Scott Adams
-
Posts
28,563 -
Joined
-
Last visited
-
Days Won
649
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by Scott Adams
-
Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated.... -
Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
-
I think a key thing here would be to ensure that the prescription(s) she started taking are actually gluten-free, as some contain wheat starch. In the USA we have a site you can check, not sure about the UK, but possibly. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one...
-
Celiac.com 03/06/2026 - For many college students, dining halls are a central part of daily life—places to eat, socialize, and recharge between classes. But for students with celiac disease, food allergies, or religious dietary requirements, ... -
Test interpretations
Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also h... -
Celiac.com 03/05/2026 - For people with celiac disease or gluten sensitivity, avoiding gluten is not a preference but a medical necessity. Most conversations about gluten exposure focus on food labels, restaurant safety, and cross-contact... -
I understand why that feels frustrating, because the labeling can definitely seem confusing. In the case of products like King Arthur’s gluten-free bread flour that contain gluten-free wheat starch, the wheat starch has been specially processed to remove the gluten proteins that trigger celiac disease. Because it originates from wheat, U.S. labeling laws s...
-
I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should...
-
Here are some articles on cross-reactivity and celiac disease:
-
Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojda...
-
Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s help... -
By the way, a few years back Nestle launched gluten-free DiGiorno pizza which also used Codex quality wheat starch, but due to backlash from the celiac community quickly reformulated and it is now wheat-free. Personally I think it's not a good direction to go, considering the many alternatives available now.
-
I just want to mention that a colonoscopy would not be the test for celiac disease damage, was it an endoscopy? It is not unusual to do either or both tests as a long-term follow up, especially if you're having issues. I fully understand you not wanting to go through a gluten challenge, and would be curious why they would request that part of your follow...
-
Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free g...
-
It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable p...
-
I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and ...
-
Celiac.com 02/28/2026 - Pancakes have been a breakfast standby for centuries because they are simple, filling, and easy to customize with whatever you have on hand. In many households, bananas became a popular pancake ingredient during... -
Celiac.com 02/27/2026 - This is a study done in 2021 which looked at a very specific and important real-world question: in northwestern Mexico, are foods labeled “gluten-free” actually safe for people with celiac disease? The researchers foc... -
Terrible Neurological Symptoms
Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal.... -
Reverse Osmosis (RO) Water
Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated s... -
Bottled water, filtered water, distilled water, and products like Gatorade are naturally gluten-free and do not contain gluten unless contaminated during manufacturing, which would be highly unlikely and subject to labeling laws. Gluten is a protein from wheat, barley, or rye—it is not present in water, minerals, plastics, phosphates, bicarbonate, or electrolytes. ...
-
Water does not contain gluten--bottled water included. This is an official warning that you'll receive a warning if you continue to push this idea. Gatorade is naturally gluten-free as well, and it's purified water does not include gluten. You can see all sort of junk on the Internet--that does not mean it is true.
-
Celiac.com 02/26/2026 - For people with celiac disease or serious gluten sensitivity, the words “gluten-free” are not a lifestyle preference or a marketing trend. They are a safety signal. A single mislabeled product can cause weeks of ... -
Reverse Osmosis (RO) Water
Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, ...
