Awol cast iron stomach

On 7/29/2025 at 11:04 AM, Scott Adams said:

The white matter changes seen in celiac disease in the referenced study are likely multifactorial:

• Possibly linked to chronic inflammation, autoimmune activity, nutrient malabsorption, and brain hypoperfusion.
• Thiamine deficiency may contribute, especially in those with long-standing untreated celiac or poor dietary intake, but it's not the only cause.

Agreed. " Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight..."   In my early days gluten free after my gluten challenge cross contamination would hit me neurologically in 20-30 minutes after the exposure. I would experience brain fog, numbness in my upper left arm, and I would lose my footing, including falling off curbs. I also would experience days of difficulty with word retrieval after.  Particular words, not all, I could not recall. It was that tip of your tongue experience. I would tell my Doctor it was like knowing the  "word" was in my 'filing cabinet", but I could not find the drawer it was stored in. I would "open" the drawers in vain looking for the wording I wanted to use. Instead I would in frustration give up at word retrieval, and use a work around using synonyms to the word I wanted. This was before the horrific bloating and gi would start. Those lessons, and my Dr's advice made me vigilant about keeping my home gluten free, and maintaining a strict dietary compliance to avoid those experiences again. I am glad you too have gotten relief. Best wishes.

Glad to read they made a test that won't require a gluten challenge. It does sound like it maybe quite sometime before it is readily available. This is a good first step. I was unable to finish my gluten challenge, and would have preferred not to have even attempted if this test had been available to me. I am glad it sounds it maybe available for others with time. Which I do hope is the case. Many of us go misdiagnosed, delayed, or undiagnosed too long. I hope this test will be an effective test to aid in quick, and less intensive, damaging, and painful method for any others who are ill and in need of a proper diagnosis.

On 6/24/2023 at 2:13 PM, momofceliacteen said:

We have the Nima- she did not test bc it was supposed to be gluten-free and was wrapped separately and all. We live by the Nima though now. 

"I don’t eat food from airplanes. It’s not worth the risk and so few people are aware of celiac disease and truly understand. "

Agreed I have gotten sick on a flight, and then had flight attendants banging on the bathroom door because I went to the bathroom too much. It was an unpleasant flight experience. 

On 11/29/2022 at 10:25 PM, Guest Mee said:

Good news!

I’ve enjoyed gluten-free meals on British Airways, Turkish Airlines, and a couple others. Lufthansa staff weren’t thinking as someone doling out the rolls plonked one onto mine. Traveling to other countries has definitely improved for those with gluten-free needs.

Great to read. Happy travels!

20 hours ago, Guest CMJ said:

"I appreciate celiac.com keeping the gluten free community informed of useful - political or not - news that impacts our community. "

Ditto

Can we just not add wheat starch (even if FDA compliant of 20ppm) to gluten-free foods? That would be great. 

Sorry to all of you who experienced symptoms who tried it. I appreciate you sharing your experiences.

On 11/25/2020 at 3:18 AM, Guest Andreajesus10 said:

Now they gotta get rid of the corn - and make a dairy-free version! 

Ditto. Corn is king in the industry because it is cheap, but also another inflammatory for many of us. Sadly I was not surprised to click on details to see corn.

Sniff sniff - oh how I wish it had no corn/corn starch. Enjoy those of you without corn issues! 

My son and I both experience clearing of eczema when on a strict gluten free diet. After my diagnosis and gluten challenge the whole house went gluten-free. We discovered my son's eczema cleared as well. My son is now also gluten free.

"Researchers are making critical progress in distinguishing celiac disease from NCGS. Their efforts could drive breakthroughs in the diagnosis and treatment of both conditions, so their ongoing study is important."

 Good to know research is progressing. I look forward to more details as they unfold.

It is important for those of us in the USA to remember that the UK is NHS based run system. Their current guidelines/test match their system not ours. It is still informative for all of us as a community to know what other countries develop, use, change in diagnosing and/or treatment.

14 hours ago, Clhaddon said:

aren’t cytokine levels markers of inflammation?  How does this contribute to identification of celiac disease?  

"In the NCGS group, the AUC values for IL-1, IL-8, and IFN-γ were 71%, 78% and 70%, respectively. 

IL-15 distinguished the celiac and NCGS groups from control group 

The team's results show that IL-8 and IL-15 could potentially act as markers for distinguishing celiac disease from the NCGS and healthy controls. "

Reading this part for IMHO is looking at the subclass of cytokines levels and immunological reaction s. They are inflammatory markers, but they interpret the data and levels and which markers.

To me IL-1 as found in their NCGS data, points to the innate branch of immune system vs the adaptive.

We may see the researchers perhaps will be looking to see is NCGS the innate immune response to gluten where as celiac has distinct antibody response found in the  adaptive immune branch. 

If this research confirms identity of celiac by il-8 and il-15 . This info  can advance research for celiac and the adaptive immune branch . Also if il-1  cytokine subclass is responsible for NCGS the researchers can learn more about the innate immune branch and NCGS 

Interesting to me as my cousin is a gold standard celiac and I am currently a NCGS.

Let's see what they find moving forward.

On 7/24/2020 at 9:55 AM, Rhyo9 said:

What is MC?  { I could Google it, but there are probably lots of things that MC stands for. 

She mentioned it in first paragraph.

"I learned to live with this undiagnosed disaster all my life until I was diagnosed with Microscopic Colitis."

16 hours ago, Guest Sally said:

Reminds me of the dilemma when there are church meals and family-style meals that only have a few choices. I just pack what I can eat and enjoy the company and whatever program they have that evening. Sometimes the meal is $20 and all I can have is a nice cup of tea. My mother apologized to me for passing on the celiac disease. I told her apology accepted, but not to worry. I just watch what I eat to control it! Blessings to you!

I love how your Mom apologized. Sweet. 

On 7/7/2020 at 2:34 PM, Guest Roberta Williams said:

Unless your husband and children have all tested, don't just assume they don't have the Celiac propensity genes; HLA-DQA1-2 and/or HLA-DQ8. My husband carries the DQA1-2, which is the Dermtisis Hepetiformis, which he was not diagnosed until he was in his 60's and about the time we took the 23&Me tests. His kidneys were failing him and his doctors could not figure out why. Once he went gluten-free, he rapidly improved. That's when we realized our daughter and granddaughters rashes and skin ailments very likely were the same thing... they didn't improve as fast on the gluten-free diet, they had many gastric issues still. A few years, later 23&Me added the HLA-DQ8 information and sure enough I carry that, but I wasn't experiencing much other than occasional bowel problems and unable to lose weight, not the bloating and such that the girls have. My daughters liver was heavily damaged by Celiac, but now that she realizes, she can't even fudge a little, she is doing better. For some reason our 17 yo granddaughter had a colonoscopy and her intestinal villa are still damaged after 10 years virtually gluten-free. We are wondering if the Celiac was very pronounced in her from birth with no diagnose until she was 7, that the villa never had a chance to grow properly.

In am so glad to hear you all found out. Amazing. I hope the 17 yo has a turn around soon. Best wishes.

Well said in a clearly written paragraph Dr.

"You need to look towards the produce aisle, vary your food choices from day to day, eat a wide variety in colour and types of organic fruits and vegetables, eat fermented foods rich in probiotics, and feed that good bacteria in your gut with foods that are prebiotics (root vegetables daily).  "

My husband takes my daughter out for her b day to the restaurant she picks. My son and I do not eat out at restaurants.

You making her favorite meal at home and her eating out with Dad and brother sounds like a great way to celebrate her special day .

On 6/9/2020 at 11:15 AM, Guest dappy said:

bifidobacteria-based probiotics: I take this probiotic daily. It helped me tremendously before diagnosis was complete. I could not leave the house before beginning the regimen. HOWEVER, it does not protect from gluten reaction. If I am contaminated unknowingly, the severe reactions are just as quick and just as severe with the probiotic as without.....

I agree. 

On 12/24/2015 at 6:58 AM, Guest james said:

My 5 year old daughter's symptoms point to celiac. After 6 months of symptoms the doctors are finally willing to entertain that there is a problem, blood work came back positive. The G.I. specialist isn't available for 2 months to meet and schedule a test, another (2 months??). We can't feasibly continue to poison this poor girl waiting for the test as symptoms of distended stomach and malnutrition are apparent already. Knowing that the diet must have gluten to present proper results, we don't feel comfortable continuing behaviour that is damaging.

 

Question is; does it make sense to stop the gluten diet now, wait for improvement and not preform the test?

Should we resume eating gluten just prior to the testing? Will this still give correct and accurate results?

Continue feeding her gluten and wait for the doctors to become available?

 

Bear in mind that we have been on a Miralax dose twice the recommended for an adult and still suffer constipation and distended stomach.

 

I can only give you a non medical answer based on experience. I am sorry you see your child struggling. It must be hard. It is not unusual to have a 2 month space between appointment, testing, and endo scopy.

My timeline was in 2016. My first Dr allergist/immunologist in March 2016 had to rule out allergies environmental/food IgE allergies, she then sent me to a another immunologist/specialist with a team including gi. I didn't get in until May for my initial appt. In June I went to rheumatologist to check for AI's. My scopes were scheduled in October. I had to eat gluten two weeks prior. 

I had been gluten-free for a few years before as I suspected I had gluten intolerance , but was diagnosed IBS (symptoms only) since my early 20s. I know your daughter is a child, and she may have a different timeline, but I wanted to let you know many of us have 2 months plus before scopes. 

I do know having been off gluten it was really difficult to go back on gluten. My husband and children said later they knew from watching me that a gluten-free household was coming before the results were in.

It is hard to see your child in pain and struggling. I am glad to hear that they are moving forward to determine if your child is celiac. I wish you all luck.

Since I make all my gluten-free baked goods I am finding my usual flours are out at the manufacturer. Unable to reorder. I hope they will be back in stock soon. Also many of the fresh meat and foods I regularly eat from specific stores are not on shelf. I have to try frozen and packaged alternatives to fill in gaps.  I was cc last month from something that should be considered gluten-free food, but somehow must have been cc somewhere along the way. A bad rerun of my usual symptoms having gi issues, fatigue, myalgia, and hair falling out, so I know I was cc. 

Trying to maintain perspective, heal, and move past this cc incident. 

Good luck everyone. Stay safe.

Very interesting article. 

I'll be honest I don't think I ever recall having half moons on my fingernails. I now 4 years later after diagnosis I have half moons appearing on my thumbs only. My right thumb half moon is better than my left which is more sparse. I do wonder in time if I'll get half moons on the other fingernails. I do recall my diagnosing Dr looking at my fingers and nails during examination.

I have noticed if I get cc I get problems with my big toenails that I believe is not only b12, but possibly zinc absorption problems as well. Maybe just unique to me though. The strength and coloring doesn't improve until nail grows out even if I supplement . It interesting the color issues occurs on the big toes as numbing of big toes also occurs neuropathy wise if cc. 

In addition to foods listed above in your article. I find using chia seeds flax seeds, and psyllium husk in baking are also helpful for those who tolerate them. I also incorporate chia into water for drinking, smoothies, jams, and chia puddings as well . They are versatile seeds.

This is great news to help that (90 %)!!!!! Still too many unsuspecting people some of which are symptomatic but not textbook.

So many of the 90% don't experience the misdiagnosis' and tag along illness some of us have on this path to health and healing.

I am sorry for your negative experience Mr. Howe. Beyond frustrating . May you newlyweds have this negative experience fade as much as possible, and be replaced by more wonderful memories together.

best wishes