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Latest Celiac Disease News & Research:
Everything posted by queenofhearts
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ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I know CoverGirl Outlast is okay... it took weeks of pestering to get that little snippet of info, so I didn't ask about other products. Leah -
ARCHIVED Anybody Else A Scientist?
queenofhearts replied to lpellegr's topic in Introduce Yourself / Share Stuff
Nope, I'm an artist, but my dad is a chemist & I told him his analytical influence was very useful when I'm concocting gluten-free goodies in the kitchen! For that matter, mixing flours is a bit like mixing colors... Leah -
I'm wondering if there is a connection here, or if I'm dreaming... All my life I've been a mosquito magnet, always more bites than anyone else in a group, piling on the repellent & still getting bitten. I was noticing the other evening in the garden, I had not applied repellent, but the skeeters were flying around me but NOT BITING!!! I can NEVER...
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ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lipstick, most definitely. Hand lotion, unless you NEVER touch your lips or eat with your hands. Facial moisturizers, foundation, sunscreens, &c. that could "melt" in perspiration & get into your mouth, shampoos & conditioners that could drip into your mouth in the shower-- those are the biggies. I don't worry so much about things like foot... -
ARCHIVED Upper Gi Endoscopy
queenofhearts replied to Beccc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had both upper & colonoscopy on the same day, & my only real symptom was a headache the following day. I think this was partly dehydration & low blood sugar, but it may also have been related to the anesthesia. I did work that day, but not for a full 8 hours, nor was I up to my usual level of concentration. By the following day I was fine... -
ARCHIVED Not Sure If Son Has Celiac?
queenofhearts replied to Izak's Mom's topic in Parents, Friends and Loved Ones of Celiacs
Sure sounds like it to me! I've just been diagnosed at the age of 50 but have had trouble with recurrent diarrhea since childhood... there are all sorts of symptoms, variations & combinations, & if the gluten free diet is helping, I'd say that's almost a dead certainty that he is at least gluten intolerant. And this may be the one place on earth... -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Found the Burt's Bees list but it took some looking so I've copied it: Appropriate List For Gluten Restricted Patients Products NOT containing wheat, Oat, Rye & Barley derived ingredients Updated: March 24, 2006 BABY BEE BABY BEE DUSTING POWDER BABY BEE CR�ˆME BABY BEE LOTION �€“ DAIRY BABY BEE BUTTERMILK BATH �€“ DAIR... -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I posted a list of Burts Bees recently. If you search Burts Bees Leah, it will probably come up. Leah -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There are lots of safe supplements out there; I use Nature Made mostly, they assured me all of theirs were safe except for the chewables. Don't know about the casein, sorry. Leah -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I too feel like I never really knew what it was to feel well. I've had gastro symptoms & weakness since childhood, recurrent depression, nightmares & anemia since adolescence, & all manner of ailments as I reached middle age. I just thought that was what my life would always be like, so the Celiac diagnosis is almost a dream come true. I still... -
I've done the physioball chair too-- it's great when I have to work at the computer for a long time at a stretch. It's amazingly helpful! Much cheaper than those prescription chairs too! I work at home so only had to take some ribbing from my DH & kids... Leah
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ARCHIVED Where Do You Buy Your gluten-free Flours Online?
queenofhearts replied to emcmaster's topic in Gluten-Free Foods, Products, Shopping & Medications
I've only bought Authentic Foods direct from the company online, & it's still pricey!!! Do you by chance have any Asian groceries nearby? That's where I've found my best buys, with rice, bean, tapioca & other flours at amazingly low prices. If you don't have any near you, try searching online for Asian foods & see what you find. That's the... -
ARCHIVED To Eat Gluten Free Or Not
queenofhearts replied to mary lynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If I were you, I would absolutely take the test now, while you are still consuming gluten. And I'm afraid your doctor is not quite accurate that no permanent damage is done by eating gluten. For one thing, with damaged villi, your body is not absorbing nutrients properly & deficiencies can cause all sorts of lasting problems, some fairly stealthy (like... -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've had both of these symptoms, though not severely, & they often appear on this board. Are you anemic? Do you have low blood pressure? Both can result from Celiac malabsorption & cause these symptoms. It just takes time to heal enough to get those nutrients where they are supposed to go. My doc said to expect about 3 months before I really... -
ARCHIVED Do These Sound Like Symptoms Of Being Glutened?
queenofhearts replied to Sarah8793's topic in Coping with Celiac Disease
Sounds like it might be gluten, but I'm curious-- have you been painting before this time? It could just be repetitive motion injury; this is easy to get if you suddenly do a lot of a motion that you hadn't been doing before. It can stress the nerves somehow, like carpal tunnel, & cause all sorts of weird tingling & discomfort. Leah -
ARCHIVED Gluten Free And Still Miserable
queenofhearts replied to Gentleheart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, Blanchemae, Welcome to the board! I predict you will find it as helpful as I have. These folks know way more than the doctors! And provide great moral support. It's perfectly appropriate to ask ANY question (there's even a chat place for non-celiac stuff) & there is almost always someone who knows the answer. I'm sort of in the same... -
I would suggest upping the frequency too. I had twins & there wasn't enough milk for both to last more than 2 hours, so I just nursed every 2 hours until my boobs figured it out! Maybe even more often right at first. I realize not everyone has this option! I work from home so it wasn't as impractical as it sounds. One of mine was also a little slower...
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ARCHIVED Raleigh-durham-ch Area?
queenofhearts replied to queenofhearts's topic in Introduce Yourself / Share Stuff
No, but that's a great tip! Thanks! I have family in Durham so I get over there fairly often. Do you have any restaurants there that you trust? Leah -
I had no idea that I was Celiac when I was pregnant, but I did have severe hives just after my boys were born, which were never explained. Now that I look back, I wonder if it was a gluten-related thing... could've been just stress or wacky hormones too I guess... the ironic part is that the only treatment I was allowed (due to breastfeeding) was oatmeal...
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ARCHIVED Newly Diagnosed - So Much Pain
queenofhearts replied to chgomom's topic in Coping with Celiac Disease
Welcome to the forum-- ask ANYTHING you want here. That's the whole idea! This board has been a real lifesaver for me, by far the most helpful source of Celiac wisdom & moral support. I've definitely suffered from "bone pain" over many years, mainly in knees & hips but sometimes all over. I used to say it felt as though I'd fallen down the... -
ARCHIVED Annalise Roberts' Coconut Cake
queenofhearts replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
Way to go, Fiddle-Faddle! That is one great cookbook. I still haven't made the coconut cake, but it sure sounds fabulous! And the jam sounds like a delicious addition. Leah -
ARCHIVED What Cleans/kills Gluten? How Long Is It With Us?
queenofhearts replied to sillyactsue's topic in Coping with Celiac Disease
Something I learned years ago (I'm an artist, avid cook & gardener & my hands need LOTS of washing!)-- use liquid soap, put it on FIRST before you wet your hands, rub up a lather, & THEN rinse it off. This lets the soap do its solvent job much better. You'll notice the difference especially if your hands are greasy, but I have a feeling it would... -
ARCHIVED Best gluten-free Baking Flour Mix
queenofhearts replied to emcmaster's topic in Gluten-Free Recipes & Cooking Tips
Or maybe it's fom Shakespeare-- "My wheaty days, when I was green in wisdom" That's the truth-- green in a lot of ways! Leah -
Oh yeah, it would be SO great-- it's the small stuff that drives me crazy. I have very little difficulty staying away from direct gluten-- cc is the hard one. I hope it's real! Leah
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ARCHIVED Corn And Rice Gluten
queenofhearts replied to coldandhardy's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm really surprised that the ADM chemist wouldn't be aware of the differences between the grain proteins-- I thought it was pretty basic. My sister's girlfriend who studied Food Science was well aware of the different structures & she was still in school. I guess that's why you can't always trust the "experts"! Leah