kathy1

thanks!

I was tested by a breath test this fall and Dx with bacterial overgrowth of the small intestines. I have had Gi problems myself even though it is my husb and son dx with celiac disease. I have always been told that I have IBS even though I do not have many of the symptoms. the Dr decided to run this test, which came back postive.Also tested me for Celiac which came back negative. They put me on Flaygl and I immediately felt better. Now as time has passed the symptoms have returned. I just havent made it back to the drs to investigate since I am dealing with other medical issues in the family right now.

Thanks for the info on the probotics.

I just called the Archway company to ask since my husb loves these cookies. The man in customer service knew imediately what I was talking about. It was nice that I didnt have to explain the whole celiac disease thing. Well he said that the coconut macaroons USED to be gluten-free, but they now contain wheat as the last ingrediant. he did say it was just a trace amt, but even that is too much.

They said they couldnt afford a dedicated line to remain gluten-free.

SAD!

I actually might have it at home. After a horribly disappointing meeting with a dietician, I received a package in the mail (maybe six months later) with some info. The title sounds familiar so I'll check on it for you. If I do, I'll let you know and I can send you a copy!

Thanks!

Your husband should definately take probiotics while on antibiotics. Everyone should do this but...like you...I had no idea what probiotics were and now I'm paying for it. Probiotics are "friendly bacteria" that will replace whats being killed off with antibiotics. The antibiotics dont only kill bad bacteria but good as well. Without the good bacteria bad things can happen.

Ok...so is this something I need a prescription for? or do I buy it over the counter? Which brands are gluten-free?

What doesage do you take and for how long?

I am trying to get my hands on the ADA's 6th edition of the manual of Clinical Dietetics .Particularly their revised Gluten Free Guidelines.

I believe this came out in 2000, not sure if there is anything more recent. I don't want the whole manual, just the gluten free guidelines and their website sells the entire manual for something like $100.

Anyone have any suggestions?

My husb will be a very happy man if this info is correct.

You say that goldschlager is gluten-free?

And disaronno also? He loves both of these.

My husb has been dx with H Pylori twice. once within the last year and once many years ago. He was Dx with a breath test.

What is Probiotics?? I have never heard of this before. My husb has been on and off of antibiodics ALOT recently. he is currently on his 4th run of cypro for his reoccuring prospate pain. This time they have him in it for 30 days.

Should my husb uroligist & GI talk?

HI, This is not my first grocery store break down. After an hour, my eyes start going funny and my head has enough. Hubby was with me today and it was helpful, but after a while I'd just had enough. I"d like to not to buy so much of Amy's frozen things and make some more of my own. I"m working on it, but it's hard at times. I"ve been making my own Buttermilk bread from the Gluten free book and that's been pretty yummy.

I agree with you, I think grocery shopping is very stressful. I make my husband come along too,as I need all the help I can get. And it takes soooo long to get thru the store. My husband has to remember to bring his reading glasses with him as we spend the whole time reading labels.

I am a busy working mom, my husb and I work different shifts, so I have to have some EASY meals to throw in the oven/microwave before we head off to a game, boy scouts, pta etc.

Campbell's select tomato with italian stuff and select Butternut squash. Progresso has clam chowder and Chicken cheese enchilada style (I know, it sure sounds like it would be off limits to us, but they are following the labeling law and I've read the ingredients twice.)

Campbells Chunky has Grilled Siroin steak and Honey Roasted ham.

Health choice has Chicken with Rice and Fiesta Chicken. Or you could make up a big batch of potato soup and freeze it in small containers to use up as you heal.

Annette

It is a great day when I can add mainstream products to my gluten-free list!

Thanks!

kathy, i have 3 girls just diagnosed recently diagnosed. we put them gluten free on jan.1 . 2 of my girls have had biopsies, one had the endo for reflux, the other had the endo because she had a positive blood test. both girls had negative biopsies, although one did havae one area of raised intrepithelial lymphocytes (SP?). my youngest daughter has not had a biopsy. the doc says that they probably do have damage because their tTg levels are raised.(even though he didn't see damage) i stayed in the room and watched the whole procedure when one of the girls had a biopsy----if you would like me to tell you about it, let me know.

christine

If you wouldnt mind explaining,,,,i would like to know what to expect. i dont know if the dr will even recommend the biopsy, but I think I would feel better with him having it. I just don't want to tramatize him at the same time.

thanks to everyone for your advise....you have provided me with much useful info. i have already requested a copy of my sons blood test results, so when I get them, I will pm kaitiusa or nina as suggested.

Thanks again

Thanks for the info. I am trying to comprehend so much in a short time, I am finding it overwhelming! We are trying make educated decisions for both my husb and my son. That is why I have so many questions.

I have to fully understand it before I can accept it and for me that means ruling out the other options.

I have already requested a copy of my sons test results. I will call my husb Dr and ask for his as well.

Is it "possible" to have the gene, and no symptoms of celiac disease, eat gluten food and never get any intestinal damage?

Thanks

was he being tested to see if he carried the gene, or was he being tested to see if he actually had celiac disease?

christine

I am not sure what blood tests my husb had in dec. Only that the Dr called and said he had celiac disease. Now he has had a normal biopsy.

He was tested only because his mother has it and since he was at the Gi for another issue, the Gi said lets rule it out.

Can I guess now that he does carry the gene only?

My son's report said that certain areas of villi were normal and others showed "severe villous atrophy consistent with Celiac Disease".

For what it's worth, my son's only symptom was anemia. You don't have to have the more obvious GI symptoms to have celiac disease. Also, I am sure that other posters will point out that just because you are symptom free on the outside doesn't mean you aren't doing damage on the inside. I tell people who ask about his lack of symptoms that it's like smoking: you can't see the damage it's doing, but it's there on the inside.

But the biopsy will show if there is any damage correct? If the biopsy comes back normal, then does that mean no damage and no signs of active celiac disease?

I understand that I should request a biopsy on my son. If it shows damage then he goes on a gluten-free diet.

What is it shows "normal". can he not go gluten-free?

sorry if I am repeating myself!!

My husb was dx in dec via a blood test.He has never had any symptoms of celiac disease. He had a biopsy last week and the Dr called today stating that the biopsy came back normal. the Dr then said that a gluten-free free diet was not necessary.The Dr stated that some people can carry the gene but never get the disease.

Any advise???

Caramel coloring in the U.S. is fine. In more than four years I've never found caramel coloring with gluten.

The same goes with the red and blue dyes -- the reason the research hasn't supported these dyes having gluten is because they don't

richard

thats great news! My MIL has celiac disease and states that the red and blue dyes, along with caramel coloring and MSG all contain gluten. Then I come here and find out that they don't. Then my husb and i get court marshalled when she discovers us eating something she thinks we shouldnt. I then am left to try and convince her that I am correct.!!

It makes learning about this even more difficult when you hear contrasting stories.

MY MONEY IS ON YOU GUYS!!

THANKS!

I'm curious why he was tested? Its not usually a routine test is it? Probably you would want to get a bioposy done.

My son was tested because my husb was just DX in dec. My mother in law has it also. So i decided it was best to have my son tested. Is a bioposy rough in a child?

this is what the info the doc's office gave me said---it is from gluten-free living 2002---

according to the FDA code of federal regulations(CFR), caramel color can be made from wheat. but US companies use corn because it makes a better product. wheat could be used to make caramel color outside the US, but it is reasonable to assume corn is more likely.christine

Do we assume that everything we buy in the us is manufactered here? What about food items made out of the us, does the FDA code still apply?How do you know where the food is coming from? Can I safely assume that anything I buy in the US with caramel coloring is fine?

This would be interesting to find out. anyone find the thread mentioned above?

my son was recently dx via blood test. (I dont know what kind). The pediatrician said that although he tested postive,since he has no symptoms, he does not need to go on the gluten-free diet.His said that it so hard to get kids to go along with the diet, it would be ok to skip it since he has no symptoms.

I have scheduled a consultation with a ped GI in a few weeks. I want to hear from a Dr that treats this disease in children. Do you have any suggestions on what questions I should ask the Ped GI? Should I request further testing? my son is 8 yrs old and has no symptoms.He is growing and thriving, in the 85th percentile growth wise.

I'm not sure what to expect from the ped GI, but I am hoping he will shed some more light on this.

I would be very interested to find out more about Food colorings as well. I have heard that some colorings contain gluten,red and blue particularly, but I have not been successful in my research to support this theory. I have heard others shoot down the caramel coloring theory, Things like coke and pepsi are gluten-free and I believe they have caramel coloring??

This is so funny because just last week a coworker was telling me about a new cookie recipe she tried. She is diabetic. While she was stating the ingrediants, I immediately thought these were gluten free. I will have to try them in my husband.

Thanks, There is an Aldi's near where I work. I never go there though. I think I will have to check them out.

I just went to Aldi's with my grandma. She shops there all the time. I found several products there in the frozen food section that clearly states "gluten free".

Can you tell us what the names of the gluten free products are that you bought?

I know I checked on 'hellava' products years ago over the phone, but it was so long ago, updated info would be a good idea. I remember the woman was very nice and knew what I was talking about. Some of their products were indeed gluten-free, but not all of them. Phone number on package? I'd be happy to make the inquiry again for everyone.

sorry not more help than that!

~Patti in NJ~

the phone number is 888-611-4341 , i just happen to have an empty container in the trash! The French Onion Dip states milk,cream,salt,dehrydrated onion; sugar;msg;parsley; spices;modified food starch; gelatin; potassium sotbate and enzyme. I'd be thrilled to know what you find out if you call.