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Mermaid's Mom

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Everything posted by Mermaid's Mom

  1. Mermaid's Mom
    My daughter had itchy eyes and redness from SIBO. We learned about her SIBO at the same time that I stumbled across the Nemechek Protocol for SIBO and it made such sense that we went straight to his protocol to resolve SIBO (which has no food restrictions or special diets) - so while I can't give you feedback on the diets I can tell you that the Nemechek...
  2. Mermaid's Mom
    You should research SIBO. It sounds identical to what you are describing and also has Gluten intolerance as a symptom. I put my daughter on the Nemechek protocol for SIBO a few months ago and all of those symptoms cleared up. I wrote and update about it on here not long ago. You should read it!
  3. Mermaid's Mom
    OH and it turns out that WORST thing for SIBO - the thing that causes it to grow out of control and make things worse in Probiotics!
  4. Mermaid's Mom
    Thanks!! I think about you often as well - you were such an "anchor" for me to cling to when I first landed here!
  5. Mermaid's Mom
    Hi Everyone. I haven't been on here much but some of you may remember me. I am just returning to give you our update. So what brought me here originally was that my daughter was textbook Gluten Ataxia and when we put her on a gluten-free/DF diet she improved so much. But like everyone else - she seemed to get "glutened" all the time and was...
  6. Mermaid's Mom
    Oh wow! I haven't been here in days because I have been POURING over the most recent SIBO literature! Have you heard of Dr Nemechek? Open Original Shared Link His approach is very simple and essentially you STOP using probiotics and start taking Inulin. It is all very fascinating and falling in with what we are seeing with our daughter. In...
  7. Mermaid's Mom
    You're right that area is gallbladder! Well we just saw the Naturopath - she was puzzled by the recurring stomach aches also but allows for the fact that it COULD just be healing - she did have that gluten exposure that I mentioned 2 weeks ago. But she decided to start her on a digestive enzyme. We shall see.
  8. Mermaid's Mom
    Thanks everyone!! I think I have noticed a pattern...she is in pain and it is resolved as soon as she has a bowel movement. I could be wrong but it appears to the be the case. Will keep an eye on it. The naturopath told us to "work towards" a grain free/Paleo diet and my daughter committed 100% and stripped away everything. But after 7 days she...
  9. Mermaid's Mom
    I am trying to tease out what is going on with my daughter: We went Gluten/Dairy Free March 1 and she steadily got better but looking back through the journal tummy aches were still randomly occurring on a semi reg basis. But she was improving so much that my focus was mainly on the improvements. Then we brought back dairy and it all went down...
  10. Mermaid's Mom
    But it is interesting to wonder about the WHY? Why are some of us more sensitive? Why can my son eat ALL THE WHEAT and still poop and math like a champ and my daughter was home sick today because she ate a Vegan, dairy free, nut free, soy free, animal cruelty free cupcake yesterday. It was stamped with ALL the FREES (except Gluten) and a mistake was made...
  11. Mermaid's Mom
    This statement: know there is an issue when you google and everything comes up with a blog or a site that SELLS you something. Is exactly what my Dr touched on when I spoke to her today. Worth noting the Naturopath isn't trying to sell me anything (other than the supplements we are already on) and really only advised that I put her on a Paleo diet...
  12. Mermaid's Mom
    I appreciate ALL your words of caution. Sometimes I forget that the internet doesn't *know* my personality and only calculates who I am based on what I type. After 3 years of being on this journey and countless "well that didn't work" therapies and medical opinions I really don't find myself jumping up and down yelling EUREKA! anymore when someone else...
  13. Mermaid's Mom
    We have never checked thyroid or homocysteine levels. My mother in law has thyroid issues and there was some speculation that I did as a child so it is VERY possible. It's been on my mind but with kids like this the temptation is to check everything! LOL I would run every thing known to man but I have to work around a kid who has been tested to DEATH so...
  14. Mermaid's Mom
    Going to the Dr today to get her B12 shot and find out next steps.
  15. Mermaid's Mom
    My understanding of this gene defect is that MANY people would test as having the gene defect. But not everyone would have any problems. The severity of the issues is the result of HOW damaged the gene is. So I could go in and test as having a MTHFR gene defect but my gene is still performing at 97% and who really cares. My daughter's however might...
  16. Mermaid's Mom
    Also - pulling a quote of yours over from the other post - you said: I just recently started giving him vitamin B12 (thank you posterboy for sharing info on this topic). Despite his bloodwork not showing B vitamin deficiency, that seems to be helping with those very minor lingering symptoms. Hoping that's not a placebo affect. And in fact my Naturopath...
  17. Mermaid's Mom
    artistsl I just read this post fresh out of being at the Naturopath and you should really research MTHFR gene deficiency. I started another post about it here yesterday but I am not sure is you saw it. Nevermind see that you are already there!
  18. Mermaid's Mom
    Who said I wasn't going to get the gene testing?? Right now she is on a Paleo diet and some supplements I am not exactly pushing the limits of science here or branching off into dark magic?? LOL!
  19. Mermaid's Mom
    sorry double post
  20. Mermaid's Mom
    I was LITERALLY just replying to your post on the Gluten Ataxia thread to suggest that you look into MTHFR!! The biggest thing that caught my eye is that you mentioned thyroid and MTHFR is a thyroid condition!!
  21. Mermaid's Mom
    Will do absolutely! She said my daughter needs to be wheat, barley, rye, oat, corn, rice, quinoa and dairy free. Do you still consume any of those?
  22. Mermaid's Mom
    You should REALLY start to investigate it again!
  23. Mermaid's Mom
    We saw a Naturopath today and I learned all about this and we are now currently treating my daughter for it. It was a LOT of info but I will give you the jist of what I understood (very over-simplified) from the meeting. I would love any additional info as well feel free to clear up anything I seemed to have misunderstood. For starters it was lovely...
  24. Mermaid's Mom
    Color me confused. I went to Costco yesterday and there were 2 products there that had GLUTEN FREE plastered on the box but then in the ingredients was a: May contain wheat. How is this possible? How can they still put gluten-free on the box? We should be able to trust gluten-free labeling no?? And second question: How many of you would still...
  25. Mermaid's Mom
    Oh I had heard his name and read some stuff about him but hadn't come across this video! Thanks!!
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