Electra375

It sounds like you need to heal your gut. It takes time. I didn't see, are you dairy free? A good portion of Celiacs go Dairy free in the beginning (both short term and long term). Sugar can irritate the gut. I hear good things about the Specific Carbohydrate Diet. I've never had a negative feeling about Celiac. I could not allow my children to experience...

Well, gluten causes nerological problems and I dare say you are one of the ones affected by gluten in that way. Being gluten-free and learning to live comfortably without feeling gross is well worth it IMO. Feeling better 99% of the time or 99.9% of the time should entice anyone to move over and accept the risk of CC. If you are careful, CC is less of...

Maybe your thyroid has decided to give out on you??? Or your pitutitary glands??? I haven't noticed any of those kinds of changes, but I'm 6 mo PP. Have had very HEAVY bleeding (as in can't leave the house with a super plus tampon and pad on). I have hypothyroidism, but when I say that I have to clarify the endo turned me away, my GYN gave me a script...

I supply my child's food, end of discussion. This child is not permitted to eat anything unless I bring it for the child. My ILs are so stupid, I would not trust them. My MIL is not capable of understanding. My ds has been df since birth and he would get 'worse' diarhea and I'd ask what he ate with them. Answer "mashed potatos" Did you make those with...

Dr Fasano (Univ of MD Celiac Center) said this to me - The biopsy is what we show teens so they will understand they CAN NOT eat gluten. If they do, they will likely be Type I diabetic in their late 20s early 30s. Type I - insulin dependent, non-reversible, limb threatening, life threatening Having known a few type Is who either could not get a handle...

I find the rice and tapioc products shoot my glycemic index up too quickly and I feel blah yuck. It may just be a sugar thing and not a rice thing. I can eat a product like this w a protein, but not butter, jelly, or plain.

Very nice. BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos...

Open Original Shared Link Open Original Shared Link Open Original Shared Link I like Sansgluten b/c they have shirts that have the Definition of Celiac. My older child likes SillyYaks b/c the purple Yak is cute. I found glutenfreekids b/c for my baby it is simple, straight forward and list out what gluten is. I have for my older child a button ...

I thought I'd share how I plan on alerting care givers at our church's nursery. I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design) NO GLUTEN NO WHEAT NO BARLEY NO RYE NO OATS I never leave any message on my children...

Please take your kids to a Pedi GI knowledgable in Celiacs if possible. The more dx kids the more celiac disease gets IT on the radar of regular pedis and docs. I was unfortunate enough to have my 2nd child go undx for his first 3 1/2 years of his life, he lived in stomach pain. I knew something was wrong, I went to a lot of doctors, I have his records...

I think some do go through detox, it depends on your level of gluten eating before combined with level of sugar, I found a lot of the gluten products I ate were far higher in sugar than they should ever have been. I get headaches from sugar withdrawl more than gluten withdrawl. I crave chocolate like crazy the first few weeks into gluten-free (I've gone...

When our then 3 1/2 yr old son was dx w celiac disease he was not eating much, his stomach hurt, his legs hurt, lets face it he just plain hurt all over. His favorite foods were fruits and veggies, still are. I went and bought raspberries for him (dh said not to think twice about the money). He did not like the gluten-free substitutes for some time, not...

Foods can aggrevate sinuses, like a seasonal allergy. Dairy is numero uno in that department. Also my littles get sinus and coughs etc when they ingest gluten.

Remain on gluten until the biospy, lots of it, especially in smaller children as they heal quickly and begin healing between meals of gluten. Are they sure your son's IBS is not Celiacs? Or possible Gluten Intolerance? I always wonder about that now that I know about celiac disease.

I need a bit of clarification - your 3 1/2 yr old was on a mostly gluten-free diet when you had him tested? That might be the only reason they came back negative. Are his symptoms only when he eats gluten? If you need a medical dx, then I would suggest having him eat gluten (lots daily) and retesting. Consult the pedi GI first b/c the length of time varies...