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glutenboy

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Everything posted by glutenboy

  1. I just had my biopsy today and had the same experience. They gave me the demerol and versed and I was out until the recovery room; I remember nothing of the procedure itself. The rest of the afternoon post-procedure is somewhat hazy, but I do remember most of it. Frankly the most uncomfortable part was the procedure room was cold and I was wearing a skimpy...
  2. Interesting timing - I just got back from an appointment with a new GI doc. He recommended that I do the gluten challenge - I cringed and asked how long I'd need to eat gluten for (I've been gluten-free for 8 months or so now). He surprised me with "4 weeks". He said the biopsy examination is getting sensitive enough that you don't need the 3-6 months of...
  3. Sorry for the delay in the followup. I was moderately optimistic that I could find *something* there, and hoped that since the cooks are right there you could ask questions and get reasonable answers. However, my experience was not so good and I got glutened worse than I've let happen in months. (I say "let happen" because at this point I feel like I know...
  4. Has anyone eaten at Cinzetti's italian restaurant with good results? They have one north of Denver and apparently one in Kansas. I've eaten there before I was diagnosed and now have to go for a family function (not my choice where to go). I'm going either way and may just nibble on risotto or something, but would love to hear if someone managed to get a gluten...
  5. Definitely give it a go and make diet adjustments as needed. I did BFL for 9 months or so and got into fantastic shape despite my regular cheating on diet. I also did not take any supplements. I think the real key is the frequent smaller meals and the exercise program. I think the diet would not be sustainable over a long time (years), but I think stick close...
  6. I purchased Gluten Guard last week and thought I'd share my experience so far. I also purchased a PocketPC (Dell Axmin) and the SDIO bar code scanner at the same time. Please bear in mind that I'm a computer geek and a bit of gadget nut, so I might be willing to put more effort into these things than some people. The Axim: - Nice screen, 640x480 vs the...
  7. I use Sonne's #7 (bentonite) and #9 (psyllium fiber) when I get glutened. Helps to deal with the big D. Before I realized I had gluten issues, I actually used it a lot and decided I need to look into what's really wrong if I'm using that stuff daily. Now that I've read the ingredients (www.sonnes.com), I wonder if psyllium is gluten-free? I'm so paranoid...
  8. Oh, and thanks to everyone who posted alternatives. I'll check them out once I get my Enterolab results - at the very least I think I may be allergic/intolerant to corn and potatoes too.
  9. York finally got back to me. The woman on the phone was very nice, said they have had a lot of orders and are still waiting on test kits to come from England. She said they would call when the kit came in and shipped (guessed 1-2 weeks). I agree with Debbie, I don't necessarily mind that somethings take a little while to get in stock (we've all been spoiled...
  10. I've been trying to be gluten-free since last fall, with varying success. After Christmas I really cranked up my efforts and became more disciplined and careful about what I ate. Yet, I've still had a few very bad days. My current daily gluten-free meals incorporate rice, meat that I've cooked, and sometimes eggs. I do miss my snack foods though, which...
  11. Yikes - thanks for the feedback. I think I'll bug them for another week (I really do want the test), and then start looking into ways to get a refund.
  12. Has anyone gotten anything out York Labs in the past few weeks? I ordered the cdScan in December and haven't gotten it yet - they charged my CC the day of the order. This is the home testing kit, all they have to do is put it in a box and send it to me. I've called a few times over the past week and each time was told that the computers were down and they...
  13. I'll agree with this too. Even just being mostly gluten free for about 3 months, now every time I get any gluten (like malt vinegar in salad dressing), the results are pretty horrific.
  14. The celiac disease/gluten-free thing is new to me. I've had digestive issues of varying severity for a good 15 years, was diagnosed IBA about 6 years ago but never had any luck with it (doctors are pretty much useless, IMHO). This past year has been as bad as any and finally a few months ago someone suggested I try to go gluten-free and see if that helps...
  15. grantschoep, I live in Lafayette and am just beginning to come to terms with a gluten-free diet. Can you share what mexican and chinese restaurants in the area that you've had good experiences at? Thanks, Dave
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