
jabberwife
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Everything posted by jabberwife
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ARCHIVED Before I Visit The Doc...
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks! My sister, once she eliminated gluten and corn from her diet, was able to add dairy products back in. Here's to hoping! -
ARCHIVED Before I Visit The Doc...
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Regarding the gene thing - yes, I've heard mixed answers on that. I would be most curious as to what genes my father has, as he's the one that has been clinically diagnosed as celiac. My brother and sister were self-diagnosed. I am more sad about the dairy-free thing than going gluten-free. Which I'm sure would be funny to some. I just love cheese, even... -
ARCHIVED Before I Visit The Doc...
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The doctor's visit: Dr. Secor is a really great guy. I know I've only been for 1 visit, but he sat down, listened and took notes of all of my issues, looked through the copies of blood work and my Enterolab results (which were negative) I brought, and then explained all that he knew of celiac disease, gluten intolerance, etc. He does understand that... -
ARCHIVED Before I Visit The Doc...
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'll let you know how the doc visit goes. I did create a list of the symptoms I was having, plus notes on what is still occurring, what is better since the gluten-free diet, etc. I think it's definitely genetic - my dad, sister, and brother all have it! I don't have the actual blood tests. (Should've asked for my PCP to send a copy - duh) I do have the... -
ARCHIVED Before I Visit The Doc...
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The doctor is Dr. John Secor, MD. He's at the Dallas Presbyterian Hospital. He is an active advisor for the Lone Star Group for DFW Celiac. I haven't seen him yet, so can't give a personal recommendation, but I figured with his interest in celiac, it was a good place to start. (My current PCP labeled celiac as a disease where you only have diarrhea... )... -
ARCHIVED Before I Visit The Doc...
jabberwife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have an appointment with a gastroenterologist (that is very involved in the Celiac support groups here in Dallas) on Wednesday. My reason behind going - I have had IBS-C for several years (actually, as long as I can remember...but diagnosed only for about 6 years.) I have tried it all, changing diet (I eat healthy), relieving stress, exercise, increasing... -
I echo the same responses others have given...salads! Almost every day for work I bring a garden-like salad...greens, plus a variety of veggies (right now baby tomatoes, since it's summer!), snap peas, broccoli, whatever I have! Add a bit of leftover roast chicken, a hardboiled egg, or some cheese. Sometimes I even had a handful of sunflower seeds. Pack that...
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ARCHIVED Gluten-free, Dairy-free Pecan And Cashew Cookies
jabberwife posted a topic in Gluten-Free Recipes & Cooking Tips
Just wanted to share - I have a food blog and recently posted this cookie recipe. These cookies have no grains, no butter, yet they taste like pecan pie. They're deliciously chewy and easy to make...and I dare you to eat just one. Check them out here: Pecan and Cashew Chewy Cookies, as adapted from SippitySup, who borrowed it from Harris Ranch 2 1/... -
ARCHIVED Anyone Else Have A Problem With Constipation?
jabberwife replied to marlene57's topic in Coping with Celiac Disease
Burdee, did you even try psyllium before this? I am considering some HCl, because I've been gluten free/dairy free (lite, I've had a little cheese once or twice) for about 60 days, and the constipation is ridiculous. I've tried magnesium and Vitamin C, I eat fiber like a crazy person, I even tried psyllium (the natural, gross, not Citrucel stuff) and it worked... -
ARCHIVED Ok, So What Is Going On With Me?
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What do you mean by leftovers being a no-no? Is it because they might grow more bacteria in a certain time? If I can't do leftovers, I'm not sure how I'll manage lunch! A salad every day with a can of tuna just seems like it'd get awful old! -
ARCHIVED Ok, So What Is Going On With Me?
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you everyone for your thoughts and suggestions. I've been trying to eliminate other things I think might be contributors to this problem. Last week I started to take acidophilus & bifidus, and some digestive enzymes. No real change. I also bought psyllium, thinking that since it was a nice, natural laxative and non-habit forming, it would help.... -
ARCHIVED Articles On Seronegativity
jabberwife replied to Kottemamman's topic in Publications & Publicity
So, does this also apply, would you think, to stool tests like Enterolab? They're testing for similar things, it's just supposed to be more sensitive, right? -
ARCHIVED Ok, So What Is Going On With Me?
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Really? That's interesting. Would you have to show up on the IgA tests as having 0 or 1, or is something like a 5 or 6 still mean you could have the deficiency? I have heard that this deficiency seems to happen somewhat more often with celiacs. -
ARCHIVED Ok, So What Is Going On With Me?
jabberwife replied to jabberwife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have been trying to be very careful about CC in the house...and I've checked personal care products. I read on IGA deficiency, and it seems as though in order to have that, you have to be someone who's likely to get infections often. I'm actually pretty resilient, I rarely get colds or flu or any infections. I haven't been sick since Thanksgiving (knock... -
ARCHIVED Ok, So What Is Going On With Me?
jabberwife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello everyone...I would love if someone would take the time to read through this and help me out! Let me give you the big, full picture, so that maybe I can find someone else with the same difficulties I'm having. Celiac/gluten intolerance runs in my family, first of all. My dad was diagnosed about 15 years ago (biopsy), and my brother and sister both... -
So all of these roux ideas you all are talking about, they brown with the oil like traditional flour? Cause my husband loves to make this Emeril recipe for "Turkey Gumbo Ya-ya" and I LOVE LOVE LOVE it, but now I can't have it. Would love to have some flour idea to subsitute and make the gumbo taste yummy, without altering the flavor.
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OK, just wondering kinda what my odds are. I have a father, brother, and sister who are all celiac. I have been told I have IBS, but in Jan 2005 had a blood test that came back negative. IgA at like 1 unit or something. Went to a gastroenterologist who still said it was IBS and prescribed me Zelnorm. Quit taking that after a few months, certainly doesn't...
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ARCHIVED Screened Positive On 1/3 Antibody Tests
jabberwife replied to Deb O (UK)'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hang in there. I'm in the same boat. I scored negative on blood tests and Enterolab (but I did notice that although both times, my IgA were in the normal range, the blood test showed a 1 unit read, and the Enterolab showed a 6, a year and a half later. Does that mean anything??) I did come up with 2 DQ1 genes (not the major ones for Celiac, but still predisposed... -
ARCHIVED I Tested Negative Through Enterolab. Now What?
jabberwife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, here are my test results. Normal. I was gluten free for only like 2 weeks prior to taking it, so I imagine that my numbers weren't all that much higher before. Fecal Antigliadin IgA 6 (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 5 Units (Normal Range <10 Units) Quantitative Microscopic Fecal Fat Score ... -
ARCHIVED Going Crazy And Becoming Bored Of Gluten Free Food
jabberwife replied to a topic in Coping with Celiac Disease
Seriously, try that crust from Whole Foods. It's frozen in their bakery, and all you have to do is thaw it and put toppings on and pop it in the oven. It's great! It's not even heavy like so many other gluten free breads. I made brownies from this Bob's Red Mill Brownie Mix last night....and let me tell you, they're pretty darn awesome! They're even better... -
ARCHIVED Waiting For Enterolab
jabberwife replied to oceangirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I haven't gotten mine yet. It's been 2 weeks tomorrow. I'm getting impatient! I feel like the Jeopardy theme should be running in the background! -
ARCHIVED How Long Does It Take
jabberwife replied to porterpotti's topic in Coping with Celiac Disease
I'm at about 48 hours. I get some symptoms right away--brain fog, bloated, headache, feel like I have a hangover the next morning. C for the first 24 hours, then all of a sudden the intense cramping, D, etc lasts for about 6 hours. Of course, I'm new to this, so these may change the longer I go gluten-free. -
ARCHIVED Getting Impatient With Improvements...
jabberwife replied to jabberwife's topic in Coping with Celiac Disease
I've checked all cosmetics, so I know it's not that. I do chew Orbit, which has sorbitol. Hmm...anyone know a good chewing gum that's not gonna do that to me? I'm horribly addicted to gum (used to smoke back in the day, quit 2 years ago) and so I'd like to find something else that's better for me. I suppose I should log my food. I'm just so ready for... -
ARCHIVED Getting Impatient With Improvements...
jabberwife posted a topic in Coping with Celiac Disease
I've been gluten-free for a month. Better, and did one gluten challenge a week and a half ago, to see for sure that this is the root of my problems. It is...believe me! But I'm still dealing with C (I'll go maybe once or twice a week, tops) and gas/bloating, flatulence (which is nice and embarrassing) even when I eat something I KNOW is gluten free. I hardly... -
You have to ask the chef to be sure. Some queso has chili in it, and some chili has gluten in it. And Velveeta is Gluten Free. YUM!