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queenofhearts

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Latest Celiac Disease News & Research:

Everything posted by queenofhearts

  1. queenofhearts
    I really feel for you, Eden. My previous doctors didn't catch on to Celiac's despite 20 years of recurrent diarrhea, anemia, joint pain & migraines. It was only elevated liver enzymes (& even then a clear CAT scan) that finally got me a referral to the wonderful specialist who almost instantly diagnosed Celiac's just from my list of symptoms. Endoscopy...
  2. queenofhearts
    I'm sorry, I don't have an answer on the fast food because I'm a newbie myself, & I don't eat fast food much anyway. But I wanted to welcome you to the forum, & assure you that someone will know! This is by far the most useful resource I have found in coping with this disease. My sons are college students, not Celiac as far as we know, &...
  3. queenofhearts
    Elevated liver enzymes are what finally got me diagnosed! My Gastro-Enterologist also told me that "hepatitis" simply means an unhealthy liver-- all the A's B's & so on are different illnesses that can harm the liver. The tests they run are for these known causes. The word "hepatitis" is about as specific as "headache." I'd never realized how...
  4. queenofhearts
    I was told by a customer service rep (via telephone) that the Kroger store brand aspirin is gluten-free. But a caveat: they wouldn't put any of their information in writing, & I'm too newly diagnosed to know if I'm getting glutened. So I'm not sure how reassuring this info is! Leah
  5. queenofhearts
    Thanks, I'm going to have to revisit buckwheat-- I always thought I disliked the flavor but then in reading up on gluten free grains, discovered that what I hadn't enjoyed was kasha, which is processed differently than the "pure" grain. Thanks for the suggestion! Leah
  6. queenofhearts
    Sorry, don't know about this brand, but see my thread about Nature Made-- a cautionary tale! If you can't believe vitamin labels, what the heck CAN you believe???
  7. queenofhearts
    I always double the yeast for a double recipe, but since I always double bread recipes, it's hard to compare rising times for me (in fact I frequently quadrupled recipes in my wheaty days... we eat a lot of bread in this house). In any case I NEVER just go by the time in a yeast recipe, because the timing changes so much depending on how warm or humid...
  8. queenofhearts
    Oatmeal used to be one of my very favorite things. I love it raw with milk & fruit-- learned about that in Denmark as a child-- & hate to give it up! Oatmeal bread, oatmeal cookies, all faves... but I've just been diagnosed & I'm going as straight & narrow as I know how until I get a handle on this thing. So I'm not taking the chance with...
  9. queenofhearts
    Just to clarify, Lister, the initials are confusing, but AIDS is actually Acquired Immune DEFICIENCY Syndrome, which is not at all the same as an Auto-Immune disease. Lots of folks mix these up-- I've even heard of people being afraid they could catch Celiac. I'm not a doctor, by the way, but I do know that the medical definitions are very different. After...
  10. queenofhearts
    If I had a Costco nearby I'd go there, because of their fair labor practices, & just because they are not part of the Unholy Walmart Empire-- sorry if that offends, ChelsE, but I do object to many of their business practices. Unfortunately there's not a Costco in my city yet (I do hear rumors one is coming), but I stopped going to Sam's after reading...
  11. queenofhearts
    Your experience is a great lesson! I too have a hard time with "being difficult" & dread asking for special treatment. So far that has been the hardest part of this diet! I was a vegetarian for many years & thought I would have a handle on this issue, but gluten-free is SO much more complicated, & some folks just refuse to believe that the...
  12. queenofhearts
    I'd love to get together sometime. I'm learning to bake gluten-free so maybe you could come over & try my wares one Sunday? Leah
  13. queenofhearts
    Just saw this at Whole Foods in Raleigh too!
  14. queenofhearts
    This is an interesting thread. I'm a muttly mix of Irish, English, Scottish, & French. Dark brown hair (not very gray for my age), hazel eyes, very fair skin, some freckles, round/oval face, definitely the baby face thing as I was carded into my late 40's! In college people always thought I was about 14. (I think being skinny is part of that too though...
  15. queenofhearts
    My family gobbled these up (adapted from an old family recipe): 1 cup rice flour 1/2 c. potato starch 1/4 c. tapioca flour 3/4 tsp. xanthan gum 1/2 tsp. salt 2 tsp. baking powder 1 tsp. baking soda 1/4 c. butter (1/2 stick)-- cold 2 Tablesp. shortening such as Crisco 3/4 c. (or slightly more) buttermilk Sift the dry ingredients & mix them...
  16. queenofhearts
    Hi Lindy! I'm a mad baker myself so one of the first things I did after my endoscopy (even before the official diagnosis) was to head straight for the kitchen & start experimenting with different flours. Do you know about xanthan gum? It replaces gluten in recipes to help bind the starches, aid rising & keep the crumble factor down. You just need...
  17. queenofhearts
    I feel a little silly posting here since I'm 50! But about the veggie burgers falling apart, it occurs to me that the gluten is probably what binds the other kind together, & if it's anything like baked goods, it might help to add a little xanthan gum. And maybe some egg or egg powder. Both are good at keeping bread & cake from crumbling to bits...
  18. queenofhearts
    Linda Lee, if you are sensitive to red pepper, I'm afraid you'll have the same problem with cayenne-- it is basically ground up red pepper flakes. I always thought hot peppers in general were "good for you" nutritionally too, though of course they cause stomach upset for some folks. Bones, I had the same experience with Kroger as you did with Lawry. ...
  19. queenofhearts
    OH boy, this just keeps getting better. Here's my latest communique from the "Beautiful" People at CoverGirl: GRRRRR. I'm sure my Dr. would write them but can anyone explain WHY he has to????? Or why the answer should take so long? (Please note that my very simple question was as follows: does Outlast Lipstick contain outsourced fragrances?) Leah...
  20. queenofhearts
    Did you see the link to Epicurious? Using the advanced search you can get hundreds of gluten-free recipes, many from Gourmet or Bon Appetit. Open Original Shared Link And be careful of those frozen veggies if they have any sauce or flavoring. Eat well & be well! Leah
  21. queenofhearts
    Anybody from the Triangle? I'm in Raleigh & would love to know some local connections. Leah
  22. queenofhearts
    Just this moment I was following a thread about varicose veins. WHAT, THAT TOO!?! (Copper deficiency it seems.) Had some since my teens, which struck me as strange even then. (I was quite thin & a runner so none of the usual causes applied...) It really boggles the mind. I still sometimes wonder if this whole experience is only a dream-- it just...
  23. queenofhearts
    Yeah, it is absolutely fascinating how many bizarrely unlikely symptoms cluster around Celiac. When I was diagnosed the doctor went down only part of the list & I felt chills down my spine-- I had almost all of them! Nobody had connected the dots before. And when I came to this site I realized even more of my fun little collection of problems came...
  24. queenofhearts
    Funny thing-- I too am 2 weeks trying to be gluten free, & my first restaurant experience was sushi (which went okay) then creme brulee! I explained my needs & asked the waitress to check with the chef & make sure there were no starch stabilizers in the creme brulee, which she did, so I ordered with confidence. I was somewhat shocked when the...
  25. queenofhearts
    I too had both done on the same day. If you need both that is definitely the way to go. To be honest, the day before was the hard part-- I am one who normally eats small nibbles basically all day long, & a day's fast was really tough for me (even with all the juice). The Fleet was really unpleasant to choke down on an empty stomach. And since diarrhea...
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