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acousticmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by acousticmom

  1. acousticmom
    You folks are awesome. Great ideas! Using long-handled serving utensils and different decorations around the gluten-free foods would help make the same-table-scenario work, as long as you don't mind sacrificing seconds and leftovers. (At our house, I mark all buffet leftovers with an "X" for possible cc, and the gluten-eaters eat them, so nothing goes...
  2. acousticmom
    I'm not sure where to post this, but I could use some advice from anyone who's helped organize buffets, etc. for public dining and have also managed to accomodate celiacs. Here's the situation: We now have 3 celiacs plus 1 gluten-intolerant person at our church. Given the increase in diagnoses lately (yay for the awareness efforts!!), I'm sure there will...
  3. acousticmom
    jerseyangel, Many thanks for posting the link. I haven't watched the show in a long time, but it seems to me this was quite a substantial segment, more in-depth than their format normally allows. Hooray! Carol
  4. acousticmom
    You might check with her doctor to see if there's anything that can help with the pain when she does get glutened. I know several prescription meds have been mentioned in past discussions; I don't know if any of them would be appropriate for an 11-month old, but her doctor might have suggestions if her pain is very bad. It's awfully hard to watch your kid...
  5. acousticmom
    Thanks, Richard. I didn't know that, so it helps with my decision. I should have known I was opening a can of worms (I know people on both sides of the fence myself). I agree that each individual ought to evaluate the pros and cons before deciding, and consider the sources of the information you use. Tiffany raised an important point: Anecdotal stories...
  6. acousticmom
    My 13-year old son had some mysterious stomach pain last month--3 episodes that were very painful, but different from how gluten feels. These he felt almost in his back. The doc gave him belladonna, which helped 2 of the three episodes. We never figured out what caused those episodes, but at the time almost every family around here had kids sick with...
  7. acousticmom
    RiceGuy, that's a good point. We're told that gluten has to contact the intestines to cause a reaction (i.e. we shouldn't have to worry about hair products), but there are so many unanswered questions about gluten intolerance, it wouldn't surprise me at all if we find other types of reactions at work as well. And yet, the logic I hear all the time from medical...
  8. acousticmom
    Wow--that's weird! I wish I could peek at the research findings 50 or 75 years in the future and see what they learn about gluten issues. In the meantime, I'm getting used to weirdness. What dog food do you use? Carol
  9. acousticmom
    When my 13-year old son gets glutened, he copes with the pain by pacing the circle route in our house. I can tell how bad it is by how fast he's walking. (Fortunately, NuLev usually helps with the pain, otherwise he'd wear ruts in the floor!) His pacing route takes him past the regular toaster (quarrantined on its own table) and the bathroom. This morning...
  10. acousticmom
    Since the new labeling laws took effect last January, companies are supposed to list if milk is in any obscure ingredients. Sometimes you'll see "Contains Milk" at the bottom of the ingredients list, but not always. Unfortunately, there are lots more names than just casein. Jenvan posted a helpful list on this board a while ago. Here's the address: Open Original...
  11. acousticmom
    Intolerances can be quantity-related. If you think yours are, I'd suggest being really systematic--cut them all out, then add one in a very small quantity, then try a little more of the same thing, and then a little more. Find out how much is okay. Then take it back out until you're done going through all of the suspect foods the same way. I've read that...
  12. acousticmom
    I've done both types of elimination diet--the kinder version, where you cut out one suspect food group at a time, and the brutal version of cutting out all but a handful of foods. The kinder version is a bit of a gamble, because if the kids have multiple sensitivities, you may or may not see much of a difference. The brutal version at least gets you back...
  13. acousticmom
    For a couple of years before going gluten-free I slept every afternoon, was chilled to the bone (especially when I was most tired), weak, and always felt like I was coming down with the flu. Naps helped, but nothing really made it go away. When I went gluten-free it helped my other symptoms, but I still got that extreme tiredness many days and couldn't work...
  14. acousticmom
    Sorry, queenofhearts, I missed your question earlier. She used to have scary dreams and occasional night terrors, but not so much now. The good thing is, she's a problem-solver, even at 10. So if she knows that being overtired can make it worse, she tries to get to bed earlier. I think anxiety is connected somehow. Even though she's generally bright, outgoing...
  15. acousticmom
    I like the approach outlined in Food Allergies and Food Intolerances by Jonathan Brostoff, MD. He recommends doing your detective work in stages, to avoid being over-strict with your diet unless you really need to do that. The first stage is what he calls a healthy-eating diet, which eliminates the common foods and beverages that can have drug-like effects...
  16. acousticmom
    That's awesome! Now you're reaching the kind of people who wouldn't think to look at this site, because they've never heard of gluten, let alone celiac. Whether we're participating in other symptom-related forums or meeting bloggers who share whatever symptoms we had pre-diagnosis, it's the mindset of trying to help other people that makes it work. And...
  17. acousticmom
    There are variations on the vision disturbances. Sometimes people's heads will look really small, or your hand might look stretched out and thin or your arm very large or your feet very distant--your own personal house of mirrors. Yes, I've read that Lewis Carroll definitely suffered from migraines, and the book was probably a reflection of his auras...
  18. acousticmom
    My 10-year old daughter, who had negative bloodwork this spring, has had this weird thing called Alice in Wonderland Syndrome (AIWS) in the past. Her vision gets all weird--things look either very large or very small, and she can't make it go back to normal. It lasts up to 10 minutes or so, but Tylenol seems to make it go away faster. (We tried this because...
  19. acousticmom
    That's what I'm talking about--joining the conversations that are "out there" (especially if they're not all that accurate) and offering links and info where they might be helpful. So many people network through blogs & myspace sites, the ripple effect can be incredible. Which is why blogs are touted as such a powerful marketing tool these days. It...
  20. acousticmom
    I've been listening to The World Is Flat by Thomas Friedman. It's basically about globalization and how it's changing everything for individuals and corporations. (How can I possibly summarize a book that takes 19 hours to listen to? I'm only one-third of the way into it, but it's still very insightful.) Now, it's obvious that the Internet is changing...
  21. acousticmom
    Last month, my 13-year old son went to church camp (Lake Ann Camp, northern Michigan), and I spent tons of time beforehand communicating with the camp chef about the menus, providing him the info he'd need, figuring out what we had to bring for my son to eat similar foods to the rest of the kids, and then pre-cooking and packaging it all. It was a lot of...
  22. acousticmom
    flxmanning & Chelsea-- Good luck with your culinary careers! If you do decide to specialize, I really think the demand for gluten-free foods is going to skyrocket. One article I read said that the number of diagnoses is doubling every year. But if the media picks up on it, diagnoses will increase much faster. You're ahead of the bubble. Anyway...
  23. acousticmom
    Please keep us posted on your progress! Carol
  24. acousticmom
    Thanks, Vincent. That helps. Cute kid you got there!! Carol
  25. acousticmom
    Thanks! I think Enterolab testing may be our solution, but I do want to check on their accuracy rate, since I've heard some concerns regarding this type of testing in general. Three slices of bread a day--yikes! We haven't had gene testing yet, but my own suspicions make me uncomfortable with that idea. Does anybody know where this estimate comes from...
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