Jump to content

Dlapham celiac & DH

Advanced Members
 View Profile  See their activity

  • Posts

    13

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Dlapham celiac & DH

  1. Dlapham celiac & DH

    Happy birthday and may God bless you today!

  2. Dlapham celiac & DH
    I Have had both shoulders repaired in the past 2 years. Right side was the superaspinatus tendon, and the left side had that plus the bicepts tendon. I had the left one done on 4/5/06 and the right one in Feburary 2004. Has anyone seen or have any information about the effect of celiac disease on tendons? As my personal information shows, I have had symptoms...
  3. Dlapham celiac & DH
    Your symptoms are correct for c/d--d/h. If you have d/h you DO have c/d. The d/h coverage area for me was generally the same as you outlined. It is hard to hear and accept that one has a disease like c/d and d/h. I was big time angry. But after the gluten-free diet and the improvement it made in my over all health, I am now seeing it as a blessing, and...
  4. Dlapham celiac & DH
    I can understand your doctor situation, because my dad was in the Air Force until I was 11 years old. I went to the hospital on the Tinker Air Force base which at that time was a very good hospital, but my mother had to arch her neck a few times to get the care we needed. If your doctor will listen to you and help you with the tests you want, in some ways...
  5. Dlapham celiac & DH
    Nickie, Richard's experience is very much like mine. I took dapsone for 20 years+- 1 or 2 and it did wonders for my D/H. In the mid 80's most dermatologists did not know about C/D. I had the one of the best in Oklahoma City. He knew I had D/H by visual inspection, but it was backed up by lab tests. I also was dieing of malnutrition last summer. I have...
  6. Dlapham celiac & DH
    Hi Robix, I am a 59 year old male, but I found your description of your symptoms and the solution to the problems with eating interesting because I had many of the same symptoms, and I had the same solution, don't eat, and the same results, I felt better but lost about 35#s in 3 months. I also have been diagnosed with pernicious anemia and took WEEKLY B...
  7. Dlapham celiac & DH
    Thanks Trents for this information. The above explanation is very interesting. I will try to see what effect extra supplementation will have on the condition.
  8. Dlapham celiac & DH
    Yes I have had them off an on for years. They seem to get worse when my system is not balanced, which is after being "glutened" or in the summer when sweating a lot and some times it just gets off for reasons I can't identify. I have found that walking and messaging the area and using a product called "Cramp Cream" or with "Absorbine JR" will stop them...
  9. Dlapham celiac & DH
    I agree with Ursula, I have not been "lab diagnosed" with C/D, but have been confirmed with D/H by positive biopsy and visual check by the top dermatologist in Oklahoma City. That was 18 years ago and I am now 59+ years old with symptoms going back for 58 years. It is not comforting to see all the possibilities of the late diagnosis, but late is better...
  10. Dlapham celiac & DH
    I to am 59+ yrs old and have had D/H for over 18 years. I tried sulfapyridine and it sorta worked then I went to dapsone and it did work at 50 mg. once a day. But being the nasty drug that it is, it lowered my RBC and basically all the readings related to my red blood cells. After cutting down to 25 mg a day after being gluten-free for about 3 months,...
  11. Dlapham celiac & DH
    I had an experience some what like that. When I went gluten-free I had a rapid decrease of some symptoms, but my D/H went crazy for several weeks. I had to increase my dapsone for a while, but now I am down to half the dose I was on before being gluten-free. My anxiety improved by 98% in a few days and stayed that way for about 4 months, then returned...
  12. Dlapham celiac & DH
    I agree with the above posts, but would add that you will have to find out what foods work for you and what ones do not. And that may change from time to time. I can eat hard cheese, but have to watch pregrated cheese. It has potatoe starch in it and celulose powder (I suspect that some times the celulose powder has some wheat flour in it) . I have...
  13. Dlapham celiac & DH
    Sabrina, I had a simular thing happen to me, only I did not know I had eaten anything with gluten, after eating at a friends home, (she thought she had made everything gluten-free, but did not know about hidden gluten) I developed a mild GI pain and gas, then the classic for me, an attack diarrhea in which everything in the GI tract turns to water. It...
  14. Dlapham celiac & DH
    I am new to the posting side of the site, but thought I would get my feet wet with this topic since it hits close to home for me also. I am 59 years old and have had symptoms of C/D all my life. Mostly digestive and upper respirotory problems, but also some nuerological issues which have never been checked. No doctor ever mentioned a food problem. My...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.