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Mermaid's Mom

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Everything posted by Mermaid's Mom

  1. Mermaid's Mom
    About 6 months ago we learned that my daughter is Iron deficient. She has eating issues and is not inclined to eat iron rich foods. We used a liquid iron supplement which tasted AWFUL and she struggled to drink some days. FINALLY we found the lucky iron fish! It is a cast iron fish and you can cook with and increase your iron more naturally. The recommended...
  2. Mermaid's Mom
    So 3+ weeks gluten-free. She is on B12 weekly injections, iron and magnesium supplements. She has ALWAYS run hot. Never - literally never cold. I noticed that she is now sleeping in socks and a hoodie. Every night. Now during the day she has more than a few times said she is freezing. Now I have ALWAYS been a freezing person. The only...
  3. Mermaid's Mom
    Thanks everyone. I continued to read up on it after I posted and determined that I truly do think she is low on S.A. Ironically I chose the Citrate FOR the purpose of aiding her with constipation but I really like the idea of alternating it with a different version. Will definitely look into the one you mentioned. I also think I will give smaller amounts...
  4. Mermaid's Mom
    So I have started my daughter on a magnesium citrate supplement. I also took a does the first night so I have an idea of its effects. (background info: about a month ago she started asking for tums about once a week close to bedtime for acid reflux) So the first night I noticed that it really bothered my stomach in the sense that it felt like I had a...
  5. Mermaid's Mom
    YAY for chocolate! I would be crushed to lose chocolate!! I am only here for my daughter and we are too new to the game to add anything yet but I am worried that once we get her sorted I will be too nervous to re-introduce any previous foods!
  6. Mermaid's Mom
    I am certainly not as educated as many on here regarding these issues but I am slowly learning... Having said that...from what understand Magnesium levels are hard to ascertain because it is stored in the bones. But a deficiency can cause fatigue. Also a lot of these issues cause insomnia and poor quality of sleep. Would you say that you sleep...
  7. Mermaid's Mom
    THANK YOU! For taking the time to give me your thoughts! I appreciate them all! Ironically we just took her off dairy this weekend as I felt she was reacting to it. I think when she dropped Gluten she inadvertently increased her dairy consumption (or maybe it just seemed that way?) When she was "glutened" the one time it flattened her for 3 days...
  8. Mermaid's Mom
    Thank you Posterboy! There is lots to process but I want to thank you for taking the time to share all that information! Much appreciated!
  9. Mermaid's Mom
    Thank you. I appreciate your perspective. Based on what I understand about the tests false negatives and the knowledge that we can't proceed with an endoscopy at this time I am going to proceed as if she is Celiac. Our Dr has been with us since the beginning. Knows all her issues and limitations and truly feels an elimination diet is our best diagnostic...
  10. Mermaid's Mom
    Thanks for those suggestions! I will look for those brands. We are already "homemade" fry snobs! LOL! I mostly cook everything from scratch - my kids turn up their noses at store bought cookies, cakes etc. We actually had a cousin here and that mom gave money for me to treat the kids to Wendy's (her sons fave spot) and I mistakenly thought I could be...
  11. Mermaid's Mom
    Our Dr is very supportive. In fact she said I will be recommending you go down this path for your daughter even if the results come back negative. So let's just do it anyway! There is more than Celiac going on. We are aware of that. I apologize if I don't give you the entire medical history but I assure you she has been seeing a Psychologist off and...
  12. Mermaid's Mom
    GFinDC - THANK YOU! I am not trying to be disagreeable. I am not trying to ruffle feathers or come across as "knowing better". I am just trying to do the best for my baby. She does have Sensory Processing disorder. She is orally defensive. Unless you have lived in those shoes you have no idea of what the limitations are. She can barely tolerate the...
  13. Mermaid's Mom
    I appreciate the importance of testing. I respect the fact that you all value that science. I am normally a person who values the same thing. Here is what you don't know : Something is poisoning my daughter. It has slowly been stealing her from me. It has now reached a critical point where we have been to a Neurologist to test for Cerebral Palsy...
  14. Mermaid's Mom
    My daughter is currently on the elimination diet. I REALLY want to tease out if she is gluten intolerant or celiac because I don't WANT to throw out all the cutting boards and toaster and knives if she isn't celiac...but I also don't want to keep USING them if she is just gluten intolerant. She is 2 weeks gluten-free and 7 days in knowingly ate a small...
  15. Mermaid's Mom
    1. Just wondering if Cellulose is problematic for anyone? I read that it is on the safe food list but I have heard that some celiacs can't eat it? 2. My daughter is new to all of this (only 2 weeks in) and we have eliminated Gluten, corn etc and are aiming to greatly reduce her dairy initially in case it is an issue also. I bought a choc almond milk...
  16. Mermaid's Mom
    Thank you!
  17. Mermaid's Mom
    LOVE the Newbie 101 document! One of the links is showing an error - the hidden sources of Gluten I think? Does anyone have an active link to that? Thanks!!
  18. Mermaid's Mom
    What do you mean...."2016 was my Gluten Challenge year"? Is that the year that you introduced Gluten back in? Does everyone do that?
  19. Mermaid's Mom
    Thank you!!!
  20. Mermaid's Mom
    Thank you! I was just coming back here to say that as soon as I walked away I realized that she also loves: Sour cream (a lot!) ice cream, frozen yogurt, milk shakes, cheese cake, cream cheese, alfredo sauce on and on...lol!! I really need to look into dairy alternatives! LOL!
  21. Mermaid's Mom
    This is great info! The only dairy she eats really is Parmesan ( I buy fresh grated) and old cheddar. She hates milk and could go without yogurt. The only other dairy (lactose) she would eat would be hidden in foods like mac n cheese sauce. She is quite happy to eat a homemade cheese sauce so maybe this is easier than I suspect!!
  22. Mermaid's Mom
    Oh Awesome! Thank you!!
  23. Mermaid's Mom
    I would love some of these recipes by the way! Do you mind sharing?
  24. Mermaid's Mom
    I am in Canada so there might be some difference in that regard - in terms of medical plans/health insurance? If that is what you are referring to? As well in school she is accommodated up the whazoo! LOL She is legally considered disabled (due to the SPD and dyspraxia) and although it is an invisible disability she is entitled to all the rights and privileges...
  25. Mermaid's Mom
    A formal diagnosis isn't important actually. In fact we just left the Drs office and declined the blood test. Our Dr says that 9/10 come back as negative even though the person has gluten intolerance. And it cost me $85 and it won't change the trajectory of what we need to do moving forward. So we opted out. My daughter is actually 100% on board...
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