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What is Celiac Disease?
Celiac disease (aka coeliac disease) is a genetic autoimmune disorder where ingesting gluten (a protein in wheat, barley, and rye) triggers an immune response that damages the small intestine's lining. This damage leads to inflammation and atrophy of the villi, tiny finger-like projections in the intestine responsible for nutrient absorption. As a result, individuals with celiac disease may experience symptoms like diarrhea, bloating, fatigue, and malnutrition. Over time, untreated celiac disease can lead to more severe health problems, including anemia, osteoporosis, weight loss, and increased risk of certain cancers. A strict gluten-free diet is the only effective treatment. Celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer...[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
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Recent Activity
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- lmemsm replied to Dora77's topic in Coping with Celiac Disease4
Ocd making gluten fears unmanageable. Need advice
When they give you a blood test, there's a range they consider low to high from the results. It's not based on how much vitamin you're taking. My blood tests were low and then I took 5000 IU and they went too high on the blood test. I also get exposed to D from the sun and I live in a very sunny area and I get D in some foods I eat. I was very annoyed...- asymtomatic
- celiac
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- Wheatwacked replied to Dora77's topic in Coping with Celiac Disease4
Ocd making gluten fears unmanageable. Need advice
How high is too high? I take 10,000 IU vitamin D3 every day. My blood is stable at 80 ng/ml (200 nmol/L). Even at 10,000 a day it took 8 years to raise it to 80. Higher levels of 25(OH)D in blood can moderate the autoimmune attack. Vitamin D Is Not as Toxic as Was Once Thought Lower vitamin D levels have also been associated with increased OCD symptom...- asymtomatic
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- Scott Adams replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications1
Finding gluten free ingredients
I completely understand the frustration of finding reliable gluten-free ingredients—it's exhausting when trusted products disappear or companies don't respond to safety inquiries. For teff flour in bulk, check out Azure Standard or Bulk Foods; both often carry gluten-free grains in larger quantities and clearly label dedicated facilities. For soy flour, ... -
- Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips1
beans in dessert recipes
Beans in desserts are a fantastic way to add moisture, structure, and protein while keeping recipes gluten-free. Black bean brownies are a classic, but other beans like adzuki and pinto can also work well—adzuki beans are naturally sweet and often used in Asian desserts, making them great for cookies or cakes. Lentils, especially red lentils, blend smoothly i... -
- lmemsm replied to Dora77's topic in Coping with Celiac Disease4
Ocd making gluten fears unmanageable. Need advice
This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free. I have allergic reactions to some toothpastes...- asymtomatic
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