Scott Adams
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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its... -
Dried Chickpeas
Scott Adams replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
If a package of dried chickpeas or lentils says “may contain” or “may have been cross contaminated,” that usually means they were processed in facilities that also handle wheat, barley, or rye. The concern is not gluten dissolved on the surface like dust that can simply be rinsed away, but small fragments of gluten-containing grains that may be mixed in duri... -
I think you're reading way too much into this study--it is a large population-based study, and when they do these they aim not to focus it on a particular smaller sub-set of the population, in fact, they take measures to be sure that doesn't happen.
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Why Perimenopause Can Make Celiac Symptoms Harder to Control
Scott Adams posted an article in Spring 2026 Issue
Celiac.com 02/12/2026 - Celiac disease is often described as a condition triggered by gluten, but for many adults, especially women, symptoms do not exist in isolation. Instead, they fluctuate across different stages of life. One of the... -
Celiac.com January 2026 - Explore expert insights, research updates, and practical tips on celiac disease, gluten-free living, and emerging treatments in our video library. Stay informed and empowered with the latest developments to manage... -
The comments requested are very limited in scope, and I don't think this shotgun approach would be helpful, but that is just my 2 cents, for what it's worth.
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Welcome @LifeOfBryan, do you have celiac disease, and are you currently on a gluten-free diet? Currently this is still the only treatment, even though there are various medical treatment approaches in the works.
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Welcome, and it is overwhelming at first, but it sounds like you are on the right track. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
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My advice on those making comments: keep the as short and succinct as possible. Stick to the main point, which is that any gluten in the product, including that from wheat, rye, barely, and perhaps oats (~10% of celiacs cannot tolerate avenin), needs to be disclosed on the ingredient label.
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Vit K2 (MK7) also helps prevent calcium buildup (arterial sclerosis) in arteries. I added it last year to my daily vitamin intake. NOTE: Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals.
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Celiac.com 02/11/2026 - Celiac disease is a condition in which the immune system reacts to gluten, a protein found in certain grains, causing damage to the lining of the small intestine. This damage can lead to a wide range of digestive...-
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There has always been a ZERO gluten down to the lowest possible level we can test minority, and currently there is a strong push for <10ppm as a standard. I fully understand why people might feel this way, but perhaps they need to be given a questionnaire where they also answer questions about how much they are willing to pay for a loaf of gluten-free...
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This isn't just about the cost of gluten-free testing, and it's more about the overall costs associated with everyone in the food an ingredient supply chain being able to maintain such low levels, which is quite expensive. Just look at the current cost of gluten-free foods--change the laws and cut the level in half--10 ppm--how can food manufacturers pass...
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Books about celiac
Scott Adams replied to Aya77's topic in Gluten-Free Foods, Products, Shopping & Medications
Shelley Case has written many books and has contributed articles here (but it's been a while, I think she retired years ago): https://www.celiac.com/profile/135164-shelley-case-b-sc-rd/ -
I agree, and have had a lot of high level contact over the years with companies that make gluten-free foods. While some consumers are clamoring for "ZERO detected gluten" to be labelled gluten-free, many companies are willing to stop putting this on their labels if it ever drops below 20ppm. To them, lowering levels just represents an increase in liability...
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Penzeys
Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
This is a thoughtful and careful way to approach a gray area that many of us run into with spices. What’s helpful here is that you took the time to clarify Penzeys’ internal practices rather than relying on assumptions or marketing language, and you laid out their labeling logic in a clear, transparent way so others can evaluate it for themselves. Fenugreek has... -
What you’re describing is actually very plausible, even if it isn’t talked about nearly enough. Celiac disease can have neurologic manifestations, and gluten exposure has been linked to tremor, ataxia, and other movement disorders in a subset of patients—sometimes referred to under the broader umbrella of gluten-related neurologic involvement. When glute...
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You’re not imagining this, and you’re not “overreacting.” Sensory sensitivity—especially to food odors—can intensify after menopause and in people with celiac disease, migraines, or neurologic involvement, and for some it can be a very real trigger. The problem isn’t that bakeries exist, but that public spaces like airports and medical facilities increasingly ...
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What you’re describing is, sadly, something many people with celiac disease recognize all too well—being questioned, dismissed, or mislabeled when you’re simply trying to understand and manage a condition that has real, lifelong consequences. Wanting documentation, clarity, and continuity of care isn’t “chasing” a diagnosis; it’s advocating for your own ...
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Happy birthday—and that’s a very reasonable question to ask. Yes, secondary hyperparathyroidism can absolutely be driven by malabsorption, especially in people with celiac disease, where low vitamin D and impaired calcium absorption keep parathyroid hormone elevated even after partial correction. Many find that PTH can lag behind vitamin D improvements for...
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Thank you for sharing this—your story is heartbreaking, powerful, and, unfortunately, far too familiar to many in the celiac community. Being dismissed, misdiagnosed, and blamed for symptoms for decades, only to later discover they were all connected to untreated celiac disease and malabsorption, represents a profound failure of the medical system. The p...
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Gluten-Free Chinese-Style Green Beans with Garlic and Peppers
Scott Adams posted an article in Chinese & Asian
Celiac.com 02/07/2026 - Chinese-style green beans have earned a devoted following because they deliver big flavor with a short ingredient list. Across many Chinese home kitchens, quick cooking over high heat is used to turn everyday vegetables... -
Celiac.com 02/06/2026 - Cantonese-style steamed fish is one of those dishes that feels almost too simple to be special—until you taste it. For generations, cooks in southern China have relied on gentle steaming to highlight the natural s... -
Celiac.com 02/05/2026 - For many years, celiac disease was widely viewed as a condition affecting primarily people of European descent, especially those living in North America and Western Europe. Medical textbooks, diagnostic guidelines... -
You’re raising a very real and very well-documented problem, and you’re absolutely right to be frustrated. Medication labeling is a major blind spot for people with celiac disease, because unlike food, drug manufacturers are not required to clearly disclose the source of binders, fillers, or excipients—even when they may be derived from wheat. That puts ...
