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LookingforAnswers15

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LookingforAnswers15

  1. LookingforAnswers15
    I am not sure what this new doctor will say and where she might refer me to but it is good to know to ask. Thank you Raven!
  2. LookingforAnswers15
    Hi Bartfull, My only hope is this imunnology doctor that I will get to see next week who is in a different hospital. I had to get a new insurance to see the previous doctor who seemed to be quick to tell me to take antidepressants instead of running some expensive tests they were able to do (such as an MRI but I insisted on getting them). I think this...
  3. LookingforAnswers15
    Great news!!! Eloise you can do it! Prayers will continue coming your way.
  4. LookingforAnswers15
    Hi Bartull, thanks for responding. I am really not sure. When I was admitted to the hospital last year (they diagnosed me with celiac then), they said they tested me for lupus and it came back negative. However, I am not sure if something has changed since then. They told me my thyroid was ok but I really do not know which tests they ran. Sometimes...
  5. LookingforAnswers15
    Hi, Hope someone can help me. I have spent this whole August trying to find doctors and get them to do tests. I truly don't understand why some of them even decide to become doctors when helping patients is not even their priority. However, they are great at charging you for nothing. I was sent to a neurologist who is obviously not knowledgeable about...
  6. LookingforAnswers15
    Dear Eloise, as always, prayers are sent your way for you and all your family. You have been so brave, strong, supportive of others, and positive so please keep on fighting. I truly hope and pray that you will be posting on here soon. You touched the hearts of many. These days, kids and even some adults do not realize how good they have it and do not...
  7. LookingforAnswers15
    Thanks a lot Bttrfly! I am glad they ruled out MS for you. Hope these scary symptoms, especially loss of vision don't occur again. I definitely can relate to you. I did not notice too many abdominal symptoms at first (but much more lately; my IgE levels are extremely high so maybe that has something to do with it as well) but some other random symptoms...
  8. LookingforAnswers15
    Dear Eloise, I believe I told you a few times that I thought that you are a strong and brave girl. You are also an amazing fighter! Keep getting better!!! We all want you to get better. Seeing the post about your surgeries and hearing that you are getting better made my day. Will continue to pray for you, your family, and the donor's family. Also...
  9. LookingforAnswers15
    Hi all, I have 3 questions: 1) Has anyone done an MRI to rule out other AIs (e.g. MS)? If so, when you were tested, were you given the dye? I was not. I was just asked not to move for about 15-20 mins. 2) Apparently my enzymes GGT and ALP are low. What should I take for that? 3) Magnesium is slightly elevated. Anyone has any experience with...
  10. LookingforAnswers15
    Hey, I hope you can help me figure this out. I was tested a few months ago and while my antibodies are still high, I also noticed that my IgE was 195, normal range up to 100. I asked the doctor to retest me last week and they came back even higher. It is obvious that I am allergic to something but I have no clue what that could be. He said I will do an allergy...
  11. LookingforAnswers15
    Dear Eloise, thank you so much! You are super sweet and your kindness and maturity really impress me. I feel ashamed to be complaining so much when I see you being so brave. And yes, I am also a girl =) but much older than you.I guess I should consider myself a grown up =). I think you are one of the bravest people. I truly hope and pray that everything...
  12. LookingforAnswers15
    Thank you Bartfull and Icelandgirl. I am getting ready to go to see a doctor and i am already an emotional wreck trying to hide it as much in a front of my family. So, i read my horoscope, which I never do, hoping I will get something positive. It said "An unexpected twist of fate might be a wake-up call from your future, reminding you to keep everything...
  13. LookingforAnswers15
    Hi all, I used to consider myself brave but not any more. I am so worried about everything these days and I admire so much strong kids and adults on this forum. I cannot stop thinking about doctors because I am scared of possible new diagnosis because I have been experiencing other symptoms. I am so terrified to even write down what I am scared of...
  14. LookingforAnswers15
    Hi all, Ravenwoodglass and Cycling lady, thank you so much. I knew I could count on your advice =). I have noticed that a few members, including two of you , are always willing to help others. Ravenwoodglass - I was diagnosed a year ago and my antibody levels were very high: 230 and now 120 so they are dropping but I was hoping it would have been...
  15. LookingforAnswers15
    Hi all, Hope your summer is going well. I have not written in a while. I have had ups and down and possibly got glutened but my reactions/symptoms are just weird that I truly do not know when I get glutened. I am still looking for doctors who will carefully look at me but I know I won't find them at the hospital where I was going to so I have to go to...
  16. LookingforAnswers15
    Hi Lacey, sorry to hear about your diagnosis. Your priority right now should be taking care of yourself. If your boyfriend does not understand it is his problem, not yours. You are the one who has to deal with side effects of getting glutened and ultimately being in pain. I do not want to sound harsh, but it is ridiculous that he is getting tired of eating...
  17. LookingforAnswers15
    Hi all, I do not think there is a connection between Atlas Subluxation and Celiac but that its symptoms mimic those of AI diseases (neck pain, tremors, weakness, lack of energy, eye problems). I have been worried especially because of my neck (terrified of MG) but after talking to my Gastro doctor, she thinks it has to be more neurological problems....
  18. LookingforAnswers15
    You really do not need to thank me. Fear is one of the worst emotions. Some very kind people calmed me a bit down yesterday. I would not call myself positive these days when I am thinking about myself but we can be more rational,positive, and composed when looking at someone else's situation. I am having a hard time not thinking about my issues but I am trying...
  19. LookingforAnswers15
    Hi, I'm sorry that you are going through this and I really have no medical advice to offer. I am also so scared regarding some of my symptoms so I know it is so hard to try not to think about it until we get to see a doctor but please try! Hang in there! It is better that doctors do not speculate about possibilities although it can seem shady to us. I know...
  20. LookingforAnswers15
    I really appreciate your kind words and support. Bringing someone with me to the appointment could be a good idea but there are still finals at the university so I am not sure if my best friend will be able to come. I am really trying not to think about it but it is hard. I will definitely ask her to print out all of my results for me. Once again, thank...
  21. LookingforAnswers15
    Hi all, I have recently joined and posted a couple of times already because I am freaking out.I do not think I am strong enough to deal with another (possible) AI disease. I am in a bad place and I have never been so scared about my future. As I said in previous posts, I am afraid to give you all of my symptoms (although I know you could be helpful...
  22. LookingforAnswers15
    Thank you all for your response! I really appreciate it! Since I am a student, I live in the residence hall. I have my own room with a small fridge but I share kitchen. However, I keep all my food and dishes in my room. If I have to use kitchen and see any bread crumbs I do not come anywhere near it. I also use oven a lot. I buy these special plastic...
  23. LookingforAnswers15
    Hi all, these last few days I really need answers and support more than ever before. I am terrified because I have no idea what is going on with my body. I used to be a healthy person (or I thought i was) who ate healthy and exercised. These days I am constantly tired and in pain. It has been a year since I began following gluten-free diet and I have...
  24. LookingforAnswers15
    Hi all, I was diagnosed last year and since then I religiously follow gluten-free diet. However, I do not feel any better and I am afraid of other auto-immune diseases. I have been trying to figure out how and when all my symptoms began and I cannot exactly remember because prior to my diagnosis I did not have or did not notice too many problems (I was working...
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