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Chris H

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  1. Thanks again for the reply, the fructose/fodmap line of thinking is where I’m at as well I think, I’m heading to my dietician tomorrow night, I’ll mention it to her. It’s disheartening but at the same time I feel like I’m getting closer to the answer. And then hopefully things can start to heal. ...
  2. Hey thanks for the reply. Actually ten years ago I had an episode I guess you can call it, where I had some sweets and an energy drink, felt really unwell, tired and uncontrollable thirst for a few weeks that went away, and the doctor told me I had pre-diabetes. Now since then, I’ve had countless b...
  3. Yeh that’s what I think I have. Peripheral neuropathy. So at night my feet can get really hot or really cold. And weight bearing pain is really brutal. There’s obviously a lot more to it but that’s the base of it. I had dizzy spells when taking out the gluten due to withdrawal symptoms, but now w...
  4. Good luck with the probiotic! I just started a week ago taking them as well. I’ve been drinking kombucha when I can as well, though not too much as it’s a bit sweet and I don’t want to aggravate my nerve pain with the sugars. I hope the probiotic helps
  5. Yeh All ive wanted for 6 years now was a doctor to just tell me what the problem is, and how I go about fixing it. I’ve had so many blood tests, all came back negative to celiac when I was eating gluten. But then I took gluten out when my nerve pain was at its worst and the pain relief was huge. ...
  6. I’ve been really strict with the gluten, I feel like I have anyway. I hardly ever eat out, and cook most of my meals. The GI sounds like a good idea, I’ve been looking into it. Thanks for your message, I really appreciate it, I’ve read a lot of your posts on other forums, you really know your stuff...
  7. Thanks so much for your message back, I’ve been googling GI’s all day. Hopefully one knows something about nerve pain caused by gluten. Thanks for the tips on the other stuff as well, I’ve made a point to sip my water the last few days instead of gulping it. I’ve put a lot of things in place to try ...
  8. No I haven’t, but I have no pain in my stomach. Which makes my condition really hard to pinpoint, I have no actual stomach pain or discomfort, but I feel it in my feet and body, sometimes straight away, sometimes hours later. I also haven’t had a solid bowel movement in a very long time.
  9. Hello I’m just posting on here to get some advice on my diet. I suffer from nerve pain that comes from my stomach, I haven’t been diagnosed but that’s what is happening, I took gluten out, had pain relief, then it came back, took out dairy and same thing, became sensitive to something else. I’v...
  10. Hello Erica, my name is chris and I’m from Australia. I have nervous system issues as well, mild balance problems, chronic nerve pain in my feet, fatigue. I went gluten free as a desperate attempt to try and help the pain in my feet as I had become addicted to painkillers and struggled through e...
  11. Sadly my nerve pain has gone back to where it was 9 months ago. With really slight numbness in my left toe. Since quitting gluten I haven’t felt the numbing of my toe. I’m getting a food intolerance test next Thursday. My diet is so strict I don’t know where I’m going wrong. But something is defi...
  12. I’ve had exhaustive tests for both PF and diabetes, as that’s what the doctors thought it was. I’ve spent about $30,000 on trying to get a diagnosis on my feet, and I finally landed on gluten ataxia. When I took gluten out of my diet, for the first time in years I actually had pain relief. I als...
  13. So does that mean quinoa as well? I work in construction, 10 hours a day, which is obviously very uncomfortable with my sore feet, but it also means I need to have carbs to get through a day, as my work is very labour intensive. I’ve decided to cut out rice for a week and see if there is any improvement. ...
  14. Hello I’m just messaging to see how your neuropathy is going? Have you had gradual improvements as the years gone on? Reading your post, you are having really similar symptoms to me. I’ve been 9 months gluten free now, but have had a lot of slip ups. Big improvement at the start, then has been a r...
  15. In case anyone was following this thread, my head has finally adjusted to the no gluten. It took a long time though, I put it down to sever withdrawals, all up it took about 5-6 months for all my neurological symptoms to calm down. The foot pain had been really good up to about 2 weeks ago, where...