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Chap

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  1. I was reading some stats about the average length of time that it takes for the docs to sometimes figure out the correct diagnosis for Celiac Disease. I was wondering how long it took for those who had it for 20 years or more (particularly the fatigue/brain fog) to begin to feel a bit of relief after going gluten-free? And, are there other things that can...
  2. There seems to be a lot of emphasis on "ethnic groups", such as irish or European descent in regards to Celiac Disease. I'm a bit new at this (three week into my research, and awaiting test results). But from my readings so far, the newer research materials indicate that older studies may be flawed. What I'm getting is that newer research shows that Celiac...
  3. Vydorscope; I'm new at this, so my input is just from recent research/reading. I haven't even been diagnosed; I'm waiting on my test result to return, and I will see my Rheumatologist in three weeks. I may not even have Celiac. However, your question is interesting. I read a doctor's report on the web, and he said that a slice of bread contains about...
  4. Hi, I was wondering if anyone, through their research has come across literature where a large majority of the family is affected by Celiac? I know the stats: 10 to 20 percent, but I read a couple of articles where practically EVERYONE in the family has celiac disease. Has anyone else read any articles like this? If so, please give me the websites...
  5. Hi Nettie; Yes, my doc (Rheumy) has ordered the three tests that I think is considered the "Celiac Panel" - The IgG, IgA, and the Anti-emdomyial, I think it's called. The results will be back in three weeks. Oh, and she told me not to change my diet, or anything else until I see her in three weeks. I wondered why, did a bit of research, and I found...
  6. Thanks for the replies, (Nancy and Nettie). Especially about my having found a very good Rheumatologist. That was my feeling also. Even if she isn't able to pinpoint my problem, at least I feel I've gotten a good shot at it by someone who tried their best, and is extremely knowledgeable in what she does. I've seen at least 20 - 30 docs in my lifetime...
  7. Hi, I saw my PCP in November 2005, complaining of debilitating fatigue. He ran blood test (only a partial) for Lupus or other connective tissue disorder. He called me two days later and said that he thinks he's found the reason for my extreme fatigue. My test results were as follows: 1. ANA (Anti-Nuclear Anti-Bodies) 1:160 - the norm is 1:40 ...
  8. To: Iamn, Dingo Girl, DonnaD. CMCC, and PokerPrincess; You guys, your stories are too amazing to be true! I am awaiting my test results from my Rheumatologist, and will get them back in 5 weeks. I don't personally know any of you, but I am sooooo happy that you have found a remedy to your chronic illnesses. Chronic Illnesses (for which you have no...
  9. Ianm; I was reading your reply (above), and you said that you've had brain fog for 36 years? I would like to know more about your condition, i.e., how long before you got diagnosed, missed-diagnosises, how long did it take for you to notice ANY improvement after diagnosis, etc. My doc suspects that I've had Celiac for about 32 years; I'm 56 and retired...
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