heli

Pet store chains sell Eucanuba which I used for my dogs before, well their gone now. Other brands are lamb & rice based. It's better for the dogs anyway. When a dog has a tummy ache they go outside and eat grass so they can throw up. So, why would a dog food company put wheat (grass) in the food? Convenience, but it is not good for dogs.

I got glutenized on a salad just by being in a pizza restaurant so, wafting through the air is a real possiblity.

I am a nurse & celiac person. I don't know that there is anything specifically about lithium that prevents a celiac person from using the product. However, in the past when I was on multiple meds, I always made it a habit to call the pharmaceutical company and have someone discuss the flow agent for capsules and the binding agent for compressed tablets. Most pharmaceuticals have stopped using gluten as a binder but many use lactose and/or corn starch. I am violently reactive to corn starch. Virtually every refill needs to be checked because of substitutions, generics, and changing of formulation of inert ingredients.

After I found out that I have an intolerance to grapes, I had to give up wine. My husband bought me an expensive, aged Tequila. Severe gluten reaction. I haven't figured that out yet. I wonder if the aging process (in the oak barrels) has some way contributed to cross contamination. Any thoughts?

No miracle, but I can recommend that you use a high quality, stabilized aloe vera product. The healing component in the aloe plant is a simple plant sugar called mannose, it binds to the cell surface and occupies the receptor site so that the bacteria cannot attach to the cell (published biochemistry research). Carrington Labs makes a pharmaceutical quality product that you can buy over the counter (health food store). Their stabilized aloe is used in a formulation to heal bed sores. I don't have anything to do with this company - I just know that they make high quality products. You'll have to do a web search to find the name of the product, I think it is called Manapol, but I'm not sure.

Pain is very motivating. Involve that young lady in being as wary as a fox. Teach her to "interrogate" for all food that she is offered. Be sure she always has a snack (Think Organic bars are great to carry) so that she does not get hungry and eat indiscrimanately. Mom and daughter are partners in improving health.

I know the majority of the load for food prep falls to mom because I am a mom with celiac and 2 daughters with celiac.Gluten contamination may be the problem such as french fries that would be ok except if they are fried in oil that has previously had battered items fried.

Or, your daughter may have accepted/shared a food with a friend who would never intentionally make her sick. Give your daughter some friendly, cheerful "thanks, but I can't accept that food - it may have an ingredient in it that I can't eat." Where as "that food makes me sick" tends to turn people away - and you don't want your little one being ostracized over food.

I have a daughter in high school, and a daughter in college who was diagnosed in high school (finally) after 10 years and is now doing well at college.

Do you live in a city that has Whole food markets or specialty stores?

mamaw - well, I don't know if you will ever get this. I am having so much trouble following links that were previously posted but here goes:

DQA1 is the alpha chain on the gene and is not currently considered as part of the gene profile for determining celiac disease.

DQB1 02xx means that the beta chain (as opposed to the alpha chain) carries the DQ2 and it is furter reported as 02xx becuase it has no subtype, just DQ2 positive. You carry one of the main genes that predisposes a person to celiac disease (flattening of the villi).

On the second line DQB1 0302 refers to DQ3 (and has been further designated as subtype 02 but this does not mean DQ2 on this gene). According to Dr Find DQ3 can act almost exactly like DQ8 and strongly predisposes a person to gluten intolerance.

Remember DQ1 has subtypes DQ5 and DQ6

DQ2 has no subtype

DQ3 has subtypes DQ7, DQ8, and DQ9

DQ4 has no subtype

So, if you were getting a very simple report of the 2 genes it would be DQ2 and DQ3.

Did your doctor say you could eat gluten? That is incorrect. Even if your endoscopy did not report flat villi, why would you eat gluten to cause damage that would flaten the villi? You have symptoms and you have the gene, I would avoid gluten like the plague!

I've used a great multi-vitamin for over 4 years. It has no artificial ingredients and its binding agent is water cress. I never have any nausea with it. But because it is a whole food vitamin it is taken 2 twice a day. Your body can only absorb about 400 to 600 mg of calicum at any one time so you actually get better absorption taking it twice a day. The vitamin is Catalyst by a company Mannatech. It will run you about a $1 a day. I hope it is ok to state a brand.

Okay, I will give this a try anyway:

Early in genetic testing there was only

DQ 1

DQ 2

DQ 3

DQ 4

As more genetics were researched subtypes of these four were identified:

DQ1 having subtypes DQ5 and DQ6

DQ2 - no subtypes, it is bad by itself

DQ3 having subtypes DQ7, DQ8, DQ9

DQ4 - no subtypes (the only gene not associated with gluten sensitivity)

Celiac disease is a very narrow definition: specific damage to the small intestine which can be identified as flattened villi. The flattening is caused by the gluten reaction. However, one can have severe symptoms and a severe reaction to gluten without having flattened villi and by definition not have celiac disease.

The strict definition of celiac disease is linked with DQ2 and DQ8. This is why doctors say if you don't have DQ2 or DQ8 that you don't have celiac disease. True in most cases, however you can still have a severe case of malabsorption and horrible symptoms with gluten sensitivity (which is all the other DQ except DQ4).

The report of DQ B1 03 (DQ7) is giving you the address of the gene DQ B1 and then the type "3" and then the subtype "DQ7." The next line down reports nothing and I don't know why it is written that way. So your report only gives one of your 2 DQ genes. It is DQ7, which according to Dr Fine is almost identical in structure to DQ2 and predisposes to severe gluten sensitivity (but not celiac disease by definition).

Your report stating DQ2 negative and DQ8 negative is to reinforce that you do not carry the celiac disease gene. Unfortunately for us, some doctors think this means that gluten is not a problem. WRONG! All it means is that you probably do not have flattened villi, but you can still have gluten intolerance with severe symptoms and organ damage.

I hope this helps - I seem to be repeating myself.

Dear jknnej - I am quite familiar with the gene testing and would be happy to give you the information you are looking for. However, I seem to have lost the question in the thread. Please restate and I will give it a try.

i have been trying to figure out the gluten intolerant gene question for a little while---i guess i should post a general question on the board.

Sarah - I think this thread started out about snacks. One of the best snacks that I have found (and carry with me at all times) is the Think Organic food bars. Some are not gluten free so, check ingredients.

My reaction to casein is muscle aches all over and severe fatigue for 1-2 days. It's like I have been drugged and I can't get out of bed but no digestive symptoms at all.

By the way, I do have a background in science so I could try to explain gene questions. I have had enterolab tests done. I am DQ2, 7 and both of my daughters are DQ2,6.

My older daughter was severly ill from 6 years old until 16 years old when I figured it out and had her tested. I had her younger sister tested and she is celiac too. So, when I handed the doctor (actually avery good pediatrician) the results and said, "she has celiac," She said, "Wow, that is really rare; you seldom see that."

My older daughter was severly ill from 6 years old until 16 years old when I figured it out and had her tested. I had her younger sister tested and she is celiac too. So, when I handed the doctor (actually avery good pediatrician) the results and said, "she has celiac," She said, "Wow, that is really rare; you seldom see that."

The gluten free pantry is a very good gluten free place that makes gluten-free mixes and such. They sell a lot of their mixes at whole foods market. You should really try it out, the brownies w/ the chocolate chunks in them are really to die for. I make them for soccer snack(when I get back to playing) and everyone on the team eats them because they are really quite good.

Also try Namaste mixes. YUM! Next time you see that left over chocolate cake break it down into what it really is: POISON. It is not for you. And always have something you can snack on. Nuts, fruit, Think Organic bars ( ( always have some in my purse so that I don't cave & I don't get a headache from going hungry.)

Also, what are you eating when you are stressed? Maybe you are over indulging in those refined grains? Acid reflux & IBS are celiac symptoms not just stress. The gluten free diet is inconvenient but "nothing tastes like feeling good!" I've been gluten free for 2 years and it is the best health choice I ever made.

Most meds are gluten free these days, however many are bound with cornstarch and corn is in the same grass family as wheat, barley, rye. I personally have a huge reaction to all corn products. But to encourage you, over about 14 months I was able to eliminate all 12 daily medications.

CASEIN - "the principal protein in milk." When coagulated by rennin or acid it becomes one of the principal ingredients of cheese. So, casein is the name for the amino acid sequence of protein in milk. In the case of your rice cheese, the company probably went as far as they could with rice and then added the casein to complete the process. So, casein is always casein, a protein derived from milk.

After 8 years of marriage I still was not pregnant. Using fertility drugs I did get pregnant. I had very scary pregnancies with both girls. My placenta did not mature and my babies did not grow. I had c-section with both and complications with both. Lots & lots of trouble because of malnourishment so no ovulation and all those pregnancy problems. I wish I had known 20 years ago that I had celiac disease. I also ended up with a hysterectomy. Both of my daughters are very small because of celiac - short stature issues. Get that testing done. I think the easiest is the entero lab DNA. Besides that just get the basic stool test. That way you have the groundword for gluten or no gluten.

IgG positive really is not specific enough. What you want to know is, "which antibodies were positive?" The panel should have included tissue trasnglutaminase (tTg), antigliadin antibodies, anitendomysium antibodies, and I can't think of the other one right now that is in the standard panel. I'm not sure what the fifth one would be either, unless it is IgA.

Again, you want to know which anitbodies reacted. Saying IgG is too general. Lots of things can make IgG react. As a comparative, it would be like saying my IgE reacted. (IgE is the true allergy reaction like hives, itching, or anaphylaxis). What you really want to know about IgE is what food triggered it. So, with IgG you want to know which antibodies are causing the IgG to react.

I love enterolab. I had antibody testing and fecal fat which were all bad. I also had my 2 daughters tested. One was very sick for 10 years and carries my DQ2. I just ordered the DNA on the younger daughter who also had antibodies to gluten and malabsorption. I finally talked my older brother into DNA, and I talked my Mom into DNA. My Dad died a while back. While he was sick, they accidentally ordered a gluten panel and his IgA was elevated. They never diagnosed him but I am convinced the celiac intestinal problems played a big part - I got the DQ2 from him. One brother refuses to agree to any testing because he is aftaid his DNA will come up in the crime lab! He's just joking but it's his way of saying no way.

I guess I am fortunate that my family is just happy to see me well. After my brother's DNA comes back I hope his adult daughters will see the light of being tested since they both have various celiac issues. it is a mission trying to help one's family.

Erin - My family has been supportive because I was so sick and now I'm well. When people seem so aghast that I turn down pizza and they say, "What can you eat?" I very nicely (which is hard sometimes) name all the wonderful healthy foods that I can eat, and mention that I make my own bread. I came to the point that I can literally give up any food to feel better. i have a bunch of wierd IgG delayed food reactions so, I have given up a lot. However, "Nothing tastes like feeling good!"

My daughter also was undiagnosed for 10 years. She was royally ill at 6 years of age and by 16 had given up on sports, school, and the future did not look good. I diagnosed myself, then her. You can have a stool test done for your little one that you order on line and does not require a doctor's permission. I highly recommend the testing - I like knowing what I am dealing with, even though the gluten-free diet seems to have had dramatic affects for your child as it did (does) for mine.

Donna - I also was misdiagnosed for 50 years. I diagnosed myself and was confirmed by a lab. I suspect all of your symptoms are food reactions triggering an autoimmune response. The suggested blood panel would cover a lot of issues but why? You already know that you have celiac disease - of course you have a leaky gut! You also may know that gluten intolerance is associated with thyroid disease so maybe you need to confirm that. New research in arthritis links it to a nutritional deficiency of a vital plant sugar (search: sugar printing in the UK).

I would recommend IgG delayed food allergy testing and know for sure what other foods are causing reactions in your body. I had this testing done and I was stunned to realize that grapes of all things were triggering my migraines!

Don't forget that dairy is more than lactose. Many celiac disease (including myelf) are IgG reacting to the casein milk protein. Being glutenized makes me bloat even if there was no cow in sight.