trents

Many of your symptoms are classic celiac symptoms. Your history is complex and timing with respect to periods of being gluten free and being tested for celiac is critical. Also, it is unfortunate that no biopsy was done when the upper...

This is not abnormal at all, Mary. I get almost exactly the same reaction as you do when I have an accidental ingestion of gluten to any extent. Before my diagnosis 23 years ago, when I was consuming gluten daily, my symptoms were very...

Welcome to the forum community @tummytroubles777!
Your symptoms scream either celiac disease or NCGS (Non Celiac Gluten Sensitivity).
You may very well be IGA deficient. Physicians should always order a test for total...

Welcome to the forum community, @Mrami023! Your experience is very common. Many people don't get tested for celiac disease until after they have started eating gluten free or at least started cutting back on gluten. They don't necessarily...

Yes, the yeast could have been cultured on a wheat substrate. But another batch may use a yeast extract cultured on something else that did not contain gluten. These food companies will switch suppliers according to what is the cheapest...

I certainly would not conclude that you are in the clear. There is a big question mark about whether or not you are consuming enough gluten to render valid test results. In addition, you have a family history of celiac disease, you have...

Welcome to the forum community, @Georgiajafa!
Yes, we do have anecdotal reports on the forum of those with celiac disease who seem to go into remission for a period of time. My observation is that most of these cases are with...

Welcome to the forum, @EmilyZ! Yes, it does get better. In time you will develop a sixth sense of what you should avoid and you won't have to think so much about it. 
Are you getting good support and understanding from family ...

You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody ...

The DGP-IGP is a secondary test used for detecting celiac disease and is not as reliable as a diagnostic tool as the tTG-IGA and the EMA. But it is still used and is still valuable, especially in pediatric cases or situations where other...

Welcome to the forum community, @mycarson210!
Quite a story! Have any of your three children been tested for celiac disease? A couple of more recent and larger familial studies found that well over 40% of the first degree relatives...

I would use some kind of brush and soapy water to get down into the valleys just to make sure. 

No, it is not okay to begin a gluten free diet that far out from the endoscopy/biopsy. Doing so will likely compromise the results and could put you in a conflicted situation between blood test results and biopsy results. However, you...

Welcome to the forum, @Denise I!
Gluten is a specific protein found only in three grains: wheat, barley and rye. Some people who are gluten intolerant may also be soy intolerant. There is also the problem that many "seed" products...

You may be experiencing gluten withdrawal. It is a well-known fact that gluten has addictive qualities similar to opioids and some people have pronounced withdrawal symptoms when going gluten free. You may also be suffering from nutritional...

Yes. And the gluten challenge protocol has of late been revised to reflect the need for more intense exposure to gluten during the challenge period because medical professionals have come to realize the former protocol was to lax and...

Welcome to the forum, @emilyyy!
Countless contributors to this forum have found themselves in the same conundrum as you.
But I think you have your answer. Your greater well-being since instituting a gluten free diet is...

Like knitty kitty, I also wonder if you were restricting gluten intake before the antibody blood tests. 

Yes, that's it. If your score was 10x normal you would likely be declared as a celiac without further diagnostics. Since it is not, you will likely be recommended for an endoscopy with biopsy to check for damage to the small bowel villous...

A false positive is possible but the EGA is not as sensitive a test as the tTG-IGA. It is normal with celiac disease to have some positive and some negative blood antibody test scores. And it is possible that you will show negative on...

Yes. You are breathing wheat dust which gets trapped in your mucous and travels down to your gut. Lack of symptoms does not guarantee that no inflammation is happening in the gut. Besides, you may be one of a small percentage or celiacs...

Welcome to the forum @Vera W!
Both your bloodwork and your biopsy are positive for celiac disease. Of note is that your immunoglobulin A (IgA), what we often call "total IGA" is low. This one is not a celiac antibody test per...

The onset of celiac disease can happen at any stage of life. Before onset you will possess the genetic potential but all other tests will be negative.

Just make sure all your vitamin and mineral supplements are gluten free. Costco is a great place to get many of them. Their Nature Made and Kirkland Signature brands are generally gluten free and will say so on the bottle/package if they...

Your platelet count is higher than normal but not way higher. I would keep an eye on it and see if it continues to climb.