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miamia

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Everything posted by miamia

  1. miamia
    Birdy' are you the one taking prescription digestive enzymes? If so what are they
  2. miamia
    Carla- when you do epsom salt baths do you put in just epsom salts or do you do baking soda too?
  3. miamia
    Andrea- I was worried about you, you ahve not been posting as much. I am so sorry to hear you are not feeling well. Hopefully the new testing will shed some light on whats going on. I hope you are feeling better. Rachel- Congrats on the coffee!!!!!!!!! Julie- I did send you a PM the other day. I will probably send you another one though Oh Foot...
  4. miamia
    Carla- thanks for the advice. I am not sure what to do. I emailed my doc and he got back to me. He said if i absolutley need to stop I could til the end of this week and then we would talk. What were your worst symptoms when you were on the levaquin? I have to start doing my epsom salt baths again. I did have a foot bath yesturday and slept with lots...
  5. miamia
    Ok I am in a bit of a quandry. I have had an unbelievably hard AGONIZING few days- still now it is hard to even type, I think the levaquin might really be too much for my body. I ahve been on it for like a month and a half. Yesturday after i took it I felt very strongly like that was it and i had to stop . It just cannot be ok for me to feel this bad. The...
  6. miamia
    Rachel- I need a shower filter. I do have a bath ball. Its easy I put it on the faucet and just run the water through it, what do you mean about the 2 minute thing?
  7. miamia
    Oh jersey angel- you are an angel-it worked. Phew.... How are ou. I love your new picture
  8. miamia
    Is everyone else having this new board format? It is really confusing and annoying!!!!!!!!it makes reading the posts so much harder in less there is something i am not getting
  9. miamia
    I did and do get nauseu from it. I refuse to take any acid blocker ever again so don't worry we can tough it out together!!!! Miamia
  10. miamia
    for those of you taking charcoal- when do you take it? Is there anything you should not take it near? So you tak eit everyday or just when certain symptoms appear?
  11. miamia
    julie what brand do you use
  12. miamia
    Julie- what is the charcoal doing for you- I have been thiking about it but am hesitant to try one more thing but your response is making me wonder--tell me
  13. miamia
    Good because I don't have enough money to fly to california and hunt you down if you every try to leave!!!
  14. miamia
    yes i am super careful about products i use. I always figure with food i have to be so careful and i still risk reaction there is no point in doing that with products where I don't even get the benefits of yumminess.
  15. miamia
    Kassandra- this is the test my doctor has wanted me to do for a while iIve read about it sounds so amazing , but they don't do it in NY state for some reason. I finallly found someone to order it for me through my doc but it is so expensive. Now I am considering doing it but you are not supposed to be on antibiotics when you do it and i don't want...
  16. miamia
    i think i need to clean under my bed because i have been sleeping really bad- maybe thats thekey. It seems like all of a sudden at night i get really nervous it doesn't seem normal- more chemical its really weird. Where has Rachel been? Its been awhile Donna- i don't have anything exciting to say to you but i just haven't said hi to you in a while...
  17. miamia
    kassandra- what stool test did you have done? was it genovas or a different one? it sounds really in depth. Miamia when i am gonna get to meet a fellow rachiellvillian?
  18. miamia
    thanks for everyone chiming in on the BR issue I know i don't go enough right now. It really seems to be one of my main problems and the antibiotics are making it worse!! Ok so i had a doc appt. yesturday - I will continue on the levaquin for another 2 weeks that will make it 6 weeks in total and then we will evaluate it he would love for me to be able...
  19. miamia
    Sorry its been a while since i posted- Julie- Thank you so much for the updates on your appt. and protocol. I am so happy you found someone you feel comfortable with!! I am so glad you are gonna start on a treatment plan. I cannot wait to hear how it goes. Rachel- Geez. you and the new found i am very jealous, but so so happy for you!!! A Big Mac...
  20. miamia
    Carla- great news!!! How long were you on levaquin for?
  21. miamia
    thanks for the feedback on the colonoscopy- I will definitly be looking into the osmo- prep I do not do well with drinking stuff!!!! I think i managed to schedule my appts. The sonogram i can get done next week but I ahve to wait til feb. 1st to get the colonoscopy and endoscopy. I'd rather not wait but i can't afford it if its not covered. I ahve had...
  22. miamia
    hey everyone- Ok I'm due for a quick update- still doing levaquin. Still kicking my butt- thought i was haveing alittle bit of a break but the last 2 days have been so rough. My doctor and i talked and I am going to go in for a series of tests to try to see if we can get some insight into what is so off in my digestive system. A sonogram of my abdomen...
  23. miamia
    Kassandra- we have matching C D 57 scores- I guess I have to give up my title as lowest scorer- well we get to share the honor. Miamia
  24. miamia
    Rachel- I have met some really cool people in my iv room. Some have lyme some metals its actually been a good way to gain more info. Carla- Thanks for the feed back on the levaquin. What dose did you take of it? Jin thanks for your pm you are such a sweetheart.
  25. miamia
    hope everyone is ok with the weather issues!!! Just to ring in about probiotics I take metagenics- ultrafloraIB . Its expensive but has more organisms than most(except VSL) and it seems to be the only one i can handle. I am still having a tough time I had gone up to a full levaquin but now am going back down to half. Last night the flu like symptoms...
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