queenofhearts
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Latest Celiac Disease News & Research:
Everything posted by queenofhearts
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A sort of theoretical question for all you wonderful helpful people: I've just this week been diagnosed with Celiac (at the age of 49) & it came as such a surprise to me because all my life it has seemed like starches were the ONLY thing I could digest easily. I was a vegetarian for many years and although I now eat fish & poultry two or three...
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ARCHIVED How Do You Tell?
queenofhearts replied to queenofhearts's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh, wow, thanks, this is really helpful. It looks like I will be able to recognize the "evildoers" when I see them. That's a relief! Thanks so much, Leah -
ARCHIVED How Do You Tell?
queenofhearts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Yikes, I've just been diagnosed, just warned about the makeup issue, looked at my lipstick label & of course it's full of mysterious stuff like ethylene brasseate & tocopherol & sucrose polycottonseedate! How do you know if this stuff is derived from wheat? (Okay so I'm guessing that last one's from cottonseeds, but I couldn't resist adding... -
ARCHIVED Newly Diagnosed-- Head Still Spinning!
queenofhearts replied to queenofhearts's topic in Coping with Celiac Disease
Oh, Lisa, don't worry about freaking me out! It's just that there's so much new information to absorb. This is very helpful; ignorance in this case is definitely NOT bliss. I want to know ALL the sneaky stuff from the get-go! I'd be much more freaked out if after months of living without real sourdough bread & all the other baddie-goodies, I found... -
You're right-- I do feel lucky that this is something I can deal with, without drugs or surgery, just by controlling my diet. It's amazing that so many different symptoms can be traced to this one simple cause. I'm going to track down those brownies! Best of luck with your MIL & thanks for your good wishes. Leah
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ARCHIVED Newly Diagnosed-- Head Still Spinning!
queenofhearts replied to queenofhearts's topic in Coping with Celiac Disease
Thank you all so much for great suggestions & moral support! I feel less lost already. What a wonderful group! I never would have thought to go into the restaurant a day or two ahead of time, but that is a great idea-- that way when it comes to the actual meal I won't be so stressed out, nor will the chef, I hope. Lipstick & toothpaste... -
ARCHIVED Newly Diagnosed-- Head Still Spinning!
queenofhearts posted a topic in Coping with Celiac Disease
Hello folks, I'm very glad to have found this forum! I was diagnosed this week with Celiac. I'll be fifty years old next week & have had nagging symptoms for many years-- diarrhea, anemia, fatigue, migraines, heavy periods, joint pain-- but never connected the dots until this winter I had a check-up that showed elevated liver enzymes. After a retest... -
Hi Dana, I was diagnosed with a biopsy. After more or less dismissing my chronic-but-not-severe diarrhea, fatigue & anemia for years as "really nothing to worry about", my regular doctor finally referred me to Dr. Kohagen when blood tests, cat scan, &c. couldn't find a cause for elevated liver enzymes. Dr. K. took one look at my list of symptoms...
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Hi Dana, I was just diagnosed as Celiac by Dr. Kenneth Kohagen at Digestive Healthcare. (Near Rex Hospital.) I had been having "IBS" & anemia symptoms (among others) for over 10 years & getting no help from previous doctors, but Dr. K. finally put all the pieces together. I found him to be friendly, sympathetic, & very efficient. Hope this...