No popular authors found.

Categories

No categories found.


Join Celiac.com's forum / message board and get your questions answered! Our forum has nearly 1 MILLION POSTS, and over 62,000 MEMBERS just waiting to help you with any questions about celiac disease and the gluten-free diet. We'll see you there!






Follow / Share


  FOLLOW US:
Twitter Facebook Google Plus RSS Podcast Email  Get Email Alerts

SHARE:

Popular Articles

No popular articles found.
Celiac.com Sponsors:

Celiac Disease Symptoms

Celiac.com 02/08/2007 - There are no signs or symptoms typical for all people with celiac disease. Signs and symptoms and can vary greatly from person to person.

People with celiac disease often have general gastric complaints, such as intermittent diarrhea, abdominal pain and bloating. Some people with celiac disease, however, suffer no gastrointestinal discomfort at all.

To make matters of diagnosing celiac disease even more challenging, celiac symptoms can also mimic symptoms of other conditions, such as anemia, Crohns disease, gastric ulcers, irritable bowel, parasitic infection, even various skin disorders or nervous conditions.

It is not uncommon for celiac disease to present itself with symptoms that are far more vague. Such symptoms can include: dental and bone disorders (such as osteoporosis), depression, irritability, joint pain, mouth sores, muscle cramps, skin rash, stomach discomfort, and even tingling in the legs and feet (neuropathy).

Celiac disease results in malabsorption of nutrients.

Depending on the degree of malabsorption, the signs and symptoms of celiac disease vary among individuals, ranging from no symptoms, few or mild signs and symptoms, to many or severe signs and symptoms. There are two categories of signs and symptoms:

Signs and Symptoms of Malabsorption, Malnutrition, Vitamin and/or Mineral Deficiencies Associated with Celiac Disease:

  • Abdominal cramps, gas and bloating
  • Anemia
  • Borborygmi (stomach rumbling)
  • Coetaneous bleeding
  • Diarrhea
  • Easy bruising
  • Epistaxis (nose bleeding)
  • Failure to thrive
  • Fatigue or general weakness
  • Flatulence
  • Fluid retention
  • Foul-smelling or grayish stools that are often fatty or oily
  • Gastrointestinal symptoms
  • Gastrointestinal hemorrhage
  • Hematuria (red urine)
  • Hypocalcaemia/ hypomagnesaemia
  • Infertility
  • Iron deficiency anemia
  • Lymphocytic gastritis
  • Muscle weakness
  • Muscle wasting
  • Nausea
  • No obvious physical symptoms (just fatigue, overall not feeling well)
  • Osteoporosis
  • Pallor (unhealthy pale appearance)
  • Panic Attacks
  • Peripheral neuropathy (nerve damage)
  • Stunted growth in children
  • Vertigo
  • Vitamin B12 deficiency
  • Vitamin D deficiency
  • Vitamin K deficiency
  • Vomiting
  • Voracious appetite
  • Weight loss
  • Obesity

Conditions and Disorders Associated with Celiac Disease:

Lastly, Dermatitis herpetiformis is an itchy, blistering skin disease that also associated with gluten intolerance. Rashes usually occurs on the elbows, knees and buttocks. Dermatitis herpetiformis can also cause significant intestinal damage identical to that of celiac disease. However, people who suffer from Dermatitis herpetiformis may also be entirely free of noticeable digestive symptoms. Treatment with a gluten-free diet, in addition to medication to control the rash, usually brings about significant improvement.

Celiac.com welcomes your comments below (registration is NOT required).



Related Articles




Spread The Word





114 Responses:

 
Kaya Merrill
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
19 Nov 2007 1:04:02 PM PST
I have all the symptoms except for osteoporosis, and I am not a child. Thanks, Kaya.
(Comment Replies Disabled)

 
Deirdre
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Jan 2010 10:22:21 AM PST
This is amazing! Seriously, the majority all the symptoms posted above are what I have! Just about every morning I wake up I feel perfectly fine, but as I move and begin to get up and literally move from my bed I feel light-headed and feel as if I could black out.. Scary! Also, when I eat breads and dairy products, I noticed I feel bloated, and literally sick to my stomach. I'm 20 years old but have already noticed a difference since I'm staying away from Gluten-Free foods :) It gives me hope to tell people I'm not crazy, and this is a very common medical problem that should be more talked about!! My mom earlier this past year was diagnosed with Mantle Lymphoma, which is incurable. She herself said she experienced a lot of these symptoms and the fact there's so many people being diagnosed with cancer is saying we need to look closer at the issue!
(Comment Replies Disabled)

 
Penrose
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Nov 2007 5:29:06 PM PST
After surviving rectal cancer, chemotherapy, radiation, an ileostomy, an ileostomy take down; food allergies - particularly to Gluten it seems - have worn me down to a frazzle and made me incredibly sick. Am undergoing testing for celiac disease and hope for the best. Thanks for the information.
(Comment Replies Disabled)

 
Mila
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Nov 2010 8:33:59 PM PST
I'm happy you found a possible answer I hope you thrive.
(Comment Replies Disabled)

 
Robert Beebe
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
15 Dec 2007 12:14:16 PM PST
I was completely unaware that such a disease even existed. I have all of the symptoms! The treatment seems easy enough, which would be a good diagnostic tool. Thank you. B. Beebe
(Comment Replies Disabled)

 
Jeanette James
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
29 Dec 2007 11:32:29 AM PST
So very informative! Thank you, thank you, thank you!
Jeanette
(Comment Replies Disabled)

 
beverly lees
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Jan 2008 10:25:59 AM PST
I think that it is wonderful that there is this kind of information to the public, I myself have a rash and when I read about this I quit all bread and cereals, and my rash went away , thank you very much..
(Comment Replies Disabled)

 
Ginger
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
11 Jan 2008 1:11:19 PM PST
There is a last and final symptom and that is non Hodgkin's lymphoma cancer. That was how I found out that all my childhood pains and indigestions and such were directly linked to celiac disease. I went over and beyond gluten intolerance. My pathology book informed me of the final result after I'd done chemo and radiation. Go figure. lol
(Comment Replies Disabled)

 
Jane
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
02 Aug 2009 7:30:17 PM PST
I had a biopsy done for lymphoma. It came back reactive lymph node but didn't know why. Go figure
(Comment Replies Disabled)

 
Leah
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Jan 2008 3:48:52 PM PST
This site has been a god send. I am a physician struggling with this disease and multiple other food allergies. It is nice to know that I, as a medical professional, do not feel as if I have to come up with all of my own answers. This disease definitely has been education for me in so many ways. Please keep the information and articles coming. By the way anyone looking for a great physician in Boston, I have been a patient of Dr. Catherine Cheney's for a while and she is top notch!
(Comment Replies Disabled)

 
Carles Ramos
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
13 Feb 2008 11:48:07 AM PST
Yes, you are right. Thanks for the info. I've got nine out of ten symptoms of the list and a few more: regular rashes of candidiasis, insomnia, hemorroids and last one, maybe related maybe not, bladder cancer.
(Comment Replies Disabled)

 
Vanda
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
02 Mar 2008 3:03:17 PM PST
I broke out 15 years ago and no one could tell me what was wrong. I broke out again last spring still no answers. My oldest daughter has been having problems and was diagnosed with celiac disease and was told it is hereditary. My youngest is also having the same symptoms so I will be scheduling an appointment to find out if I have celiac disease.
(Comment Replies Disabled)

 
Helen Jordan
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Mar 2008 12:58:35 AM PST
I got on to this site, my daughter has all these symptoms,
will follow up on this.
(Comment Replies Disabled)

 
stacey
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Mar 2008 9:20:19 AM PST
Thanks for the info my son is 18 months old and has been in and out of hospital 4 the last six weeks he has quite a few of the symptoms you have said my son is being tested for celiac and he is on iron supplements - I am quite convinced that he has got it.
(Comment Replies Disabled)

 
Linda
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
30 Mar 2008 11:00:05 PM PST
How in God's name do you get through to people that this is NOT a joke, it's NOT just a tummy ache, and it's NOT in your head? As if I would be wasting time & money eating such a bloody expensive & inconvenient diet! Thanks for the DDX list. By the way, for some of us, it's severe constipation w/severe inflammation and other fun things like fistulas.
(Comment Replies Disabled)

 
RITA
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 Apr 2008 8:41:19 AM PST
Thank You for the informative information. I am now raising 4 grandchildren on my own (son deceased) and have found out that 2 of the children need to be on this diet. I hear how expensive it is and don't know how I am going to be able to accomplish all I need to for their benefit, but having this site for information and resources is a God send. Looking forward to trying some of the recipes.
(Comment Replies Disabled)

 
Elene Murray
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Aug 2010 5:13:29 PM PST
There is no need for this diet to be expensive. Just cut out most of the grain products and go for gluten free old fashioned oats, buckwheat & brown rice with a little gluten free bread now and then. You'll figure out ways to eat inexpensively. The gluten free grain products are mostly junk food anyway. My suggestion is not to have ANY products in the house that contain gluten. ALL will be healthier.
(Comment Replies Disabled)

 
tamrene
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Sep 2010 6:47:28 AM PST
Feed them vegetables, beans, meat, rice, and fruit. That is what everyone should be eating anyway. I have two fruit bowls on the counter at all times for my four kids.. whatever fruit is on sale. Eggs for breakfast. Do not buy processed foods. You entire family will live longer and healthier without them.
(Comment Replies Disabled)

 
LOIS
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
03 Apr 2008 1:23:06 PM PST
THANKS FOR THE GOOD, CLEAR EXPLANATION. It is important to also mention non = celiac gluten sensitivity, as there are many more conditions that are caused by gluten consumption, including the many auto-immune diseases. New ones are being added to the list, such as Narcolepsy and even Parkinson's. Cutting out the consumption of gluten (wheat, barley and rye) can lead to healing and resumption of a normal life. Spread the word, support the research!
(Comment Replies Disabled)

 
RANJINI NAICKER
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Apr 2008 3:26:37 AM PST
my son was diagnosed with lupus 14 years ago, I have just started the gluten free diet with extreme difficulty, any help would be welcomed. Thank you and kind regards.
(Comment Replies Disabled)

 
AnitaLesniak
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
10 Aug 2009 9:11:02 PM PST
dear Ranjini It is not so difficult as time goes on you will find it easier, when I first was diagnosed there was not all the recipes they have today and all the gluten free food available--you must go to a supermarket and ask if they have gluten free flour and also go on the computer and search for "gluten free food" and they will help you.
(Comment Replies Disabled)

 
Robyn Russell
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Apr 2008 8:59:12 AM PST
Another symptom no-one has mentioned is how it can affect the brain and make it impossible for the person to control anything they say and do after eating gluten. I know as this is how it affects my daughter. ADD no, OCD no, but she got very angry three hours after eating gluten. She also has the stunted growth.
(Comment Replies Disabled)

 
Dr.
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
20 Oct 2010 5:15:09 AM PST
You need to have daughter drug tested. It's likely she is going through withdrawals and her eating gluten may only be a coincidence. Gluten consumption should not have anything to do with her anger. Drug withdrawals, even nicotine, can cause a very moody or angry person.
(Comment Replies Disabled)

 
Villamom
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
20 Nov 2010 10:51:14 AM PST
That is not true. My children can become very irritable and impulsive after getting glutened. In fact I would say emotional reactions are their strongest symptom.
(Comment Replies Disabled)

 
Maria Miron
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 May 2008 7:09:31 AM PST
I have all the symptoms except osteoporosis and instead of loosing weight I am a fat woman. Thanks Maria
(Comment Replies Disabled)

 
Raenette
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 May 2008 4:39:45 PM PST
Thanks for all this information. My husband has been to see a person calling himself a Naturopath, who looked into his eyes, and then declared him to be gluten-intolerant. My husband has none of the above symptoms, so I'm feeling reassured that I needn't go through the hassle of buying gluten-free products, when I'm trying to raise 4 kids on a restricted budget! We tried it for a week, but it's really very hard to keep up with if it's not really necessary.
(Comment Replies Disabled)

 
darlene
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Sep 2009 10:32:25 PM PST
I am a mom of 3 and 2 of my kids have severe gluten intolerance. After reading about grains and how they are processed, I have taken our whole family off gluten! The payoff is later with a healthier family!
(Comment Replies Disabled)

 
Paula
Rating: ratingfullratingemptyratingemptyratingemptyratingempty Unrated
said this on
13 Nov 2010 5:57:45 PM PST
In the United States and Canada, the designation of Naturopathic Doctor (ND) or naturopathic medical doctor (NMD) may be awarded after completion of a four year program of study at an accredited Naturopathic medical school that includes the study of basic medical sciences as well as natural remedies and medical care.

Maybe you should take your husband to get some blood work done...I wouldn't just leave it to one person's opinion. You could be handing him a death sentence by continuing to eat the way you do.
(Comment Replies Disabled)

 
Marlene Magness
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Jun 2008 4:37:06 PM PST
After reading your article, I intend to see my gastroenterologist for testing. I seem to have some of the symptoms of glucose intolerance. He recently tested me for lactose intolerance and found me to be highly lactose intolerant.
(Comment Replies Disabled)

 
Doug Merson
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
04 Jul 2008 6:40:06 PM PST
I have been working with my gastroenterologist for several years trying to diagnose my condition. She finally determined that my gallbladder needed to be removed, however my celiac symptoms got worse after that. My whole family has converted to a gluten free diet. For the most part things are working out for the better, but I still have the intestinal problems and overall fatigue even after 8 hours or more of sleep.
(Comment Replies Disabled)

 
D Super
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Aug 2008 1:36:47 PM PST
After suffering with different things over the years I was recently tested for Celiac, which I will not received the results until next week, in order for the test to be accurate I had to eat a wheat and Gluten diet for at least 10 days before the test. I have not had wheat in my diet for the last 3 years. I started off with a few symptoms, headaches, gas, bloating, rash, needing to clear throat a lot, heart palpitations etc; What concerned me the most was as the days went on I was so fatigued could hardly get out of bed, my mind and motor skills slowed way down and got very fuzzy, was not able to make important decisions and certainly unable to drive. After eating pancakes with my daughter one morning we were talking and all of a sudden I wasn't able to form certain words. That was so very scary. I don't really need the results to tell me I have a problem with wheat and gluten, other than it being hereditary, and needing to know for sure. It frightens me to think so many people have this and will never know. They , meaning people and their doctors treat the symptoms and not the culprit. Thank you for all the information, I'm sure I will need it. Take Care and God Bless!
(Comment Replies Disabled)

 
goldie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
17 Nov 2009 8:19:24 AM PST
I also had the same symptoms as D Super. Exactly the same symptoms. I was B-12 deficient and now I have osteoporosis. I don't know why doctors don't test for this more often. It makes perfect sense to me.
(Comment Replies Disabled)

 
Amber
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Aug 2008 4:38:25 PM PST
I have had trouble with being overweight since I was a child. I am 20 yrs old now and weight 300. I get sick after I eat almost always. I get pains in my stomach , gas , or diarrhea. I also have dermatitis on my scalp. Been told several times its the way I eat, but after reading I think I could possibly have this. On another site someone mentioned boils. Have any of you experienced this? I have had issues with this myself. All in all this is a very informative site . Thank you
(Comment Replies Disabled)

 
Pati
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
09 Aug 2009 11:31:53 AM PST
"On another site someone mentioned boils. Have any of you experienced this?" .....Hi Amber, I don't know what anything has to do w/anything yet, but thru my brief scan of IBS & C-D-S info, I saw 'boils'. My life from a young adult thru many years off & on was plagued (mainly my face). Outbreaks have diminished w/less severity. I don't know if this brief has meant anything to you, but you can reply if so. By the by, what if I didn't copy the image below? I'm new w/my machine & the technology that has happened over the last 15 years! Just blissfully stupid.
In Christ, PB
(Comment Replies Disabled)

 
Cheryl
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Sep 2008 12:19:22 PM PST
I've had diarrhea for about 10 years. My temperature is always 97. Something instead of 98.6. I was sick at home one day and googled about low body temperatures and it said many times people with a gluten allergy run low temperatures..I immediately got off gluten and I have felt much better and my intake of Immodium is seldom instead of every day. Thanks for the website. I refer to it almost everyday for information.
(Comment Replies Disabled)

 
julie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Sep 2008 11:15:10 PM PST
I have suffered for years with what was diagnosed as IBS. I have almost all the symptoms in your article & more & after many many visits to the doctors over the years I have at last got a doctor who has had the decency to get me checked out properly. I am awaiting the results & hoping that the ignorance of my prior doctor hasn't caused it to have gone too far. I suggest that anyone suffering these conditions don't let their doctor fob them off as I have been for at least 15 years. The only difference I have to the symptoms in this article is that I gained weight and cannot get it off no matter what diet or exercise I do.
(Comment Replies Disabled)

 
Marcia
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
03 Jan 2010 6:44:02 AM PST
I also have had chronic diarrhea for a few years. I feel it is somehow related to the removal of my gallbladder. I have read that the gallbladder has bile that helps in digestion. I have been gluten free for only three weeks now, but I feel fantastic! Immediately able to put the Immodium away. I seem to have a natural appetite suppressant as a result as well. I have lost five pounds. I am eating plenty of vegetables, fruits, rice etc. I also try to follow the proper food combining of "Fit For Life". A book that I read 15 years ago. I have been eating that way off and on over the years. However, now that gluten seems to be an issue, I just substitute for the whole wheat and grains. I am excited to be feeling well again. Napping everyday has almost completely gone away now.
(Comment Replies Disabled)

 
Lynda
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Sep 2008 6:52:48 PM PST
Robyn, So glad to read your comment. I knew it was not my imagination. My 16 year old has all the signs and her pediatrician thinks I'm crazy. She also has the joint and muscle pain, Mostly low back pain. I will continue to get the answers I need. Thank you!
(Comment Replies Disabled)

 
Sherie
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
15 May 2010 8:42:44 AM PST
Recently diagnosed with celiac. Having lots of lower back pain. From when I get up till bedtime. Also very fatigued.
(Comment Replies Disabled)

 
Amy
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 Oct 2008 7:21:40 PM PST
Whoa! #8... I had bladder cancer also! Is there a correlation??
(Comment Replies Disabled)

 
Sharon
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
05 Oct 2008 8:16:13 PM PST
This has been very informative. My husband has been suffering for many years. Now we have so much hope! Thanks!
(Comment Replies Disabled)

 
Hiromi
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
15 Oct 2008 11:35:54 PM PST
I have been suffering from severe iron deficient anemia for 2 years. My supplementation keeps being increased every time I meet with the doctor for a progress check. After meeting with 2 doctors who both expressed disbelief about my consistent supplementation, I finally met with a nutrionist who mentioned that gluten intolerance affects nutrient absorption and can cause anemia. I have been following a Gluten Free Diet for 4 weeks and have noticed that my rash has cleared, my acne (I'm 39) has cleared and I have had no problems with bloating or diarrhea. The more I read about Celiac disease, the more it clicks that my mother's side of the family has variations of all the symptoms and medical conditions. I am so thankful to have access to this information thanks to the internet and authors such as you!
(Comment Replies Disabled)

 
Donna
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Oct 2008 5:37:20 PM PST
I am 55 years old. I've been diagnosed with everything from IBS, to stress disorders, etc. No doctor ever even suggested I may have Celiac. I have been sick as long as I can remember. I am now gluten free, and very healthy , but have severe osteoporosis. Too bad my sister who is a nutritionist had to be the one to suggest that Celiac may be my problem
(Comment Replies Disabled)

 
Shaun
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Dec 2009 1:26:29 PM PST
My wife is a Registered Dietitian and recently diagnosed me with celiac disease. I wonder how I, we, will be able to convince other people this is true, as I passed the blood tests before I went gluten-free. I have noticed a lot of people give me the unbelieving eye. I am definitely not going back to the way things were before just so a doctor can tell me what we already know. I would advocate that people with these symptoms stated above should seek out a dietitian or nutritionist for advice on an elimination diet.
(Comment Replies Disabled)

 
Mary
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Oct 2008 1:26:51 PM PST
I wonder if my daily reoccurring migraines are celiac disease? A lot of times I will trigger one after eating...I eat pretty carefully and have found that wheat and dairy definitely cause sinus trouble. Bloating and gas are a constant, aches and pains as well--I am 61.
(Comment Replies Disabled)

 
Stephanie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Nov 2008 12:45:40 PM PST
I have not been diagnosed, nor can I afford to see a doctor for diagnosis (even for, say, a sinus infection), however I suspect I am either gluten intolerant or have Celiac Disease.

I'm 25.

From about the the time I was, oh..13..lactose intolerance started to show up. As every year has passed I've become more and more severely lactose intolerant. More than an ounce of dairy and I am positively ILL. Diarrhea, cramps, bloating, heinous gas. It's terrible. (Even less than an ounce and I become gassy and my stools soften.)

Five years ago I started to develop a migraine aura without headache. The reason I say, 'I started to develop...,' is because within a year and a half it became a constant issue. Today every moment of every single day there are spots are scintillating lights in my left eye. ONLY my left. Photos of my eyes, many visits with retinal specialists and ophthalmologists, an ERG and an MRI later and they still had no idea what was wrong with me. Particularly because it's not bilateral (both eyes). I went a year without any kind of checkups and just a couple of months ago my new Eye Dr. informed me I have macula damage that is not macular degeneration. WELL (here is where it becomes possibly relevant to CD), the mother of a good friend of mine has celiac and nearly went blind from it. As did her mother's brother. A gluten free diet has halted their vision problems.

-For the past three years I suspected I suffer from IBS with constipation, because any time I am feeling stressed, anxious or even just excited (or am going to travel) I get sick for days. Weeks even, sometimes. But over the past six months or so I have been battling a constant cycle of constipation and diarrhea and/or loose stools (not quite diarrhea, but somewhere between normal and diarrhea). Heartburn after I eat almost anything. Constant gas (and I mean constant). I've started retaining fluids way more than seems normal.

I have acute sinusitis, but haven't been able to afford the allergy testing to figure out what the likely culprits are.

Although it was years ago, when I was 19, during a checkup to investigate my thinning hair (more than is normal), constant fatigue and strange heart rhythms it was discovered that I was borderline anemic. Even after taking supplements the problems never went away.

It is a culmination of all of the above that has me convinced to start a gluten free diet. I'm having problems with what to eat for breakfast that is quick, and it's really frustrating, but I'm sure in due time I'll get it all figured out.

I know this is long, but I wanted to bring up the possibility of vision problems in addition to all of the aforementioned symptoms.
(Comment Replies Disabled)

 
Brit
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Sep 2010 8:48:43 AM PST
Stephanie;

Thank you for your post, and as I have been researching CD this is the first mention of vision issues I have come across. I too have many of the posted symptoms, most noticeable during my work in Thailand during the Tsunami. Given the conditions at the time we drank a lot of the local bottled beer instead of water and for the stress release. It was then that I noticed that I was swelling immediately upon consumption. My ankles were huge along with all over body swelling. When I spoke with my doctor back in the states he just suggested it was an allergy to beer and to take water pills. Ever since then I have had lots of swelling and water retention after drinking beer. Also I have noticeable vision issues, where I have deemed myself night blind. Also without health insurance and unable to afford a doctors visit or testing I have been on a gluten-free diet for a week now. I have not had any water retention or swelling in legs since!

Breakfast, I have a whey protein shake or egg white omelet.
(Comment Replies Disabled)

 
Nicole
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
27 Oct 2010 6:51:04 PM PST
I have similar symptoms. Has your hair grown back since going gluten-free? Thanks!
(Comment Replies Disabled)

 
Louise Teasle
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
09 Nov 2008 1:44:50 PM PST
# 18 Please have your husband get tested for gluten intolerance. Celiac disease can be silent with no obvious symptoms. The blood test for Celiac can come back negative even if you have the disease.
(Comment Replies Disabled)

 
Sarah
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
11 Nov 2008 9:25:13 AM PST
I am 45, and was diagnosed with celiac disease at 8 yrs old, after being in and out of hospital for years. I stayed on the gluten free diet until I was 14 (puberty) when my symptoms began to disappear, and I was able to tolerate gluten. At 40, I began to experience gas, bloating, abdominal discomfort, loose stools, alternated with constipation, and thanks to prei-menopause hot flashes and night sweats. Knowing that I had already been diagnosed with celiac disease, it was a simple matter of going back to the gluten free diet. I now enjoy a healthy body, and even my menopausal symptoms are far less severe than friends who consume gluten experience. I didn't know that celiacs often suffer from lower than usual body temperature. I suspect that all of my children are gluten intolerant as they all have this oddity, as well as complaining of lactose intolerance, my daughter has gone from a size 5 to a OO, but all refuse to accept a gluten free diet. My one son was tested, but because the test came back negative, they all laugh at me, and refuse to even try it. I have tried to tell them that false negatives are common, but what do I know? I'm just their Mom with celiac disease. I appreciate you having put this site out there, so that when they get fed up with the symptoms, they may independently research this. That way they don't have to hear I told you so. Thanks
(Comment Replies Disabled)

 
Melissa
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 Dec 2008 8:52:21 PM PST
My mom was just recently diagnosed with Celiac disease and I know it sounds weird, but it has almost been a godsend to me, because I inherit everything she has. I have Fibromayalgia, arthritis in my hands, terrible vision, diarrhea every single day, my whole body aches, I get severe migraines every other day, I am always bloated, I get heart palpitations, my stools seem oily, etc. And when I did some research, I found that I have pretty much all of the symptoms of Celiac. I'm just starting out on the gluten-free diet, but I am not sure if I should be tested for it, or if I should just try the diet and see if it works. I am under the impression that the only way they can know for sure is to do a biopsy of your bowels...if anyone has any info on that, please let me know! I am only 23 years old and my life is so stressful due to all of these problems. But I feel like I am finally starting to get somewhere. Thanks for all of the information!
(Comment Replies Disabled)

 
AnitaLesniak
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
10 Aug 2009 9:30:39 PM PST
Dear melissa, yes please go and be tested for this disease you do not feel a thing they will put you to sleep and check your villi and give you a colonoscopy and the result will come yes if you do and no if you don't and there is nothing to be afraid of if it will make you well you will be surprise how good you will feel .
(Comment Replies Disabled)

 
Stephanie
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
08 Dec 2008 12:23:27 AM PST
34 - The biopsy is a better test than a blood test, but still not perfect. The usual advise is to get your blood drawn for the test, and THEN start Gluten-Free. Hopefully the blood test will come up correctly and you'll have confirmation of your condition, but if the diet works for you, you know. Give the diet a month to work - some people's systems take a while to heal after years and years of damage, and it sounds like you've got a lot going on there. (celiac often accompanies or is misdiagnosed as FM)

Seems like the list of symptoms given here is pretty incomplete. Constipation, weight gain, migraines, ADD... there are so many other symptoms that are common but don't fit the out-of-date definition of celiac that most doctors go by...
(Comment Replies Disabled)

 
Heather M
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
11 Dec 2008 10:53:56 AM PST
Very informative. I have all of these symptoms as well and all the doctors thought I was crazy too. They sent me to therapy! I've been gluten free for a month, but still have bad days. I'm being told 3-6 months to feel "normal" again.
(Comment Replies Disabled)

 
Eliezer
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Dec 2008 9:20:49 PM PST
I have suffered with heartburn since I was a little kid. Two years ago I sought a doctor's help for an annoying chest pain. All the tests proved nothing wrong with my heart but indicated that my blood sugar was little high. I also complained about my heartburn and a bloating sensation. He sent to a specialist meanwhile the blood test result came back which he told me to show to the specialist. I did some search and found your site....I'm gluten free and heartburn free!
I did not go to the specialist yet but one thing is bothering me today--that bloating sensation came back with a severe diarrhea....I'm worried that this can be something more serious. Why didn't my doctor find out earlier?
(Comment Replies Disabled)

 
Ronnie
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
15 Dec 2008 4:59:28 PM PST
I've been diagnosed with everything listed here, just about. It's been suggested that I need to see a nice therapist.

I finally figured out myself (at age 48) that if I don't eat wheat, my excema and heartburn clear up, and many other symptoms die down. (I was still eating other gluten-containing products, just no wheat bread or pasta.)

With that added info, my doctor of 15 years told me that I'm celiac.

She said: we can do the blood test; but, you have to eat enough gluten to become really sick before we can do it, and even if it comes back negative, it doesn't mean you're not.

Then, the gold standard test is to do the biopsy.

And then - if that comes back positive - then we know for sure. And then we'll tell you, don't eat gluten.

But, she said, we can already tell you that now. So, you can do the tests if you really want to be sure ...

I said no thanks, my symptoms are being clear and specific already. And the longer I'm off gluten - the more clear and specific they are when I eat some. (Like, WHACK!! DON'T DO THAT AGAIN!!)

So, #34, try the diet. Be strict with it. If it works ... there turn out to be some people (who are not celiac, but have other tolerance issues) who cannot eat wheat, but can eat other related products such as spelt or farro. On the other hand, if the strict diet doesn't do anything to improve your issues - you have something else going on, but you've eliminated a hard-to-test for set from consideration.
(Comment Replies Disabled)

 
Darlene
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Dec 2008 9:51:24 AM PST
I suffered with many of these symptoms for about 10 years before finally talking to my doctor. He sent me for a gastroscopy and colonoscopy, which turned out positive for Celiac Disease. The gluten-free diet certainly helps with the intestinal problems although I still have some really bad days with diarrhea. I am still fatigued all the time and I have continuously gained weight over the years. I wonder why all the articles indicate weight loss, and everyone I meet with celiac disease including gluten-free cooking classes are 'skinny' while I am so overweight. Diet and exercise have done nothing to reduce my weight. It is very depressing.
(Comment Replies Disabled)

 
AnitaLesniak
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
10 Aug 2009 9:47:30 PM PST
Darlene you will have to change your way of eating, it's not just giving up the wheat--you have to make sure you have gluten-free pasta and have some guiana which is like rice, brown rice is very good for you but you will not lose weight unless you cut down on your food intake there is a lot of good food out there get into making the gluten-free items and get involve with the baking and you will enjoy the food and the losing weight--good luck.
(Comment Replies Disabled)

 
Kari
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 Mar 2010 7:41:57 PM PST
Darlene,
Have you had your thyroid levels checked? I was told about celiac from another person suffering from hashimoto's thyroiditis (hypothyroidism) and she has researched the strong connection between the two diseases. I still have trouble losing weight even with my thryoid under treatment. I'm looking into celiac and going gluten-free. Maybe you should have your thyroid tested to see if it may be problematic in conjunction with the celiac.
(Comment Replies Disabled)

 
Gina
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
23 Dec 2008 10:08:06 AM PST
very helpful
(Comment Replies Disabled)

 
Denise
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
29 Dec 2008 8:25:45 PM PST
My diagnosis came after years of being anemic even after taking 6 iron tabs daily. Other symptoms included loose stools, bloating, small blisters on my arms, occasional swelling of my hands, gums bleeding/inflammation but no stomach aches. I was diagnosed after a small bowel biopsy. Celiac disease, I learned, is an autoimmune disorder and often accompanies type 1 diabetes which I have had for years. If you do not follow the diet, malabsorption of nutrients will continue along with the potential for cancer to develop, so says my doctor. I have been eating gluten free for almost 2 years. It is an adjustment but you get use to the diet. My last biopsy this summer showed 100% recovery of my small intestine and past problems listed above completely gone. Worth the conscious effort!
(Comment Replies Disabled)

 
Felicia
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
11 Jan 2009 1:20:51 PM PST
Thank you so much for posting this information and hopefully helping many other people decide to get tested. My 6 year old daughter was on Mirilax prescribed by her doctor for 2 years because they thought she had Chron's disease after sending her for an x-ray. After visiting the doctors tons of times for her severe stomach aches after that, I finally said enough is enough. I insisted on getting her further testing. They finally sent her for blood work and found her celiac panel came back positive. She is still waiting to get a biopsy of her intestines to confirm, but I have given her gluten free foods for 4 days now and she is a totally different kid!!!!!! It's been expensive but good things are never cheap! She's worth every penny and more.
(Comment Replies Disabled)

 
Susan
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
14 Jan 2009 1:26:20 PM PST
Alopecia Areata, esp. the most severe forms--totalis and univeralis, have all been attributed in some cases to celiac disease, in fact, being the ONLY symptom. Alopecians have a higher rate of celiac disease than the general population. Weight loss is not nec. an indicator. Also, people with fair skin and red or strawberry hair are likely candidates, as well. I have alopecia, and I have a cousin who died of lymphoma before age 30. She and I are both fair-skinned redheads. I now believe she had undiagnosed celiac disease. Thanks, I just wanted to add my two cents...
(Comment Replies Disabled)

 
judith kefi
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Feb 2009 3:36:47 PM PST
Very very informative and re-affirming, thanks.
(Comment Replies Disabled)

 
Connie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
20 Feb 2009 5:43:50 PM PST
I have been having problems for mostly all of my life. Stomach cramps, bloating, diarrhea, etc. I have been tested for Celiac Disease and am waiting for my results to come back. I have lost a fair amount of weight, and always feel like I want to vomit. I am hoping that I get to the bottom of this...as I can not take much more of this. Reading some of the other posts have opened my eyes as to see that I am not alone .
Thank you
(Comment Replies Disabled)

 
Dar
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Mar 2009 11:13:12 PM PST
Can someone please explain to me why a simple blood test was not done by my doctor? I explained all the symptoms that I had, but at the time I was unaware of celiac disease. You would think the doctor should be aware of the disease. I went through an upper and lower GI, to find out I'm fine. NOT...I was not imagining these symptoms. I figured it out on my own, thanks to articles and great people sharing their stories. Thank you to all of you! We need to get the doctors to test for this, it is a simple blood test. It will prevent unnecessary surgery that is happening.
(Comment Replies Disabled)

 
Mama ToYou
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
20 Apr 2009 9:34:48 AM PST
My son, 23 years old, self diagnosed that we both have celiac and he was right!!! Being Gluten free has change my life!
(Comment Replies Disabled)

 
mamamia
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
20 Apr 2009 9:39:22 AM PST
Gluten Free can be done but slowly!
(Comment Replies Disabled)

 
Linda Levine
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
04 May 2009 9:26:01 AM PST
Have you found any association with Hirschsprung's Disease? My daughter has Hirschsprung's and was doing fine until becoming miserable ever since going away to college and eating dorm food. We have an appointment with a new Gastroenterologist and will pursue the Celiac angle just to see.
(Comment Replies Disabled)

 
Melissa
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
06 May 2009 10:27:38 PM PST
I'm 19 and I think I might have this. I'm not sure though. My family cant afford to take me to the doctor, and I'm too afraid anyways. I get sick to my stomach A LOT! Everyday I feel like I have a stomach ache. I don't usually go to the bathroom for 4-5 days. I get diarrhea when I go, and the rest of the time I'm constipated. I cant go anywhere. I have to stay home because it hurts way to bad. I have felt like this for 2 years, and had no idea why. Everyone I know thinks its just in my head, and the only reason I feel like this is because I think about it too much. Or they think I want attention or I'm faking it. I'M NOT FAKING IT! I ordered a book on it. I read it and it helped me a lot and so did this article. I would love to know if I have it but I'm just way too scared, and the diet is too expensive.
(Comment Replies Disabled)

 
Nan
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
14 Jul 2010 9:01:56 AM PST
Hi Melissa,
I did not go to a doctor to find out that I am gluten intolerant. You can find out by not eating any kind of wheat (bread, pasta, pizza, cakes, cookies, etc.) or anything that has gluten in it. There are alot of gluten free recipes out there to make it easier. Just do a web search for them.
I'm sorry you're scared and having trouble. Hope you get better soon.
(Comment Replies Disabled)

 
Megan
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
11 May 2009 10:34:43 AM PST
Thank you...thank you...thank you!

I have been suffering for over 4 years with chronic diarrhea, bloating, cramps, fatigue and body aches. I had been treated with antibiotics for the last 4 years for bacterial infections which I obviously did not have. Thank you for sharing and educating people about celiac disease. The more we know....the better we are!
(Comment Replies Disabled)

 
Caitlin
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
19 May 2009 3:54:51 PM PST
I'm 20 and I've had stomach problems since 5th grade. I was pretty friendly in grade school, but just quiet and tired since then. Everyone said I was nervous and didn't eat enough. When I was 15 my friend told me she was lactose intolerant -- avoiding lactose helped me some, but not a ton. My junior year of high school I went from 135lbs to 120 in two months for no apparent reason, and things only went downhill from there. This winter the stomach problems got so bad, I found myself curled up on the floor crying, thinking that I was going to die soon from organ failure or starvation. I went to the doctor, they said “maybe celiac disease,” and gave me a packet on it. The only symptom I didn’t have on the list was stunted growth – although I come from a tall family – I’m short comparatively. I’ve been on the gluten-free diet for a little while and I feel AMAZING. If a college student whose cooking repertoire previously consisted of toaster waffles and instant pudding can go gluten-free, so can you!
(Comment Replies Disabled)

 
Katie
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
19 May 2009 3:55:57 PM PST
I'm 20 and I've had stomach problems since 5th grade. I was pretty friendly in grade school, but just quiet and tired since then. Everyone said I was nervous and didn't eat enough. When I was 15 my friend told me she was lactose intolerant -- avoiding lactose helped me some, but not a ton. My junior year of high school I went from 135lbs to 120 in two months for no apparent reason, and things only went downhill from there. This winter the stomach problems got so bad, I found myself curled up on the floor crying, thinking that I was going to die soon from organ failure or starvation. I went to the doctor, they said “maybe celiac disease,” and gave me a packet on it. The only symptom I didn’t have on the list was stunted growth – although I come from a tall family – I’m short comparatively. I’ve been on the gluten-free diet for a little while and I feel AMAZING. If a college student whose cooking repertoire previously consisted of toaster waffles and instant pudding can go gluten-free, so can you!
(Comment Replies Disabled)

 
Susan Kelly
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
21 May 2009 3:50:18 PM PST
I have most of the symptoms that are mentioned. I was checked for celiac disease, the doctor said I was all clear. But because the symptoms carried on I decided to stop eating Gluten in my diet I did this for a month, the symptoms stopped and the added bonus was I lost a stone. Then we had a Crisis in the family and I was away for a week, I didn't want to add to the stress so I ate what I was given. Well the symptoms were back in 2 days. I think the doctor must be wrong, but don't want to keep bothering him.
(Comment Replies Disabled)

 
Darlene Sarvis
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
07 Jun 2009 8:45:39 AM PST
Excellent statements. Isn't it a shame that our doctors don't give us the celiac blood test after we go in with numerous problems? I am new to this Web site and hopefully, I'll find some ideas on what to eat, how to fix, where to buy something that tastes half way decent! I am allergic to dairy, soy, eggs, etc. Never knew this until I took a food allergy test! Going back soon and have a retest and ask for the Celiac blood test too! Thanks to everyone......all this helps!
(Comment Replies Disabled)

 
CONFUSED
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
09 Jun 2009 12:33:07 PM PST
OK - after 4-5 days in the hospital for 'colitis' - very bloody stools and extreme pain. My doctor finally does a celiac test and it comes back negative! I definitely have a lot of the symptoms, especially the aches and pains, problem stools, low energy, etc etc. Could I still have the disease even though the blood test came back normal? If not, the doctors, nor I really know what is going on. This is so frustrating!
(Comment Replies Disabled)

 
Michelle
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Jun 2009 1:33:21 PM PST
I am still surprised how hard it is to find information about celiac disease. I have friends, co-workers, students, and family members who have symptoms of or have been diagnosed with celiac. I am hoping to become more informed so that I don't add to their issues by giving them something to eat that they shouldn't have. I also am finding that the more information I read, the more people I know with symptoms. I have struggled for years with certain problems and, even with some education on celiac disease, I never assumed that I too could have a gluten intolerance or allergy. I am going to be a lot more conscious of what I eat and expose myself to and see if my symptoms go away. I appreciate sites like this one that give the public a chance to share their voice. The information here is very helpful and the comments from others are a real eye-opener! Thanks!
(Comment Replies Disabled)

 
Cindy T
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Jun 2009 2:06:20 PM PST
My friend is gluten free, after hearing her story I looked into it and started my gluten free diet, within a week I was feeling better, I've been down (ill) for 4 years barley participating in life, wish I had seen this sight years ago! Would be nice to see this on Nightly News!
(Comment Replies Disabled)

 
lucy mayer
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
19 Jun 2009 12:51:15 PM PST
Brilliant article, I have all the symptoms and am going for a test on Monday! Hopefully a start of better things to come! Thank you.
(Comment Replies Disabled)

 
Becky B
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
23 Jun 2009 8:05:41 PM PST
I was diagnosed with dermatitis herpetiformis 10 years ago and ignored it. I continued to eat gluten until my mother was recently diagnosed with celiac. I have also been tested and await the results. Regardless. after reading these articles, I vow to be gluten free for life! Thanks for the info.
(Comment Replies Disabled)

 
Dorothy Swindle
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Jul 2009 6:46:05 PM PST
Very informative, since I have yet had a Dr. to confirm, I have celiac, after reading everything I can find on the web, I have been on a gluten free diet, until something slips up, I have blisters on my elbows, buttocks knees and the back on my hands, when I have a flare up and I have lost about 22 lbs and would like to gain some back since I'm five foot , nine inches tall. I 'm so thankful of celiac.com.
(Comment Replies Disabled)

 
Cheryl Gribble, ret RN
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Jul 2009 3:35:24 PM PST
And Dermatitis Herpetiformis can appear on the hands, fingers, elbows, knees, scalp, neckline, buttocks, or perineum... Do not let a dermatologist tell you it is Psoriasis... it is gluten-intolerance rash... classic... itchy scaly scalp, ugly scaly elbows, embarrassingly itchy buttocks or perineum... probably gluten-intolerance, celiac disease... has a lot of syndromes. Vitamin D deficiency > osteoporosis > fractures.
Malabsorption syndrome > fatigue > diarrhea.
Bloated, puffy abdomen...
(Comment Replies Disabled)

 
Sharon
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
30 Jul 2009 6:31:28 AM PST
Great source of information.
(Comment Replies Disabled)

 
Brosh
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
17 Aug 2009 8:48:53 PM PST
Unbelievable. I had a rash on the forehead and chest as well as elevated IgA. I've been diagnosed with MGUS. I started to hear of a connection between Celiac and MGUS and Multiple Myeloma. I started gluten free and almost immediately, my rashes went away - no kidding. Now I'm hoping for the best next blood work. This is real stuff.
(Comment Replies Disabled)

 
candowithoutglue
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
14 Sep 2009 8:52:53 PM PST
To all of the people who worry that a gluten free diet is expensive... I disagree. You can eat a very healthful diet without bread, pasta, cookies, crackers, cakes, candy, etc... Non of those foods are healthy for ANYONE in my opinion, they are all highly processed foods. It is really a matter of changing perspective and being creative. Nature provided us with a beautiful variety of the most healthy foods, fruits and vegetables. Gluten grains are not natural as they need to be highly processed in order to be eaten. Think out of the box and enjoy your new and improved health!!!!
(Comment Replies Disabled)

 
Lilly
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Oct 2009 9:12:56 PM PST
Well put! My nine year old daughter is gluten intolerant and I decided from the beginning we would focus on what we can eat instead of trying to replace what we can't (I've stopped eating gluten as well). However, there are some nice products out there I like to indulge in for a treat...like gluten-free Oreo-stye cookies.
(Comment Replies Disabled)

 
Dawn
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 Oct 2009 6:24:00 PM PST
I have been suffering for the past 10 years with no diagnosis yet. I have:
Vision problems (constantly) blurred vision, halos, floaters, etc.
eye headaches
PVC (heart palpitations)
All intestinal symptoms (nausea, bloating, diarrhea, constipation, abdominal pain, loss of appetite, etc)
Cleared of Crohn's and colitis
Had gallbladder removed
Bloodwork all neg
Had colon/endo (found slight inflammation)
Biopsy neg
Blood work said Celiac was neg but I am thinking maybe I do have it. Can the test be wrong? I am having a MRI to check for MS.
Is my best test the genetic test for HLA gene DQ2 and DQ8?
(Comment Replies Disabled)

 
Mags
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
29 Oct 2009 7:40:44 PM PST
Gluten intolerance has also been noted in thyroid disorders, and many of the symptoms listed here mimic hypo-thyroid AND fluoride toxicity. Thyroid disorders and Fluoride toxicity usually get worse over time. Anyway, in addition to this wonderfully informative celiac site, you may want to check these sites too. They helped me very much.
Happy health!!
(Comment Replies Disabled)

 
dazza
Rating: ratingfullratingfullratingfullratingemptyratingempty Unrated
said this on
06 Nov 2009 10:54:48 AM PST
From UK, London. 27. I eat gluten free, soy free and dairy free (dairy free until I heal a bit).
Eating soy I feel my body thinks it's gluten, I can be wrecked, literally can just fall asleep like I have been drugged.

Think of it, doctors are people who have read a few books. You can read those books and have that same knowledge, so you should not treat them like they are god, far from it! I would like to think I know more about this kind of thing than the majority of mainstream doctors, all because I have/am living it and because I have spent so much time researching, not just factual things, but more importantly other peoples experiences to gain knowledge.

I spent 6 months taking Imodium after everything I ate just so I could go to the toilet at normal times (it would be loose stools by then). I remember eating an egg custard (custard tart) and it going through me in under 10 minutes.

This craziness resulted in me having an emergency operation to remove my appendix as it was about to burst (high probability of death). In the UK everyone has free health care regardless of your wealth.

Other symptoms include major hair loss, stabbing pains in legs, constant pain (which I didn't really notice that much because I was used to it). I had been ill for so long, I had forgotten what it was like to be able to think and function normally. Having gluten/soy/dairy affects me straight away, it feels like a blanket of fuzziness has been put over me, which causes me pain from the chest up and I feel like I have taken morphine or heroin (without the pain relief of course) as I have no energy to move and go straight to sleep for hours even if I had just woken up fresh as a daisy.

Eating gluten free is very time consuming though, takes an age to make meals, that's what I am tired of.

Just get fed up of people who would say "oh that gluten nonsense". It P's me off. Or I would hear, "it's only a little bit, it's no big deal".
(Comment Replies Disabled)

 
Jeri
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
11 Nov 2009 3:26:32 PM PST
I was just diagnosed with celiac disease and I am RELIEVED! I have been dealing with epilepsy for 13 years now and no one can find the reason! I am convinced this is the answer I have been praying for to any and all gods. I broke out with a strange rash two weeks ago, prior to my test, and now I know what that is all about. As a child, I had horrible stomach cramps periodically but no one could figure them out. We just called it the flu though no other symptoms accompanied it. I have given up on doctors and agree with a previous post that they are people who have read books but they are not omniscient. I knew I had a problem with breads but I assumed it was a wheat/yeast thing and not so serious. However, as I have aged (I'm 36), my symptoms have worsened. It affects me in my brain and my hydration. This website is so helpful and I am so excited to start my new life. The scary thing is the symptoms are progressive and we don't always realize how bad off we are until we improve. My test result was 100+ and anything over 8 was considered positive for Celiac. Crazy! On to my improved life! Anybody with mysterious symptoms, don't lose hope. Even if it is not Celiac, there is an answer. Forge ahead. Peace.
(Comment Replies Disabled)

 
Melanie
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
19 Nov 2009 8:30:56 AM PST
Thank you for the information! I got on this website after looking for a gluten-free pumpkin pie recipe I could make for Thanksgiving, and one link led me to this website. My sister was diagnosed with Celiac, and has been living gluten-free for a couple of years now. I never really gave it much thought that I too could have it because I really don't have digestive problems, but after reading this, maybe all of my other symptoms could be a result of gluten allergies. I have "brain fog" always, overall feeling of not being well, low iron, migraines, achy arms and legs - especially at night, overall tiredness even after a good night's sleep, bloating, mild acid reflux, low body temperature - mostly just an overall feeling of crap. I requested my doctor test me for thyroid problems, which turned out fine. My doctor has no patience for me because he is used to treating patients with severe life-threatening problems, and I'm just complaining of feeling like crap. I hate wasting his time, but I know something is going on with me that I can't put a finger on. After reading this website, I plan on going gluten-free for a while just to see if it makes a difference. Thanks! I really hope this is my problem - not that I want a gluten intolerance or any other problem for that matter - but it sure would be nice to identify my problem and know I can do something about it.
(Comment Replies Disabled)

 
nancy knight
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Jan 2010 5:25:58 AM PST
I am going to ask my doctor for a test.
(Comment Replies Disabled)

 
lynnh
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Jan 2010 8:22:00 PM PST
I too am suspecting this is my problem as I get worked up for severe iron deficient anemia. Question for you all- my "rash" is VERY itchy and on my arms, sides of my trunk and upper legs. Anybody else? I also have been experiencing VERY dry hands. To the point where my skin is cracked and bleeding. Quite uncomfortable.
(Comment Replies Disabled)

 
lynnh
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
12 Jan 2010 8:27:13 PM PST
Am in the process of being worked up for severe iron deficient anemia and just had blood test for celiac today. Since I have most of symptoms I am thinking following this diet will help regardless of test result. My "rash" is VERY itchy and on arms, sides of trunk and upper legs primarily. Also with very dry, cracking hands. Uncomfortable. The symptoms seemed to come on slowly over last few months but now are increasing exponentially.
(Comment Replies Disabled)

 
Kristin
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
28 Jan 2010 5:38:41 AM PST
I had my Gallbladder removed in 2009, because Celiac Disease that was undiagnosed until Jan 2010. I lived 30 years with pain and discomfort. I'm gluten-free now and on the road to recovery. Thank you for this article, because now I know I am not alone and I can get better.
(Comment Replies Disabled)

 
John
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
05 Feb 2010 6:26:21 PM PST
I have struggled with stomach problems my whole life. When I was 16 I ended up in the hospital because I couldn't stop throwing up. It would start with a sharp pain around navel and then erupt into total pain. They did every test in the book and said I might have crohn's disease. My parents put me on vitamins and I ate better and things were better for awhile. By the time I was 25 I was starting to get stomach problems again. I ended up getting a cat scan (normal) and blood allergy testing showing multiple food allergies. (wheat or dairy didn't show up) Ten years later I started getting severe pains and rashes and my Chiropractor recommended me to stop eating wheat. My bowel movements became normal and the severe pains subsided. I don't think I have celiac but I am a gluten intolerance and I have Candida. I am now 36 and trying to get rid of candida. From what I've read people of northern European descent have the highest incidences of celiac and gluten intolerance. Being part Scottish I think is why I cant tolerate wheat. The Scottish grew oats and barely since wheat doesn't grow well in their wet climate. Anyhow, I stay at my ideal weight when I'm off wheat and feel better. Best of luck to everyone.
(Comment Replies Disabled)

 
camilla koch
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Feb 2010 2:41:43 AM PST
I've not been officially diagnosed, but I have real emotional issue's and all my stuff seems to fit.
(Comment Replies Disabled)

 
Sherie
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
15 May 2010 9:50:37 AM PST
Went to the doctor complaining of bloating,abdominal pain, yellow stools, diarrhea on and off for about 2 months. She ordered lab test resulting in slightly elevated liver function, IGG ,IGA elevated. Little anemic. She scheduled a ultra sound of the abdomen and I am waiting on results. She diagnosed me with celiac due to the elevated antibodies test. Since diagnosed I have been gluten-free for 5 whole days. Have been having back pain for over a week now and feeling very tired. I am used to running every day and now am so tired when I wake up I feel like I need a nap. I'm hoping this new diet will help me get to feeling like going again.
(Comment Replies Disabled)

 
Barbara
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
19 Jul 2010 6:53:55 PM PST
I am 69+. My Chiropractor discovered my Celiac last year. 60 days of the right food proved correct. I am still struggling though as I also have problems with casein (cow's milk), soy, cats, almonds, pineapple, brewer and bakers yeast,and sugar does not help the Candida either! I now know how much information is out there thanks to this site....will try to start cooking more correctly and putting more value to what is on the label, etc. The thing is that I have had
Alopecia totalis since I was 25. I also have had every test in the book for aches/pains and all doctors never even considered Celiac. I have had problems for about 40yrs plus and now I just find out? I want to go out and tell that world that if you don't look or feel healthy, you probably are not and do this gluten-free diet! Up til now, all my kids and friends thought I was a hypochondriac! Thanks for your efforts. I can't change the past but will look forward to the future!
(Comment Replies Disabled)

 
synekk
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
22 Jul 2010 12:03:11 AM PST
I've been having extreme gas/stomach pains arise for weeks at a time over the past few years. I think when I stayed away from gluten for a week or so Ii felt better, but as soon as I feel better, I want to eat bad foods again. I really don't know what to do. I am trying to live simply and eat raw leaves and nuts but I'm no cook and I love breads and junk/fast processed foods. This is the most depressing disorder eve. I hope its all that's wrong with me though I still so i can find a way to live. I mean at least I have hope to repair myself.
(Comment Replies Disabled)

 
Linda
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
24 Jul 2010 7:55:54 AM PST
I have been so unsure which problem I have for so long. Gluten ,IBS, and the many others things you can have for stomach cramps, diarrhea, heartburn. I am beside myself for trying to read and find out. I am going to start a Gluten- Free diet immediately! Hope this works, I am sotired of being sick!
Thanks for this great website and all your posts.
(Comment Replies Disabled)

 
Gabrielle
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
26 Jul 2010 12:00:49 PM PST
My friend who has had this stomach ache for 4 years and above had almost all the symptoms listed. Before reading this site, the doctors didn't really know what was wrong with her! Instead they diagnosed her with IBS, but I think she has celiac instead! Very resourceful!
(Comment Replies Disabled)

 
Dalia Cleffi
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
02 Aug 2010 2:19:59 PM PST
I had the abdominal pain, diarrhea ,back pain and feeling very tired for seven weeks. Dr. didn't know what it was.
I started Gluten-free diet and all the pain stop.
Thank you so much for all the information and your website.
God Bless you!
(Comment Replies Disabled)

 
Sally Warke
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
03 Aug 2010 11:37:33 AM PST
Oh boy. I have just finished reading all of these comments. I just got out of the hospital after a 4 day stay. Blood-work and colonoscopy(4th). Pending Crohn's and celiac. I have had all the symptoms since I was around age 40. Now I'm 55. The doctors usually diagnose me as being depressed. Yikes!!!! Yeah sure, it's just my imagination! I have had so many tests. Even went to UCLA where they performed invasive tests and found nothing. Don't think they ever mentioned Celiac Disease. I'm so tired of the diarrhea and stomach cramps, migraines, fatigue, no desire to thrive, moody, irritable, nausea, hypothyroidism, itchy scalp, hair thinning, weight loss/gain, clearing my throat all the time, etc. etc. I feel so helpless.
(Comment Replies Disabled)

 
lisa anderson
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
03 Aug 2010 12:36:17 PM PST
I think it's a great website to go to. I'im just learning about celiac although I have not been diagnosed.But a lot of the symptoms I have are symptoms of the disease and I'm really glad there is a site that can give great information on something I had never heard if thank you.
(Comment Replies Disabled)

 
Paul
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
06 Aug 2010 8:12:09 PM PST
This site has been very informative. I have struggled with several symptoms over the years including severe fatigue, OCD, anxiety, depression, TICS, sleep apnea, IBS, polyps, immune system changes and weight fluctuation. Now my 10 month old son has had terrible oozing rashes since he was 2 months old and no doctors have been able to explain it. He was tested for celiac disease and rated as a very high risk for celiac. I was recently tested myself and one antibody tested high as the others were low. Still hoping this could be the answer to our problems and will be starting a gluten-free diet for 3 months as a diagnostic tool.
(Comment Replies Disabled)

 
Sandy
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
01 Oct 2010 6:17:11 PM PST
For many years my Mum was labeled as having Muscular Dystrophy, she lost weight, developed muscle weakness, ended up in a wheelchair. She also had severe constipation, bloating and indigestion. Now aged 87, it's only been in the past few years we've discovered that gluten brings all these symptoms and by avoiding it her bowels are working fine. Too late for her to walk again though, so I implore everyone who even suspects they are gluten intolerant to avoid it like the plague! Incidentally, no doctor diagnosed it or even considered it, only through extensive reading did we decide to try it.
(Comment Replies Disabled)

 
Grace
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
22 Oct 2010 10:44:44 PM PST
It is not easy living with celiac, especially when you have to eat outside most of the time.
(Comment Replies Disabled)

 
Wayne
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
16 Nov 2010 12:33:22 PM PST
I am just amazed at the wide rage of symptoms. For our son it was mostly his going from a calm, easy going child to an aggressive, angry child. Also, his concentration, especially for learning to read was very up and down. I'm not calling down doctors but they kept saying his blood test were fine. 'It's just his age.' Due to my wife's education, we started checking him through a kinesiologist. Wow, what she picked so fast! Well worth looking into.
(Comment Replies Disabled)

 
Leslie
Rating: ratingfullratingfullratingfullratingfullratingempty Unrated
said this on
26 Nov 2010 10:58:01 PM PST
Wow... I'm just at the start of learning about this. I have so many symptoms its not funny. I look forward to learning more - hopefully NOT the hard way. I also have a disease much like Muscular Dystrophy called Charcot-Marie-Tooth disease... I wonder what to co-relationships are!
(Comment Replies Disabled)

 
Mary Ergle
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
29 Nov 2010 10:56:55 AM PST
Very informative and I think the comments helped me.
(Comment Replies Disabled)

 
Linda Hamilton
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
05 Dec 2010 12:32:07 PM PST
I am so glad that I was led to this website. I have had some of these symptoms for years and just started to have the stomach pain,cramps,nausea, etc. for the last 14 months and its almost daily for the last month.I thought it might be caused by something emotional because my daughter had breast cancer and asked for the family to be together for maybe the last time last Sept. 12th.,2009 and my stomach problems started that day one hour before they were to arrive and just have not stopped since for long. It was the last time the whole family was together and she passed on June 22nd.,2010. I will start the gluten free diet and see if it helps.
(Comment Replies Disabled)

 
Betty Keywood
Rating: ratingfullratingfullratingfullratingfullratingfull Unrated
said this on
08 Dec 2010 7:37:53 AM PST
Oh my gosh! I finally have a name for all my symptoms!! I cannot thank you enough for creating this site! Now I know what I can safely eat and can begin to heal, thanks to you!! What a God-send you are. Thank you from the bottom of my heart.
(Comment Replies Disabled)


Comment posting has been disabled on this article