist told me that Celiac disease and the reaction to gluten actually causes similiar symptoms, which in my case, makes them twice as bad. But I just wanted to let you know straight from my neurologist, they are normal occurences and I hope your neurologist studies...
  10. Wow. What an appropriate time for me to read this topic. It has been 1 1/2 years since I have been on the gluten free diet. I have been doing so well, never purposely eating anything forbidden on purpose. I had completely lost the urge to eat anything but gluten free foods. Then, yesterday, at a family gathering, someone brought out a homemade apple pie...
  11. HI Everyone, I haven't been on here for a while. I had been feeling better, and I thought that I was finally coping with my diet. (also been very busy with school) But, since I went to the store last night, I have been pretty ticked off. It seems that my local Weis Markets had decided to start putting wheat starch in the cereals I have been eating for...
  12. Thank you all for your advice and comments. I had to take the hycosamine last night because I woke up at 1:30 am with terrible pain, diarrhea,and vomitting.....again. (don't know what is going on) It did absolutely nothing for me! I felt like I was having a baby. I actually woke up my daughter with my crying and moaning. And I am so sick of having to...
  13. Hi. My doctor prescribed Hycosamine (sp?) for severe abdominal cramps for the times I may get glutened. (happened 2 nights ago, could not bare the cramping) It hasn't happened for about 4 months, but I was reminded the other night how bad it is when it does happen. I have these pills now and I wonder has anyone else ever taken this? Does it work? Does...
  14. I would bet that it was the artificial sweetener that got to you. It does the same to me. You even have to watch sugar free gum.. Many of these foods contain sorbitol, which is a laxative. Nice.....no wonder sugar free makes you skinny, it makes everything run right through you!!!!!! Denise
  15. Supplements are very good. The only thing I take are calcium, a multivitamin and B12, (when I remember to). But the thing is, when I forget, I know I forget, because I feel drained more than usual. I take a prescribed med for my fatigue for another illness, but it has such a strong, unnatural feeling, so much different than supplements. Give your boyfriend...
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