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UPDATE on my grandfather...
my mom corrected me, he's 88 not 87.
Also, she forgot to tell me that he's TALKING. Not much, but talking. I had no idea. A couple weeks ago, some family was there and were leaving. His cousin said, "I'll be back in 2 days" he said, "I'll be here". His son said said, "I'll be back to see you soon" he said, "I'll be here." His daughter-in-law (who's a doom and gloom person he doesn't like) said "I'll be back later dad!" he said, "bye!"
His humor is not lost on me.
His wife has been telling him exactly what's going on since the beginning. She told him about the meeting with the doctors and said, "we're going to prove them wrong, aren't we" he said, "yes". He also has decent use of his right hand. He's just not consistent.
The doctors don't think he's cognitively there, though he obviously is. I think they're writing him off because he's old. He's going to stay in the rehab he's in for about another month, and then his wife is taking him home. It's a massive undertaking, but she refuses to send him off to die in a nursing home. She's a good 30 years younger than him and is in it for the long haul. My mom's moving down there and she'll go help his wife out to give her time off.
Thanks for all the prayers and encouragement
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I used to wrap the flour ones in a wet paper towel and nuke 'em. I guess that won't work??? Thanks for the tip!!
Yes it will, that's how I heat mine! Very little water though, just barely damp...
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I made pamelas bread the day I went gluten-free and threw it away, because it tasted like slimy hummus. Should have learned my lesson. I ate a cookie, once, too. But soon after going gluten-free.
Aren't they made in a dedicated facility?
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So I made my weekly pizza, only this time I used Pamela's bread mix instead of the chebe mix I normally use.
I did nothing different other wise, same sauce, spices, cheese, pans, parchment. I used the mix and packet of fleishman's rapid rise yeast. I have a policy of not using the yeast in mixes, since I don't know how old it is.
Anybody know anything about this yeast? I don't have a problem with yeast otherwise.
And it's definitely a glutening.
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Oh! I thought of something else! We were originally going to do this but changed venue and had to make it earlier in the evening.
You could have your ceremony at say, 8pm, and then have a dessert reception. Tables full of cakes, cheesecakes, truffles, fruit, maybe a chocolate fountain, an ice cream bar...the possibilities are endless! and decadent! Have some wine and chamagne and call it a party!
Advantages to this are: 1: this reception type is way cheaper than dinner, and very chic 2: It would be easy to seperate gluten-free food from gluten food, just have them on seperate tables. Since most things are purchased packaged, cc isn't as big of an issue as say, a special meal having to be prepped for you in a busy caterer's kitchen
Just a thought
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I posted this one back in February. Cheap, easy, and tastes good!
Greek Rice (has nothing to do with greece, just a family recipe)
1 lb ground beef (I suppose turkey would work, too)
2 c. chicken broth (I usually use boullion and make it strong)
1 c. rice
1 tbsp margarine or oil
Serve with:Applesauce
Put rice and oil/margarine into a large saucepan (we use a wok, actually
) and saute over medium high heat (like you're cooking rice a roni) until lightly toasted. Add chicken broth and bring up to a boil. Once boiling, break apart the raw hamburger and drop the pieces into the pan. Cover and cook over low heat until all the broth is absorbed. Fluff with a fork and serve with applesauce!
The applesauce sounds strange but it's really good, I know I mix the applesauce right into the rice on the plate
It is so comforting, and only takes like, 30 mins. YUMMY! I need to make some soon!
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1. how long have you had celiac? Coming up on 4 years, after a bad bout of mono
2. At what age were you diagnosed? 22
3. what foods do you miss out on? French bread, hidden valley ranch dressing
4. How much does it cost to stay gluten free? A lot. I don't buy much replacement stuff, but there is so much trial and error involved, because a lot of it is stryofoam or cardboard.
5. Do you ever wish that you didn't have celiac? I'd make life easier, but at least I know what's wrong.
6. Does the food taste better or worse or the same as ordinary food? The same. Other than baked stuff, I make all the same stuff I did before. I cooked 95% gluten-free and didn't even know it!
7. Have you ever eaten gluten without knowing it then suffered for it? Too often. I'm still a "baby celiac"
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Yeah, I saw them on a gluten-free list recently, so I was surprised when they weren't on the website...
I've eaten them. They did, however, make me sick, but I don't know if it was gluten or if my body just didn't like the oil in them. Or the potatoes themselves bothered me, who knows anymore
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Open Original Shared Link
That's their list. I didn't see tater tots, though I tend to be "tot blind" I've missed them on lists before
GLUTEN FREE PRODUCTS
If you suffer from celiac disease (gluten intolerance) you will be pleased to know that the Ore-Ida® Brand offers a wide variety of products that are gluten-free.
Hash Browns
UPC CODE:
Ore-Ida® Southern Style Hash Browns (32 oz.)
1312000392
Ore-Ida® Potatoes O'Brien (28 oz.)
1312000469
Ore-Ida® Country Style Hashbrowns (30 oz.)
1312000833
Ore-Ida® Country Style Hashbrowns (6 lb.)
1312000862
Ore-Ida® 9 count Golden Patties® (20.25 oz.)
1312000080
The Classics
Ore-Ida® Golden Fries® (32 oz.)
1312000258
Ore-Ida® Golden Fries® (5 lb.)
1312000278
Ore-Ida® Golden Crinkles® (32 oz.)
1312000286
Ore-Ida® Golden Crinkles® (5 lb.)
1312000291
Ore-Ida® Potato Wedges with Skins (24 oz.)
1312001012
Ore-Ida® Shoestrings® (28 oz.)
1312000828
Ore-Ida® Golden Crinkles® (8 lb.) (Costco only)
1312008564
Ore-Ida® Golden Crinkles® (8 lb.) (Sam’s only)
1312008572
Extra Crispy
Ore-Ida® Extra Crispy Fast Food FriesTM (26 oz.)
1312001417
Fun Shapes
Ore-Ida® Pixie Crinkles® (26 oz.)
1312000296
Ore-Ida® Cottage Fries (32 oz.)
1312000377
Seasoned
Ore-Ida® French Fries (8 lb.) (Sam’s Club only)
1312000647
* Please note that recipes and processes can change from time to time. Therefore, we recommend that you always check the ingredient statement on the label
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Here's their Celiac statement - impressive!
"Notes about wheat allergies and celiac disease
Celiac disease and wheat allergies are two distinct conditions. Celiac disease, or celiac sprue, is a permanent adverse reaction to gluten. Those with celiac disease will not lose their sensitivity to this substance. This disease requires a lifelong restriction of gluten.
The major grains that contain gluten are wheat, rye, oats, and barley. People with celiac disease must strictly avoid these grains and their by-products.
Wheat-allergic people have an IgE-mediated response to wheat protein. These individuals must only avoid wheat. Most wheat-allergic children outgrow the allergy.
Johnny Rockets products feature ingredients which may contain wheat flour and/or gluten. If your condition is life threatening then it may be in your best interest to avoid our restaurant due to the possible, however extremely unlikely, event that residue from contraindicated products may come in contact with those considered "safe." We are in contact with the Celiac Disease Foundation as well as the Celiac Sprue Association in order to obtain more information."
Open Original Shared Link
They've got a bunch of other allergy info on there, also!
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I just re-read what I posted to tiff earlier......I told her to step away for a while and leave it alone. I hope she knows I was talking about that particular thread and not the board in general
After re-reading I see that it could have been taken that way. I didn't mean to make her think that she should leave the group or anything!
I was pm-ing her through the "incident", and I'm pretty sure she'll be back to the boards. She just was upset and stepping away from the thread for a while.
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CONGRATULATIONS!!!
Now that THAT is out of the way!
I wasn't gluten-free at my wedding, but a lot of our food was naturally that way. We did a heavy hors d'oevure buffet for ours. I let the restaurant just put out whatever they wanted, because I'd done many banquets with them before and trusted them. We had salad, shrimp, marinated vegetables, mushrooms, fresh fruit, deviled eggs, etc. There were a few bread things, I think, but to be honest, I don't really remember!
One option is to go ethnic! Mexican food is gluten-free, by and large, and what isn't could be easily adapted. Indian and asian food is easy to make gluten-free as well.
My advice would be to keep the meal totally gluten-free. The last thing you want to worry about is being glutened on your wedding day!
The only thing I might do not gluten-free is the cake. Have a little cake for you and your groom and have the big cake for everyone else. Or do a cupcake cake with one layer made of gluten-free cupcakes. To be honest, the best reason to do that is it's cheaper!
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Hi Tiffany--I'm so sorry you're going through all of this right now! I know exactly how you feel--I am a very sensitive person--on a good day. Add gluten *and* a situation like the one you had with your truck, and I would be reacting the same way! Really--I understand taking things to heart that way. The gluten makes it even worse because, for me at least, it brings back the depressed and anxious feelings for a few days. The only advice I can offer is what I would tell myself--try to relax and not think about it. (easier said than done, I know!) Focus on other things--even mundane everyday things that need to be taken care of. After a time, you'll be able to look back and see the whole thing without getting so emotional. I think we are kindred spirits--sending a hug to you
Ditto to that. Getting emotional for no reason is about the 3rd symptom I have of glutening. Brain fog, face goes numb, and then I get depressed.
And I'm overly sensitive on a good day!!!
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In the case of Celiacs, at least, the nails don't grow well because of vitamin deficiencies. Spiltting, cracking, peeling, dents, and ridges can all be blamed on vitamin deficiencies.
Here's a website that explains:
Open Original Shared Link
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I got a call from my mom last night. My 87 year old grandfather, who had valve replacement surgery the day after I went gluten-free, so 2/3 I guess, is not doing well. He had a lot of plaque in his aorta and had a bunch of teeny strokes from micro bits of plaque that got loose. He is still cognitively there, because he responds to and recognizes family, starting to get his vision back, and is trying to talk. He's breathing on his own. He answers questions with blinking and some nodding. All four limbs are at least slightly responsive.
Well, the whole medical team looked him over and had a meeting with his wife (my step-grandmother). They said that he has a less than 1% chance of going home again. Basically, it's off to the vegetable patch to wait to die. Aside from the fact that it's generally awful, he was FINE before surgery. It was a huge risk, but without it he would have had less than a year. Now he is stuck in a body he can't use, and he was so active before. He was an 35 year old stuck in an 87 year old body. He walked me down the aisle at my wedding. Now, it's like he has ALS, and progressed to the end stages in a day.
So I'm beside myself with that. He's our rock, you know? The patriarch.
In other news...
I've been gluten-free almost 3 months, and you know what? I don't really feel better. The D has subsided somewhat, but I still have pain, I'm MORE exhausted all the time. The hypoglycemia came back, and so did the burning in my stomach. I felt good for like, a month. Now I feel even worse. I feel like I have to drag my body around, I have no energy. It's not even brain fog, just exhaustion. And when I do eat gluten, I get really sick. Then I'm foggy and just generally not good for several days. I'm so careful, too. The only gluteny things in my house are the DH's cereal, and saltine crackers. He's careful that he doesn't contaminate me. It feels like I can't win, I'm going to feel like crap either way.
It's just been a rough year so far. Sorry for whining.
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Thanks everybody for the suggestions. I keep vacillating between the spreadsheet and the small notebook. Each has benefits and drawbacks and I can't decide which I would use more. Probably the notebook, since I'm back and forth to work, but I could also just keep emailing a spreadsheet (which is much more organized and has neater handwriting
)... If I do the spiral notebook, I think I'll have to get a bigger one than the tiny little one I've been using.
Anyway - liked hearing the different methods people use, cause I always pick up ideas. Somebody always comes up with something I hadn't thought of .
You could get a jump drive and save it to there instead of emailing it back and forth.
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This is what my local GIG has on it:
Sonic. 866-657-6642. No gluten-free menu that is printed or published on the Internet. However, a company representative at Sonic's toll-free number verbally gave the following list of gluten-free menu items:
Bacon
Breakfast sausage patty
Hamburger, no bun
Hotdog, no bun
Sliced American cheese
Shredded cheddar cheese
Pepperjack cheese
Egg patty (may be contaminated from cooking on the same griddle as non-gluten-free foods)
Ketchup
Mustard
Marinara sauce
Salad dressings, all varieties in the usual menu*
Shake mix (Shakes may be made in the same container as malts. Ask the staff to clean the container to prevent cross-contamination.)
Softserve ice cream
Hershey's chocolate syrup
Butterfinger, M&M, Reese's Pieces, and whipped toppings
Route 44 drinks, all flavors in the usual menu*
Slushes, all flavors in the usual menu*
*Special menu items are not included in this list.
Although Sonic's Tater Tots and French fries are gluten free, they may have gluten contamination from being fried with gluten-containing menu items.
Open Original Shared Link
I just get cokes there....
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for Jkmunchkin
the graham crackers I make are from Mona's mixes, she is located in Woodinville, Washington. I love her pancake mix to. If you go to her website she has many mixes and you can buy a sampler package to try. She has many recipes on her site using her mixes of course. I make the cinnmona grahams from her recipe. I also dip them in choc or mint choc. spread with peanut butter then choc. or marshmallow cream ...I just used them for the bottom of my cheesecake too.You probably could use any gluten-free mix but I used hers.
She is also very nice .......
mamaw
Which mix did you use?
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Yes, it's a very reasonable fear. I've gotten sick from that much. With celiac, it doesn't matter if it's a molecule or a stack of pancakes, the reaction is usually the same.
Celiacs can eat out, it just takes planning and communication with the kitchen.
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I'm sorry you're going through so much right now. It just plain sucks.
Well, the gallbladder thing should make you feel better, right? So that will be good, even though the procedure is certainly no fun.
And about the estrogen thing, maybe the tests next week will show they've gone down. I'll say a prayer for you, I know it must be hard....
Try to feel better!
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OK, so I've been excessively tired and my stomach is generally unhappy lately. Maybe I'm getting gluten from somewhere? The things I use that I'm not sure about are:
Olay moisturizer (which is P&G, and they're useless)
St. Ives Medicated Apricot Scrub
Johnson's Softwash Calming Bodywash
Johnson's Softlotion 24 hour moisture
Anyone know anything about these products? The ingredients on all of them look safe...
Do I have to worry about gluten from handsoap? Like in the bathroom at work?
Help is appreciated...
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So if there is such a thing as a miracle vitamin, by gosh this stuff is!!!!!
I bought the New Chapter Organics, Coenzyme B-Food Complex. It also has probiotics, something I have been trying to do through yogurt alone, but again, I figured I have heard alot of positives from taking them. So why not get them in one pill! The package says to take two, but I took just one to see how it did in my tummy. No problems, so I may take one at dinner too!
I bought those while I was out during lunch. The Whole Foods lady said they're the cadillac of vitamins, they're basically digested for you. I took two, and it seems I can actually tolerate them! I have a terrible time with vitamins, they usually make me nauseous. They woke me up a little bit, or at least they're helping me fight the urge to crawl under my desk and take a nap.
Thanks for suggesting them!
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The celiac blood panel includes:
tTG-IgA or tissue transglutaminase-IgA
AGA-IgG or Antigliadin IgG
AGA-IgA or Antigliadin IGA
Total IGA
I think there's one more? Maybe?
I went to the doctor because my stomach hurt unbearably for no apparent reason. They did a battery of tests and didn't find anything, just said it was IBS. Gave me antispasmodics, which helped the stomach pain but not the daily D. I mentioned food things to my dr and she did the celiac panel. My IgG came back positive, but nothing else did. Actually, I scored as low as you could score on anything else. I was diagnosed based on dietary response, but I was lucky. Now, I think my unbearable stomach pain happens when I accidentally eat gluten. I think I have other problems going on, but I'm trying to approach this as ONE CRISIS AT A TIME!
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Hello and welcome! You'll find lots of great information and great people, too. I'm 22 and was diagnosed in February. Did your doctor say you have Celiac, then? Did he run the whole panel? I run through your bullet points:
A) I get those red dry spots, too. I also get them behind my ears and neck. As for the burning lips, I have that too! They're always doing something wierd, it seems. Do you get red bumps on yours when they burn? I think it's gluten related for me, but not sure yet.
B.) Constipation happens almost as much as D in celiac.
C) Gluten definitely affects joints, and the rash could have been Dermatitis Hepa...someone else spell that for me...
D) I seem to "molt" every spring or so, I get little non-red bumps and then they peel. D is more of a problem for me, also.
1. Yes. There are over 200 symptoms associated with celiac.
2. Either get a biopsy or go gluten-free. If you're going to have further testing, you have to be on gluten for them to be anywhere near accurate.
3. Some people with celiac disease have to be off dairy permanantly, but that's another intolerance. Many celiac's give up dairy while their intestines heal. Lactose is digested by lactase produced at the tips of the villi, and if the villi are blunted, they can't produce lactase.
Welcome again!
Soy Sauce In Individual Packets
in Gluten-Free Foods, Products, Shopping & Medications
Posted
Open Original Shared Link
Free shipping over $20 and the soy sauce is low-sodium, too! Less than $20 and you're stuck paying for fed-ex.
You can fill that $20 by getting A1 packets, dressing packets, etc...