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EenieNeNe

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Everything posted by EenieNeNe

  1. EenieNeNe
    I have itchy red bumps on my forearms ahat I have been wondering whether they are dermatitus herpetiformis or not, not sure how you can know thay for sure though.
  2. EenieNeNe
    My new doc said she will recheck my bloodwork after 3 months gluten free to see if my antibody count goes down. Janine
  3. EenieNeNe
    I know its frustrating to wait but it will be worth it to get some answers. Happy to offer support when/where I can. Janine
  4. EenieNeNe
    When I first started to read your post I had to look twice because I could have sworn it was me that had posted it. I am 59 and also have PCOS and Hashimotos and also just started having severe symptoms in the last year (severe gerd, fatigue, headaches, inflammation, brain fog, vertigo, constipation) after an extremely stressfull period at work. Although...
  5. EenieNeNe
    Ok thanks ?
  6. EenieNeNe
    Janinegrichards@gmail is there a list of ingredients you need to look for, trying to figure out what I can and cannot put in my coffee and already having a tough time. Normally I use a sugar free/lactose free creamer and vanilla flavoring. Janine
  7. EenieNeNe
    Well I went to a new gastro doc today that is covered by insurance and she said there is no reason to do the capsule endoscopy I should just go on the gluten free diet and see if my symptoms are reversed. So as of tomorrow I am going to go gluten free, very nervous about this prospect as I have no idea where to even begin. Going to check into a...
  8. EenieNeNe
    Ok this has me really worried, I take melatonin every night, I cant get any decent sleep without it ?
  9. EenieNeNe
    I found out today that the cost of the capsule endoscopy is $1977.00 unfortunately I was also told today that the doctors I had been seeing are not "in network" even though I checked Aetna's website and asked the doctors office before I scheduled my appointments. So now I am paying 40% of the three procedures instead of 20% and I really dont think I...
  10. EenieNeNe
    One thing the Colonoscopy did reveal was that I had a tortuous colon and that this caused issues doing the test, this was not something that was noted on any of my previous colonoscopies (the last one was 5 years ago). Unlike a lot of people with gluten intolerence or celiac I suffer from constipation rather than the other end of the spectrum. I am...
  11. EenieNeNe
    Thanks, I just appreciate having someone who can offer feedback. At this point I am debating whether I should do the pill test or not, worried it will be costly. May just do the gluten-free diet and see if I get relief or not, ultimately that is where I need to go anyhow. Janine
  12. EenieNeNe
    Had the colonoscopy and that came back normal as well so now I guess we do the pill camera. I sure can tell when I eat something that is heavy in gluten like bread, I get this burning sensation in my lower back that feels like my intestines are on fire and I just feel miserable ?
  13. EenieNeNe
    I get a burning sensation in my lower back that in the past I had attributed to my cysto-eurethritus <sp> but now I am not so sure. I definitely feel it the next day after I ingest a lot of gluten. I am still in the diagnosis stage for celiac so have not gone gluten free yet, I have had an endoscopy and a colonoscopy and now my doc wants to...
  14. EenieNeNe
    He did three but that is exactly what he said as well, that they can be patchy and thats why he wanted to do the colonoscopy to check the last section. He said if he cant confirm with that then we should consider the pill. I am due for a colonoscopy in the next 6 months anyhow so figured I might as well go that route, and my understanding is the pill procedure...
  15. EenieNeNe
    Sorry for the delay, but a lot going on lately. I had the biopsy done and they came back inconclusive but because I am also low in ferratin the doc is not convinced and now wants me to have a colonoscopy as well. In the meantime i had my appt with the endocrinologist and she is starting me on T3 as well as the Synthroid I was already on and asked...
  16. EenieNeNe
    Thanks I appreciate it, hoping this gives me answers to 100 or so questions I have had for several years now. Janine
  17. EenieNeNe
    My regular doctor told me I probably had Hashi's but wouldnt do or suggest anything more than increasing my thyroid meds every few months. It was a 3 month wait to see the Endo a friend recommended, the appt with the Endo was to work on Thyroid issues and will most likely have the full panel done then. In the meantime I started researching hashimotos...
  18. EenieNeNe
    Sorry, I missed one when I was typing it out: Transglutaminase IGA -0.5 (normal) I am really new to this and have no idea what marsh stage means but am pretty sure I have Hashimotos, I am seeing an Endocrinologist for that next month but decided I should test for this on advance. Nene
  19. EenieNeNe
    I am waiting for biopsy results but curious if this combination could mean anything else: Immunoglobulin A - 510 (high) Transglut IGG - 0.8 (normal) Gliadin IGA, deamidated - 2500 (very high) Gliadin IGG -1.5 (normal) Thanks, Nene
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