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Lillyth

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Everything posted by Lillyth

  1. Lillyth
    I sent an email to Bard's asking why, if they are manufactured in CA, we can't get it here. Following is thier response: Lillyth, Thank you for your email. You will soon be able to get our beer in California, especially in the Bay Area. The reason for the delay is that we have not been in California before and the distributors needed to be convinced...
  2. Lillyth
    I get mine at Trader Joe's.
  3. Lillyth
    Wow. I can't believe no one's mentioned Niman Ranch yet... Niman Ranch BABY! They are the best. go to their website sometime when you are feeling particularly strong-stomached. Read up on all the things they DON'T allow at their farms - which makes one think these things MUST go on at other farms, or they wouldn't put them in their rule book. ...
  4. Lillyth
    Woodchuck is fine - I drink it all the time. Woodchuck Dry is my fav - almost like beer... BTW, I contacted Green's last year (almost to the day) to beg them to please ship me some (cost no object). They told me they couldn't do it, but to contact Wild Oats to request they start carrying it. Sounds like they are making progress! YAAAAAY!!!
  5. Lillyth
    AMEN!!!! I react to Stoli. (Though I will admit it is less of a reaction than other vodkas). But then again, I also reacted to the "zero" trace in Sojo's Fish & Chips. I happen to be a VERY sensitive individual. I know there are plenty of folks who have not reaction to distilled things. I'm with you. The distilation process "should" remove...
  6. Lillyth
    After I read the email I compsed to Sojo Foods to my sister, she suggested I create a template for everyone to use as needed, kinda like a fill in the blank thing. As much as I would love to think I would actually complete that, honestly, I just never will. (I will really, really mean to though)... Instead, what I am doing is posting the email...
  7. Lillyth
    OMG!!! I just got of the phone with Joe from Sojo Foods - he is SO awsome! Despite the fact that according to the tests the Canadian Government conducted (that have a zero parts per million standard) the product contains no gluten, the company is altering their recipe from using malt vinegar to using regular vinegar. He is also contacting all the...
  8. Lillyth
    The way i toast mine is to do it slowly, on low, over and over again (anywhere from 5-7 times). The sides don't burn, the middle is perfect, and it feels like REAL bread, not toast, which I HATE with a passion. As for separating the slices, I use one of those deli-spreaders, like you see them use at a deli to put on mustard and mayo. Just slip it in...
  9. Lillyth
    I bought a box of Sojo FIsh & Chips at Whole Foods. It says gluten free right on the box - TWICE! Yet it says is contains malt viniger, which, I thought was NOT gluten-free. Sure enough, 10 minutes later (now), I have that tell-tale headache right in the middle of my forehead, like a band is across it. A sure sign (for me) or being glutened...
  10. Lillyth
    Pardon my language, but I heard the same poop. ONLY on the elbows, obviously eczema, only official dx being an internal biopsy... doggone doctors. My doc said (I don't have the results on the biopsy yet, though at this point, I am NOT hopeful) that the likelyhood of it being DH when on the arms (not elbows) is slim to none. What I want to know then...
  11. Lillyth
    dude... you have NO idea how many times that thought has *seriously* crossed my mind. maybe we can't digest gluten because it does not exist on our home planet... i think from now on, instead of telling people i have celiac, i'll just tell them i am from another planet, and that my species cannot digest gluten Oh, and be careful not to disturb...
  12. Lillyth

    ARCHIVED Is This Dh?

    Lillyth replied to Krista's topic in Dermatitis Herpetiformis

    it might be - i noticed my "rash" (as yet to be dx'd DH - waiting on the biopsy results) itched more when I was "at rest". beyond that, i don't quite know. maybe get it biopsied?
  13. Lillyth
    I don't think it's too late, per se - the sooner you get the vit. e on, in my experience, obviously, the better - but no, i don't think it's too late. Just be rigorous. As often as you can put it on (though don't be obessive about it putting it on, like, 97 times a day). I used vit. e on scars - it took a while to go away, but go away they have. When...
  14. Lillyth
    Hi all! Just wanted to share my biopsy-care with you all, since it seems to be working well. First off, I cared for it the way the doc said to first, polysporin(sp) and a bandaid for the first 48 hours. (Changing every 24 hours). My wound (or as I lovingly referred to it: "my hunka-hunka-missing-flesh") looked AWFUL for the first 48 hours. I...
  15. Lillyth
    I have good news for you! Though there are knives involved, it didn't hurt at all! I should also mention that although they normally give you nocaine, I am DEATHLY allergic (as in in might die), so they couldn't give it to me. What they did do was inject me with some saline soultion -- IT DIDN'T HURT A BIT!!! NOT ONE BIT! (I am, BTW, one of thoese...
  16. Lillyth
    My insurance will pay for my biopsy, minus a $20 copay. Is it possible for you to get insurance? Is there a government progam that can help? I am going in for the biopsy tomorrow. I'll let you know what's involved... Hopefully no kinves... During my bout with what I thinks is DH, but has been dx'd as exzema, I reacted to every single creme...
  17. Lillyth

    ARCHIVED Dh Or Eczema?

    Lillyth replied to dh204's topic in Dermatitis Herpetiformis

    I've had similar reactions. I was "gluten-lite" for about 9 months, and developed this rash. I cut the gluten out, and, funny enough, the rash has almost dissappeared. I've got a biopsy scheduled for day after tomorrow - I'd sau get yours scheduled ASAP, not so far out there that is dissappears... It MAY be DH, but without a biopsy, you don't really...
  18. Lillyth
    I have a biopsy Wednesday to check for DH. Other than eating gluten beofre (which I won't do), any tips? Like what part of the rash should be tested for what? (I've seen on other posts how the middle of the rash should have a certain test, and those near it another). Unfortuatly, the biopsy took so lnog to get that now the rash is 99% gone. Fricken...
  19. Lillyth
    I know nothing about gluten content in hydorgentated oils one way or the other, but I have been told by my chiropractor (who is with me on the whole celiac thing - in his words "why do you want to back on gluten to get tested when you know it makes you sick" - also he saw a more than 100% turn around in my physical strength after one week off gluten) that...
  20. Lillyth
    dude... dish soap? i had no idea we needed to watch out for dish soap. i have trader joe's brand. i don't know if it's okay, but based on the ingredient list it looks fine. i'll call tomorr if i have time & find out. sorry you're having a rough time... lil
  21. Lillyth
    I was going to reply to my above post anyway because I realize that it was not clear, so I'll just do that here, as I had some questions about some of the things you wrote too. First and foremost, I am not saying that no distillation process ever removes the gluten. What I AM saying is that according to my molecular biologist friend, SOME distillation...
  22. Lillyth
    Fair enough. I don't care if anyone chooses to drink stuff I react to, I just didn't want people thinking that distillation *always* removes gluten. The *should* part is fine, since, as celiacs we know that when something says *should*, we need to excercise some caution. I was just concerned that based on what I was reading (and not just from you...
  23. Lillyth
    I stopped using the cream yesterday. After spending the day itching like crazy, I showered as soon as I could manage, and vowed never to put that crap on my arms again. (Interesting side note, I had this spot between my third and fourth toe on my left foot that was itching. I put the cream on that, and it worked like a charm! Why should I NOT be surprised...
  24. Lillyth
    I am going to reference another thread here because I thought you might find t helpful. Open Original Shared Link Pay special attention to posts number 30 & 33. After I read post # 30, I decided to do my own research into the alcohol distillation process via an expert (a molecular biologist specalizing in protiens - which is what gluten is, a...
  25. Lillyth
    WOODEN SPOONS? Is there something I don't know about using wooden spoons? (I use them all the time - could they be contaminated?)
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