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Dwight Senne

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Everything posted by Dwight Senne

  1. Dwight Senne
    Ditto to most of the other comments. I take ZERO pills or meds, and I like it that way! I will only take a pill if it is life or death - and even then I might stop and think about it!!! Besides, why do I need a pill? I've already been cured! (the diet) Since this disease is an autoimune disorder anyway, I doubt there ever will be a pill. Seems...
  2. Dwight Senne
    For about the first 9 months after going gluten-free, I slowly lost weight. Not much, maybe 5 - 10 lbs. My doctor was very concerned about this and ran all the tests for small bowel lymphoma. Fortunately, the tests were negative, and now I am slowly gaining. I don't mean to be an alarmist, but you should follow through with your gastroenterologist. It...
  3. Dwight Senne
    Jill, Loved the "tell her what she's won, Johnny" comment! As for your biopsy, how many samples were taken? From what parts of the small intestine? Who did the pathology? There are hundreds (maybe even thousands) of people running around who have had biopsies botched by either inept gastroenterologists (because they didn't take enough biopsies...
  4. Dwight Senne
    Thanks for all the suggestions! Greatly appreciated!
  5. Dwight Senne
    Will be traveling to the West and Northwest areas of Chicago in about a week, and thought while I was there, I might like to do some gluten-free shopping. Any good health food stores in the Palatine, Elgin, Aurora area that anyone knows of? I won't have a lot of time, so I can't stray too far off course! Thanks!
  6. Dwight Senne
    Hello fellow Iowans! That is great news about Biaggi's!! Thanks! In Des Moines, there is a place called Noah's Ark that makes the absolute BEST gluten free pizza!! Here in the CR area, the local Godfathers will make a gluten free pizza if you call ahead, but it isn't near as good as Noah's Ark! I have also had good luck at Lone Star Steakhouse by ordering...
  7. Dwight Senne
    Hi Heather, Ditto to everything Lily said! I had both "scopies" done at the same time. Piece of cake. Don't remember a thing. Zero problems afterwards. Generally speaking an Upper GI and an Endoscopy are two different tests. The Upper GI test involves drinking a barium solution while having xrays taken. The Endoscopy, of course, is the camera...
  8. Dwight Senne
    My endoscopy was also a piece of cake. They do not give a general anesthetic usually. What it is, is a mild sedative. I think most people are somewhat awake and vaguely aware during the procedure, but they rarely remember it. I did not remember a thing. I don't even remember the doctor coming into the recovery room afterwards and talking to me! I guess I...
  9. Dwight Senne
    My thinking is it would depend on your symptoms. If you showed signs of malabsorbtion (greasy, floating stools, lowered cholesterol, etc) prior to going gluten-free, this would indicate that there could have been significant villous atrophy. I doubt that would all be healed up in two months! However, if there were no signs of malabsorbtion, the endoscopic...
  10. Dwight Senne

    ARCHIVED Leaving

    Dwight Senne replied to a topic in Board/Forum Technical Help

    For some reason, my post about the national organization has been moved to the Publications and Publicity section.
  11. Dwight Senne
    Hi Leigh Ann, Yes, I agree that you have many of the traditional symptoms of Celiac. I had many of those same symptoms prior to my diagnosis. The key word in that sentence was "had"! Please do not "demand" anything of your doctor! That may put him/her on the defensive and actually be counterproductive to your health. Instead, explain your symptoms...
  12. Dwight Senne
    In a post in this topic entitled "Leaving", some interest was expressed about a national celiac organization to get the word out about Celiac Disease to both doctors and potential patients. While there are currently several "National" organizations, it is my opinion that they are not getting this job done - either because their focus is in other areas...
  13. Dwight Senne

    ARCHIVED Leaving

    Dwight Senne replied to a topic in Board/Forum Technical Help

    The interest expressed here in taking action to get the word out about Celiac is very positive. Since this post is already drifting steadily off course from the original topic (as I said, it's an excellent discussion - just don't want to take off in another direction in the same post), I have started a new post in this section about current and future...
  14. Dwight Senne
    Paula, Great news! I hope you feel better forever! However, I want to just caution you ahead of time... Since the Enterolab tests do not provide a diagnosis that is recognized by most doctors, insurance companies, IRS, etc, etc, you may wish to continue to ingest gluten until you get your results back. If they come back positive, this will allow you...
  15. Dwight Senne
    My mother had something similar to this, but hers went away after going gluten free. That you have been gluten-free for over a year and still have this problem is troubling. Have you mentioned this to your doctor? If not, please do!
  16. Dwight Senne
    Yes, I believe that could have given you a negative result. Unfortunately, both the blood test and the biopsy require you to be ingesting gluten for an appreciable time prior to the test in order for them to be accurate. I would recommend that if you are not already seeing a gastroenterologist, that you find one experienced in Celiac Disease and explain...
  17. Dwight Senne
    I'm very skeptical that you would still have symptoms two weeks later! I suspect there is something else wrong. Please contact your doctor and let him/her know what is happening. Perhaps you have become lactose intolerant - it is not uncommon.
  18. Dwight Senne

    ARCHIVED Leaving

    Dwight Senne replied to a topic in Board/Forum Technical Help

    This discussion is perhaps the most valuable on this board - for both sides of the issue! As debmidge mentioned, the doctors are able to see from this discussion what the patients feelings are. But also, we must understand the position of the doctors as well. I spoke to a GP recently who stated that to the best of his recollection, throughout his entire...
  19. Dwight Senne
    Unfortunately, I think the medical community has contributed to this dangerous "self diagnosis" trend by their unwillingness to accept the prevalence of Celiac Disease. For someone such as yourself, who has gone a year or more on the diet, it will be difficult to go back to gluten to get a diagnosis. But I think you should try. The reason I say that is...
  20. Dwight Senne
    Hi Laura, You say "wheat free" - is that the only gluten product you have avoided? If so, it is more likely that you have a wheat sensitivity, and not Celiac Disease. If you are completely gluten free (meaning no wheat, rye, barley, oats, spelt, etc.) then it is my unprofessional opinion that you should not be gluten free right now. It will be very...
  21. Dwight Senne
    My first question would be, how would you know if the Enterolab test was accurate or not? Let's say you go to a gastroenterologist and he orders a blood test followed by endoscopic biopsies. They both come back negative for Celiac. Then you have the Enterolab test done and it comes back positive. Which one is accurate? My second question would be has...
  22. Dwight Senne
    Steph, it's probably better for you in the long run that you are going to the UK. They are much more aware of the disease there than in Japan! You should have no trouble finding a competent doctor! Karina, I'm sorry if I have contributed to your fear. I did not mean to upset you - that was why I was originally ambiguous in my post. Do not worry...
  23. Dwight Senne
    Great recommendations so far. I just wanted to add that I completely understand what you are going through! It is very emotionally draining at first. Please believe me, it will get better! It is very overwhelming at first, but there is good information on the internet and you just need to give yourself a little time to digest it all. I agree with the earlier...
  24. Dwight Senne
    You also may want to have your doctor test you for a bacterial overgrowth in the small intestine. This is a real simple breath test - nothing invasive. I had that recently and after 10 days of antibiotics, no more problems!
  25. Dwight Senne
    Hi Gillian, Sorry if I led you astray. It has been awhile since I read the study. Technically, the study found a high incidence of previously undiagnosed Celiac disease in patients with small bowel lymphoma. By extrapolation, I said there is a higher incidence of that lymphoma in Celiac patients. The study was very limited in it's scope and did not go...
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