Tori's Dad

I can't answer your question as to whether you are expecting too much from your friends, but I can tell you what we have come to expect....nothing. Our attitude has been that we expect absolutely nothing from friends and family. That way we are never dissapointed. I will add that we have been so blessed in that we have gotten tons of support from friends...

Hi, We are Methodist but the communion ceremony is the same. What we do is bring 2 pieces of gluten free bread (daughter and wife) in a ziploc and lay it on a tray at the alter. Our pastor had these thimble sized "portable communion" kits that have a foil tear off lid with a wafer inside the lid. We put one of these cups of juice beside the bread. When...

For the most part we simply don't eat out. The anxiety is not worth the not having to wash dishes. On the 5-6 occasions we do eat out, my wife is also Celiac so she and my daughter sit on one side of the booth and my son and I sit on the other.

Awesome Mrs Turbo! On May 22nd we celebrate 2 years for my preciuos Tori and it only gets better!

Bravie, As a parent with a Celiac daughter, and husband to a Celiac wife I am amazed/horrified when I read stories about parents like yours. I am so sorry. It sounds like she is imune to medical logic and is in need of some Biblical logic as well. Tell her that God punishing his people for their sins went out with the Old Testament. God sacrificed his...

Do Duraflame type fire logs contain gluten? I can't call them until Monday to ask. I know some charcoals do but I let Tori roast marshmellos over one of those synthetic fire logs and now she is acting funny. She is not throwing up like a full fledged glutening but she is sad and crying for no reason and just went to sleep much earlier than she normally does...

My daughter was diagnosed 2 weeks after her 5th birthday. She would go 2 days without a BM then have 3 within half an hour. They were loose and looked greasy or fatty. Like foam floating on the water in the bowl. In her case, the smell was unbelievable! In addition she was below 5th percentile. Your child's symptoms sound quite different but one thing...

My wife is an asymptomatic Celiec so it's real hard to tell if she has been glutened or not. After a beach trip with the girls this weekend and LOTS of eating out at restaurants, she began to feel tired and quesey Monday. On Tuesday she had the big D, bloating and the normal symptoms of a glutening (for others that is. She never had any symptoms before) but...

65, It WILL get better! A couple of brief but very important points. - At least for the short term, don't plan to eat out. It's too complicated, too frustrating and too dangerous. My daughter is only 6 so we can live with that, but if you travel with work or anything it will be tougher for sure. - A nice simple meal we love to fix is a Hormel Vaccum...

Guys, Don't know if you saw it but I just posted yesterday that Kingsford does NOT use a wheat binder any more. They use corn starch now. I would assume that you would need to buy a brand new grill though to get the contamination off of it from the old stuff. And forget about using community grills like at parks and stuff because other brands probably...

I had done a search in these forums a while back and found info stating that charcoal contained wheat and we have been avoiding it. However, in anticipation of an upcoming camp out, I e-mailed Kingsford about their Match Lite product. They responded that the product is made from waste wood with corn starch as the binging agent and is gluten free. I guess...

Hi everyone, Many times it seemed like this day would never come, but now I am the one posting about the one year anniversary of my daughter's (and a few months later my wife's) Celiac diagnosis. What a difference a year makes! Last year, prior to the diagnosis, we had my daughter's birthday party (May 1st) at a local gymnastics center. She wanted so badly...

As far as cereals go, my DD likes Fruity and Cocoa Pebbles, Dora Stars and Trix.

I think you are going through a fairly normal process. My 5 year old ate us out of house and home for 3 weeks after going gluten free. Prior to that, and agian now, she was a fairly light eater. With the 5 year old you can most likely rule out any psycological eating behavior so that tells me that it's normal for the body to say "hey I am actually getting...

Playdough is the big one. Tori just started K and we got her some gluten-free playdough from Discount School Supplies and sent it to school. Most crayola products are ok but what we did was go to the school and meet with the art teacher, class teacher etc. and got them to show us all of the supplies they use. We took down product info and phone numbers...