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penguin

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  1. I'd add some grains in with your protein, it'll help to keep you going longer. Strive for balance. I started weight watchers and noticed my BS crashing a bunch, until I realized that I was eating almost no grains. Nuts are also good to keep the BS up, I'm partial to honey-roasted peanuts and almonds.

    I had a good BS morning, here's what I had:

    Van's waffle

    1 tbsp maple syrup

    cup of milk with ovaltine

    banana

    Of course I didn't pack any grains in my lunch (oops :blink: ) so my BS is getting wonky now, but I was doing great until lunch! :P

    Lunchmeat is good to keep around, too. The Oscar Mayer deli shaved stuff is very low calorie, but high in protein and not bad on carbs.

  2. It could be gluten related since you have so recently been eating gluten! That doesn't mean it is gluten-triggered. It could be that your gluten challenge messed with your nervous system & made you susceptible to migraine. Something else could still be triggering it. There are millions of potential migraine triggers. The big ones for me are low blood sugar & bright lights. My brother gets them from thirst.

    Oh, no. I've had these for years. I think three years now. Even when I was gluten-free, they still happened, if not more often. I am curious to see if they happen less when I'm gluten-free for longer. I'm sure there's a common trigger somewhere, I just haven't figured it out.

  3. Your experience with the aura is very interesting & definitely sounds like a migraine pattern. When you are able to "head it off at the pass" what are you doing exactly? Pain meds?

    If I'm able to (ie: it's not 10am and I'm at work) I start the OTC pain meds and phenergan. The earlier I use the phenergan, the better off I'm going to be. If I start getting an "aftershock" type effect where a second episode is coming on just after the first, I can usually keep it at bay by taking bentyl and a combination of tylenol and advil.

    The phenergan (suppository) works most of the time, and certainly better than the vicodin they gave me for a long time, since I have to be able to keep the vocodin down in order for it to work. Funny enough, I have the phenergan because I had an attack at my mom-by-heart's house during thanksgiving, and her husband was a doctor (orthopedic), and she's a nurse. Anyway, their son has migraines and takes the phenergan suppositories when he has one. The phenergan worked when the vicodin wasn't. Interesting.

    Do the meds for "traditional" migraines do anything for this type? Maybe do some investigating to try and find a specialist who is familiar with these.

    I don't know, I think I'm going to call my gastro and ask about digging deeper into my stomach problems. If I could take an imitrex and get rid of it, that would be great. For some reason, doctors kind of shrug this pain off, even when I've gone to the ER for it. I've been to the ER 4 or 5 times with it, and am seriously tempted every other time.

    At this point, I think both my primary and gastro feel that since it's in my stomach, it must be gluten related. It's not though. I've had a rough week with this pain stuff, so I have renewed vigor to figure out what the heck is wrong.

  4. I've been trying to figure out a reason why I get these ridiculously painful stomach spasms that don't respond to anti-spasmodic medication, and only sometimes respond to pain medication.

    I've had these for 3-ish years now, and doctors shrug their shoulders and give me pain meds. I've been checked for ulcers, upper GI, gallbladder, etc. etc. These spasms have nothing to do with celiac, they happen whether I'm gluten-free or not and I can never trace an attack back to a specific trigger. I get them anywhere from once a week to once every three months. I've traced it back to food once, and back to stress once, the rest of the attacks (probably 20-50) I have no idea what the trigger was. It also knocks me on my ass for at least a day. Minimum. I throw up (if I'm not taking phenergan for pain), can't eat, can't drink anything, I look like crap... It's a miracle if I don't get an attack after or during travelling (I'm pretty much non-stop on the bentyl when I'm travelling).

    I know when I'm about to have an attack, I get an aura, it's hard to explain. It's kind of a spacing out and "oh sh*t" realization before the pain starts. Then the attack happens, usually at night, and if I catch it early it's usually not as bad. If I don't catch it early, it's 3 times as hard to get rid of. After it's over, I'm exhausted and there's residual soreness for a few hours to a day.

    Anyhoo, I was reading an article on MSBP and it mentioned that one of the kids had cyclic vomiting and abdominal migraines. So, as I normally do when I see something I don't know about, I googled it. Lo and behold, everything matches. Although it says it normally occurs in children (I did have mystery stomach aches as a kid), cases have been see in adults. I was also diagnosed with migraines (head) when I was 17, but I hadn't had one in a long time, and haven't since I've been diagnosed with migranes.

    At any rate, has anyone heard of it? Am I grasping for straws out of frustration? TIA!

  5. I had a whole big long post here yesterday that I lost before it posted, so I'll try to recreate it:

    At the risk of sounding like a 20-something snob, but a lot of it I think has to do with age. I'm part of a generation that grew up on fast food and eats out ALL THE TIME. It's part of the culture now, that's why the food industry is booming so much right now, and why the boom is expected to continue. Cooking is a novelty for people my age, not the norm. Hell, my 30-something sister can't figure out a meal that's not microwaved. I cook and eat at home most of the time (even before celiac), but I'm one of the only people I know my age that does this. Part of it is the celiac, but most of it is that I like to cook, and I was actually taught how.

    My friends would cook dinner for everyone every so often and again, it's novelty. I had one friend try to microwave a saucepan, one overestimate how much baking soda to put into cookies, one didn't have a grain of flour or cornstarch in her apartment but couldn't figure out why her sauce wasn't thickening...the list goes on. Of course, now that we've all graduated and most have gotten married, we're all cooking more, but most still eat out at least 4 times a week.

    Generations before mine mostly cooked at home and ate at home except for the occasional treat (NYC is the obvious exception).

    At any rate, in this thread, I imagine it doesn't have so much to do with reaction severity (I get pretty sick, too), but more with culture and age.

  6. Penguin,

    ALL meaning bottled and draft Woodchuck? That would make sense, but I've learned time and time again that you can NEVER be too sure about gluten.

    Yep, every single product of theirs is gluten-free, bottles and on tap. The draft part in this case is confusing, because they call all their products (regardless of packaging) Woodchuck Draft Cider.

    Here's their faq: Open Original Shared Link

    B)

  7. Those are the UK sites, in the US, the rich chocolate flavor is gluten-free. I called on it in March or April. I drink it and have had no problems, but who knows from batch to batch if there is contamination. That would probably be my first thing to eliminate in this case.

    Also, that about site has a lot of misinformation, it says that millet, kamut, quinoa, and others contain gluten and they don't.

  8. Turtle, I am an avid Jameson drinker and I don't seem to have any problems (except, of course, on those nites when I consume all too much alcohol in general and just get hungover). Then again, I'm also a supporter of the 'triple distilled theory,' in that any of the malt should've been distilled out three times over. And I will continue to support this theory until I am proven wrong through an excrutiating gluten reaction.

    Olalisa, all of Woodchuck's draft ciders are gluten-free, but their webiste doesn't say anything about the bottled product. That's another one of my favoite alternatives when I have a drink after (okay, after, during or before) work.

    -Courtney

    ALL Woodchuck Ciders are gluten-free...

    So are all Ace ciders

  9. Anything with peanut sauce is generally not spicy either. Also, every thai place I've been to has had a star or pepper rating from 1 to 5 for spiciness. I usually ordered a two pepper (mildly spicy) while DH would order 0 peppers (before we moved to Texas and he discovered a liking for spicy food, since even "mild" salsa here leaves your tongue charred :lol: )

  10. Thanks for the help! I have to decide which one to get. I like the clan thompson software but Gluten Guard has so many more products.

    FWIW, I've seen posts that say that the gluten guard products aren't that reliable, and that an unusual number of things that are definitely gluten-free come up as "undetermined". You may want to do a search of past posts on gluten guard.

  11. Thanks, did you purchase both the pc version and the palm or just the palm? Also have you tried the gluten guard? I downloaded the demo of that also and it does't seem bad either.

    You just buy the palm version, but the pc version is downloaded with it. I haven't tried gluten guard, but I've heard more positive things about the clan thompson list. No program will be totally comprehensive, you just have to find the one that works best for you :)

  12. The clan thompson software looks good, I downloaded the free trial. If you buy the computer software does it come with palm software too or is that a seperate purchase? I don't have a palm yet but would consider one for this reason. Thanks for any help!

    The palm software is a little bit more, and it doesn't come in the trial version. So worth it though, especially if you're out or at someone else's house and you want to check something real quick. Also, the trial version doesn't have all the products listed. They're a good company, I'm glad I got it.

  13. Personally, I have 3 different kinds of bad days:

    Type 1: Not that bad, just generally sleepy, foggy, and a burning stomach with waves of nausea, not quite d

    Type 2: Bad, very sleepy, barely functional, in and out of the bathroom all day

    Type 3: Very bad, stomach spasms, nausea, sleepyness, extreme pain, not functional AT ALL

    I manage to work with types 1 and 2, but with type 3, I'm down for the count. Type 3 isn't related to gluten at all, and types 1 and 2 can be related to gluten, though not necessarily.

    I cope by using red bull, tylenol, and antispasmodics (sometimes immodium too) on types 1 and 2 and it keeps me functional. Lots of water, also. If my stomach is going wonky on me, I try not to eat too many raw fruits and veggies, as my system has trouble digesting cell walls on a good day. If it's a type 3 day, I have very strong drugs for those that I hate taking but I have to to make it go away long enough to stop, but they put me to sleep.

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