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Australian Study On Non Celiac Gluten Sensitivity As Rare


Mr. GF in Indiana

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Mr. GF in Indiana Newbie

Apologies if this has already been discussed recently. Those of us who are diagnosed celiac or ncgs by a doctor, are not the point of the following article. The point is to take those who suffer some symptoms medically, who self-diagnose gluten is their problem, and find out what percent of that small group (population-wise) can in fact eat gluten without those symptoms arising. I have no idea if the self-diagnosed ncgs (non-celiac!) group in the USA is 50,000 or 500,000, or even in the millions. Note the doctors doing the study, very much assert that ncgs is a very real condition, what they are addressing is the accuracy of diagnosis for the very large group of self-diagnosing people.

This is the article:

Open Original Shared Link

Here is an explanation in English, and runner's world has a sizeable audience:

Open Original Shared Link

Note that the elimination of Fodmaps by the researchers is important: these foods may themselves cause distress, and it is possible they cause the gut to react more readily with gluten (which may be an issue already researched and analyzed elsewhere).

So perhaps 10% or less of those who self-diagnose as gluten sensitive for their symptoms, have got it right...pretty serious mistake, depending what their real issue is. In the 1960's, this was called "reader's digest disease", the digest would feature some arcane disease each month, and tens of thousands of old people would deluge their doctors convinced they had it...until the next month (now seeing the same effect with the aarp magazine, apparently).


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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