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heyitsmissa

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Everything posted by heyitsmissa

  1. heyitsmissa
    Diagnosed this past week. What kitchen tools and accessories need to be replaced? can certain items be sanitized instead of replaced? Items I'm questioning: - pots and pans - mixing bowls - hand mixer - stand mixer & attachments & bowls (this would be devastating) - cookie sheets - cutting boards - cooking...
  2. heyitsmissa
    Hey guys. I have a lengthy history of autoimmune issues with official diagnoses of lupus, endometriosis, adenomyosis, and Reynauds. During the decade-long adventure of getting those labels, I also saw a GI on and off for relevant symptoms. I had labs drawn in 2012, early 2016 and mid-2016, and the results were always the same -- The entire panel...
  3. heyitsmissa
    Seriously! I'm glad I didn't see this until a month later, when the frustration and snippiness had gone away.
  4. heyitsmissa
    I don't even know where to begin on this. You've gathered quite a bit of information from me saying a very short sentence about being short and snippy with a dog and my husband. As for sex, not that it's ANY of your business, but celiac has my pelvis so inflamed that sex is often very painful for me. As for "youngsters needing a swift kick in...
  5. heyitsmissa
    Update! I emailed and received a response -- Hi Melissa: All of the Beef and Turkey Perky Jerky we currently produce is gluten free (lab tested and certified) and our bags are CLEARLY labeled correctly. We switched to all gluten free over 14 months ago, so there shouldn't have been any bags with gluten still in the marketplace. If...
  6. heyitsmissa
    I am. I'll check it out and see what I can find.
  7. heyitsmissa
    On my bag today, in the Original flavor, they used regular soy sauce. I'm so disappointed. I can't even begin to put into words how I feel about this.
  8. heyitsmissa
    If you've had Perky Turkey Jerky on your safe list, you can now remove it. Got glutened today. It's no longer gluten free. Newbie mistake of not double checking the label. Had a seizure. Fun times. Just heads up! Their website is still calling all products certified gluten free, so I've sent an email regarding that as well... I'd hate for someone...
  9. heyitsmissa
    Well, after further evaluation of my blood work, my rheumatologist didn't even run the RA tests. SO, that's going to have to be done ASAP. Might could be lupus, but RA is standing out big time based on symptoms. All my joint issues are symmetrical, and I do have an x-ray confirming loss of joint space. But can't lupus cause arthritis as well? I...
  10. heyitsmissa
    Back story: We thought I had lupus, so I saw a rheumatologist. He put me on a trial of Plaquenil to see if it helped with various symptoms. During the trial, we found out about the Celiac, and figured everything was likely attributed to that. The rheumatologist DID diagnose Undifferentiated Connective Tissue Disease, which is basically a catch-all for the...
  11. heyitsmissa
    Oh! I do have one T4 value. September 22, 2014 TSH was 2.160 on reference range of .450-4.500 T4 was 10.8 on reference range of 4.5-12 Oddly, my iron was high on that day also. 165 on reference of 35-155. Just found out a couple months ago my iron and ferritin were totally depleted. So I found the high iron really weird.
  12. heyitsmissa
    I haven't had a full thyroid panel, I think because my values are always in the normal range. But my new rheumatologist is likely willing to at least entertain the thought. I'm bringing all of this history to him in 2 weeks for my follow up. He diagnosed me with Undifferentiated Connective Tissue Disease in November, which is when I saw the marked TSH drop...
  13. heyitsmissa
    I'm going to provide my TSH values that I have available to me-- November 23, 2011 - 4.010 with a reference range of .450-4.500 (high-end of normal? or just normal?) July 3, 2012 - 1.3 with reference range of .450-4.500 (this seems like a huge drop to me in just 7 months) August 14, 2012 - 1.47 with reference range of .450-4.500 February...
  14. heyitsmissa
    I think I actually might have thyroid issues. My TSH values have been steadily dropping with random upward swings, but now they're almost to the very low end of "normal." That's being looked at in 2 weeks. Would thyroid issues make this worse?!
  15. heyitsmissa
    This is so much fun! ?
  16. heyitsmissa
    So... lately my nerves are really, really short. With just about everyone, but especially my husband and my 11-month-old puppy. (They live with me, soo...) I'm snappy about everything. Rude. Mean. Snippy! Also, I couldn't fall asleep until 5:30 this morning (got in bed at 10pm)... normal? Is basically anything normal during this process???
  17. heyitsmissa
    If you feel better off gluten, stay off gluten. I'd find a doctor who's willing to work with you on follow up tests and routine screens though. Celiac puts us at higher risk for certain cancers, osteoporosis, and other things. Just be sure you have someone on board who believes you even though you don't have an official diagnosis.
  18. heyitsmissa
    Thanks everyone! I definitely think it was a healing spurt/still likely is. I'm starting to feel better and my back pain is much less frequent. Energy seems to be getting better too. Is this possible only almost-3 weeks in? Seems so early.
  19. heyitsmissa
    Alrighty, eat I shall. Lol. *really hoping I don't gain weight*
  20. heyitsmissa
    Alright. It appears this has been asked before, but I'm gonna ask again. I've been gluten free about 3 weeks. Lately, I'm always hungry. Always, always hungry. Is this part of the healing process for real?!? Gluten withdrawal? What exactly is that? Is it literally like a drug withdrawal/detox? I'm 5'3", 120 lbs and eating more than my husband...
  21. heyitsmissa
    We are utilizing the "our kitchen is completely gluten free" and DEFINITELY checking every label every time methods. SO glad to hear my DGP should drop!!!!
  22. heyitsmissa
    Update! I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet. Thanks...
  23. heyitsmissa
    It is incredibly frustrating, and I think it's a money issue. They get paid significantly more to do procedures. I think one mistake I've made in my gastro's office is only mentioning gastro symptoms. He is unaware of everything else, so I think that this is partially on me. I've created a document listing all symptoms and deficiencies and diagnoses since...
  24. heyitsmissa
    Well, I love my doctor as a person, but just got the results and "interpretation" in the mail. "One of the celiac markers is elevated, but this is not diagnostic for celiac disease. This has not changed from prior study." (same marker came back high in 2012.) I have a follow up a week from today, and I'm taking all kinds of literature with me about...
  25. heyitsmissa
    Gemini - Thank you for everything you've said. I'm going to skip the endoscopy. I agree with you that this diet isn't too terribly difficult to follow, until I have a craving for a molten lava chocolate cake at Applebees or something! It IS also difficult to eat out, and I travel fairly frequently. Alas, I will make it work. The official diagnosis...
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