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Lillyth

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lillyth

  1. Lillyth
    I always steer away from anything that says "modified food starch" on it, as it's kind of llike playing russian roulette. My personal favorite is Follow Your Heart Organic Chipotle-Lime Ranch Dressing. It says right on the bottle "gluten-free". I get it at my local co-op. It's yummy (albiet a bit on the spicy side, so if you don't like spicy, don't...
  2. Lillyth
    I just sent them this: Having just reviewed a response from your company to an inquiry as to which of your flavors are gluten-free ("According to our Research and Development Department, the natural and artificial flavors in our product could possibly come from wheat, oats, barley, or rye. However, the gluten wouldn't be at a high enough level to cause...
  3. Lillyth
    I have had problems with some yeasts, though there doesn't seem to be any rhyme or reason for it. (Especially the yeast they put on potato chips). Is yeast a typical thing for a celiac to react to? Lil
  4. Lillyth
    Open Original Shared Link I haven't tried them yet - I will be ordering them in a week or two. (I for one don't like corn tortillas, so I'm hoping that I will like them so I don't have to keep using corn)...
  5. Lillyth

    ARCHIVED Dh Or Allergy

    Lillyth replied to MJ27's topic in Dermatitis Herpetiformis

    I have a rash - very symetrical all over my arms. Well, maybe not ALL over, but certainly the spots where I have it on one arm are mirror images of the other arm. I haven't had the blisters - though i have been wheat/barley/rye free since last summer. I was consuming gluten (spelt, oats, kamut) until last month. Then the rash started going away within...
  6. Lillyth

    ARCHIVED Rash

    Lillyth replied to gointribal's topic in Dermatitis Herpetiformis

    Me, me, me! I've got that too! (The doc I saw last week says it is NOT DH, but then again, she said I couldn't possibly have celiac because I don't have diarrehea (sp) and I'm not wasting away, so what the heck does she know?) Funny enough, I went gluten free & within a week, the rash started clearing up, so... As I've read so often on this...
  7. Lillyth
    OH MY GOD!!! That's just what I thought too! (If I had a dolar for every time I have said that....) Thank god for the miracle of the internet & forums...
  8. Lillyth
    Wow. I always thought my sleeping problems and fatigue were "just me". Although it sucks that ya'll have been experiencing sleep problems, it does make me feel a bit better that it's not "just me". I was so shocked to see the sleep forum. I had no idea... Lil
  9. Lillyth
    Okay - I've tried to post a new topic & it doesn't seem to show up - so I'm posting it here too... I got my tTG test results back - they say I'm negative, but I've been gluten free. She (the doc) only did the tTG because she said the celiac would show up on that one, regardless of my consumption of gluten. She also reiterated that the rash I...
  10. Lillyth
    I typed this all up & hit "post", but nothing is showing up, so if this is a duplicate post, please bear with me... Cut & paste of original post below: I got my tTG test results back - they say I'm negative, but I've been gluten free. She (the doc) only did the tTG because she said the celiac would show up on that one, regardless of my consumption...
  11. Lillyth
    Do you eat any of that "fake meat"? I was raised on it & found out last year that 99% of the "meatless meat" products contain vital wheat gluten. Which sucks, because one of my guilty pleasures was ToFurkey - which I liked better than regular Turkey. Just something to look out for... Lil
  12. Lillyth
    I got my tTG test results back - they say I'm negative, but I've been gluten free. She (the doc) only did the tTG because she said the celiac would show up on that one, regardless of my consumption of gluten. She also reiterated that the rash I have does not look like DH - if I had that it would be in little red clumps (which it was before I went off...
  13. Lillyth
    When I lloked around for DH photos, I had to do quite a bit of looking because the rash I had looked way tamer than the photos. I finally found one that looked like what I had, it was on someone's chest. Mine were also worse after I showered. Funny enough, I cut the gluten out of my diet, and it calmed right down, though when I went to see a doc (not...
  14. Lillyth
    What does "PMJI" stand for?
  15. Lillyth
    Whew! Glad to hear that. Do you supose the gene test is something my HMO will pay for? (And is it something they can do, or is this one of those mail order things)? Lil
  16. Lillyth
    Cool! Is that something that can be done through my doc, or no? Also, do you think I should have my son tested? And if I do have him tested will it reveal whether he has the gene, even if it has not been "turned on"? He doesn't show any signs, but I'm afraid to get him tested at all, because his school does not accept anyone with any special diets - he...
  17. Lillyth
    I am a Realtor (read as: independant contractor), which means that I itemize everything. So keeping the reciepts on this (and figuring out all the percentages) is no big deal. If I do it with my cell phone usage, it shouldn't be all that much more difficult to do it with the food. (Especially since we will be eating lots of pizza & the like, as we...
  18. Lillyth

    ARCHIVED Quote Of The Day

    Lillyth replied to moonunit's topic in Doctors

    Mine is similar to Ursula - "If you had celiac disease, you'd be losing weight & having diarrhea".
  19. Lillyth
    Okay, so it sounds like the doc was right on the name part - though I was right on the symptoms part. But hey - who ever said that just because a doctor knows the name of a disease it means they know what they're talking about? (Heck, the nurse practitioner at least said that if I got sick eating gluten that was a pretty good sign I had celiac,...
  20. Lillyth
    Those are the same symptoms I had/have. I had no idea what was wrong with me. Then my husband & I went on a fast together (pre-wedding, to flush out all the "bad stuff" we didn't want to take with us into the marriage), and blammo! I had a peice of ravioli & immediatly had a headache, felt exhausted, etc. I didn't look back after that. ...
  21. Lillyth
    I thought sprue was the thing that happens if celiac goes intreated for a while - the thing that gives you the wasting. Maybe I'm wrong. I've heard sprue refered to as "full-blown sprue" before. And all the sprue stories I've heard have involved wasting away. I thought sprue was the advanced stage, if you will. Now I'm confused too Lil
  22. Lillyth
    Wow! Thank you Ursula! I just had a very frustrating morning with the doc, who tried to tell me that I didn't have the symptoms of celiac. When she rattled off the ones I "should" be having, I told her those were the symptoms for celaic sprue, not just celiac. She then told me that's what celiac was, is celiac srpue. I may not be s*!^ting out my...
  23. Lillyth
    Ugh! The last thing in the world right now I want to do is to go back on gluten! That sucks that they can't test it any other way. Oh well. I guess I'll just have to hope that the itchey rash I've had on my arms for the past month and a half is dermatitis herpataformis (sp), and let it go at that. I'm not sure any amount of tax write-offs would be...
  24. Lillyth
    Is the blood test for celiac something I can have my regular doctor perform, or do I need to do the mail order thing? Also, do I need to be consuming gluten currently for the test to come back positive? Thanks! Lillyth
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