celiac mom

My son is also a freshman in college, but has been diagnosed with celiac for 4 years. He loves the tacquitos by Delimex- chicken- they are gluten free. We bought him a refrigerator with a bigger freezer knowing that he would need meals in case the dining hall was a bust. He also eats alot of nachos with corn tortilla chips and cheese. Amy's makes a very good...

Boy does your situation sound just like mine four years ago. As a freshman in high school, my son was diagnosed a week after school started- same as your son, skinny, small (under 5 feet) and not yet in puberty. Just know that he will grow when he is not eating the gluten- mine gained 13 pounds a year after being gluten-free. Now he is 5 feet 10 inches, still...

My son was diagnosed at 14, and it took a long time for him to get on the charts for his height. At 14, he was barely 5 feet 2 inches. After 3 years on the diet, at 17 he is 5 feet 10 inches (two inches taller than his dad!). He is still very thin, but has consistently gained weight since being on the diet. After the first 2 months on the diet, he only...

Karin, Thank so much for the information. We are traveling to London in spring, 2008 with my celiac son. My daughter will be studying over there, so a spring break trip is being planned. I was going to ship some food ahead of time for her to store, but I wrote down the names of the grocery stores and places to eat that you suggested as well. Are things...

Having a son with celiac whose diagnosis was just before entering high school at the age of 14, it was tough. He didn't have any stomach pains, bowel problems, just being very skinny and just not growing. When he heard that by not eating gluten, he would grow, that was all he needed. He will never be a line backer, but at least now that he is 17, he is...

Mitch, My son was also pretty asymptomatic as far as physical reactions (no pain, diarhea etc) but he was very small for his age and the doctor thankfully did a series of tests and the rest is history. He is now 16, gaining weight and is the right height for his age (at 14 he was not even on the growth chart). He suffered from self-esteem stuff because...

Dr. Fasano at the University of Maryland in Baltimore is a leading researcher and pediatric celiac specialist. We have not seen him as we have a few closer to where I live, but he runs a research center in Baltimore strictly for celiac patients. Let me know if you need more info. Good Luck, it can be a tough search.

I am sure you already went to the beach, sorry for not getting back to you. Dumser's in on or around 45th street, Bay side. I usually buy the gluten free bread at Whole foods. It's their brand. I assume you live in or near Maryland and we have Whole foods (Montgomery County). They usually keep it in the freezer, so you may have to ask for it at the bakery...

I do live in Maryland and vacationed at Bethany Beach with my celiac son. We do find that most resturants will have burgers and steak that he will eat, but we stay away from french fries as most places don't have dedicated fryers for just the fries. He has eaten at McDonalds and has never reacted to their fries. Wendy's is good for the baked potatoes in...

No one in my family or my husband's family had ever heard of celiac before my son was diagnosed 2 years ago. Whenever we are having a family dinner, I usually bring something that I know my son can eat. I question my siblings about how the turkey (Thanksgiving and Christmas) is prepared and I make myself kind of a pain to them. After a few times, they understood...

Wow, reading your post made me feel like I finally found someone that sounds just like me! My son was diagnosed at 14 (right before he started high school) and virtually had no symptons. He just slowed down in his growth. He started dropping off the charts slowly, and the doctor suggested that he run a battery of tests, one of the for celiac disease. I...

I also have a picky eater, a 15 year old son! He usually does pack a corn tortilla with chicken and cheese. Whole Foods (if you are near the Washington DC area, I don't know if they are a national chain) has a great selection of gluten free breads that are really quite good. Foods by George has great blueberry muffins that my son just loves. In the beginning...

This is my first post and I guess I am a little late in this discussion, but my catholic church has started to dedicate a cup of wine for celiacs to be drank before anyone else does. It has made my son (15 yr old celiac) feel much more a part of the mass as he wasn't taking communion. I am not sure why the change has come about, but I for one am grateful...